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Type: Posts; User: Jake XYZ

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    Sticky: I was doing trimix. Now I’m doing “single mix”...

    I was doing trimix. Now I’m doing “single mix” Edex. I don’t really like injections. The best results I’ve had is using Sildenafil and a small amount of trimix - like really small.

    Trimix by...
  2. For what it’s worth, I saw two ROs and they both...

    For what it’s worth, I saw two ROs and they both said surgery was my best option. One said, “for your situation surgery really is your best option, and I LOVE radiation”.
  3. I think you mentioned before why you aren’t going...

    I think you mentioned before why you aren’t going to Hopkins for surgery. But it’s highly regarded for surgery and plenty of guys on here have gone there with good results - me included. There is...
  4. I had surgery exactly one year ago this week. I...

    I had surgery exactly one year ago this week. I still look at my life as “before RALP” and “after RALP”. They say the three priorities with PCa are 1. Don’t die. 2. Regain/remain continent. 3....
  5. Maybe I have missed prior discussions, but why...

    Maybe I have missed prior discussions, but why isn’t Brachytherapy RT a choice you have? Also if the biopsy isn’t too bad, some guys will get IMRT without getting ADT HT. Although; I was told I...
  6. I don't know if this is exactly the same thing,...

    I don't know if this is exactly the same thing, but this is on the Johns Hopkins website on ERECTION REHABILITATION AFTER RADICAL PROSTATECTOMY - and its just one of the "rehabilitation strategies"...
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    He is way way way ahead of where most RALP...

    He is way way way ahead of where most RALP patients are at 2 months....even ahead of where most are at 6-9 months. If I could get an erection with 20mg of Sildenafil I would be doing back flips. ...
  8. A year ago when I was looking for a URO surgeon...

    A year ago when I was looking for a URO surgeon at Johns Hopkins, I was reading the Dr's individual pages on JH's website. I haven't looked now, but I imagine it hasn't changed -- on Dr Carter's...
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    Rmotacek, I have no signs of Peyronie’s yet. ...

    Rmotacek,

    I have no signs of Peyronie’s yet. I have done 9 or 10 shots in 2 months. I had some real pain in my penis anytime I had any semblance of an erection ever since surgery. But in my...
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    I'm 10 months out from surgery. Still full ED. ...

    I'm 10 months out from surgery. Still full ED.

    I have generic Viagra (sildenafil) in 20mg tablets. It does nothing for me other than give me a stuffy head, and a headache and a general feeling...
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    Good post OTS now OTEJ.....I'm just guessing...

    Good post OTS now OTEJ.....I'm just guessing here. I would think it should be easier if you are say, 65 and older to get to acceptance than if you are 40 something. I know all of us deal with our...
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    There's a lot of other things that can kill you...

    There's a lot of other things that can kill you while PCa is brewing. I feel like if I just focused on PCa, then the thing I didn't see coming would you know, blind-side me. It depends on what...
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    I’m one of the different ones. I did not want to...

    I’m one of the different ones. I did not want to go through the hassle of changing from big bag to small bag and back again. I stayed in the house all 9 days I had my catheter. I didn’t even wear...
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    I had non-aggressive 3+4=7. My Dr said I needed...

    I had non-aggressive 3+4=7. My Dr said I needed treatment within 6 months of the biopsy, but an RO wanted to start sooner. I had a big trip to Europe already planned so URO said it would be OK to...
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    Sticky: I suggest going to a forum called...

    I suggest going to a forum called Franktalk...www.franktalk.org ...its dedicated to ED and every aspect of ED is talked about much more than on here (not everyone there is a prostate surgery person)....
  16. Those are the exact ones I described in my...

    Those are the exact ones I described in my previous post, except that I got the 4 pack and you are getting the 6 pack. I probably could have gotten by with 2. they wash up fine. I think I only...
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    I'm not sure exactly yet on the monitoring...

    I'm not sure exactly yet on the monitoring schedule. I think it is every 5 or 8 weeks. But the monitoring will include several blood tests with PSA one of them. They also need to monitor your T...
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    Did you know that the shoulder pain from the gas...

    Did you know that the shoulder pain from the gas is actually originating around your diaphragm. The gas is pushing on the diaphragm but the pain presents itself in the shoulder region. I have had 3...
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    I will relate my recent experiences: I...

    I will relate my recent experiences:

    I started going to a URO to speed up getting over ED (if that is possible). Its not the Dr who did my RALP, but he works with him. One of the things he...
  20. 7 weeks post surgery isn't that long. I also...

    7 weeks post surgery isn't that long. I also bought a donut pillow from amazon and it was really helpful. I could sit semi reclined with no problem but sitting up, like on a hard chair or like a...
  21. My Hopkins Dr had me get one at 6 weeks. it was...

    My Hopkins Dr had me get one at 6 weeks. it was 0.00 and then he said I didn't need another one for a year! But, I had to get bloodwork a couple more times later for other medical things so I had...
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    So my first URO was Dr Klein's son who works in...

    So my first URO was Dr Klein's son who works in northern VA outside DC. a lot of what your Dr. Klein said and did is what his son told and had done to me -- like that genome test - I guess there...
  23. I got these and they worked pretty good. They...

    I got these and they worked pretty good. They were big enough that I didn't move off of them during the night. I was using them when it was summer and because they don't breathe really well (since...
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    If you search the forum for other posts with...

    If you search the forum for other posts with titles like "newbie", New here, first time poster, etc...you will see all kinds of good advice from the most experienced members. Most are going to say...
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    Another, I'm going to a practice of two UROs...

    Another,

    I'm going to a practice of two UROs who specialize in ED. They also work with the guy who did my surgery at Hopkins. The pain I get, I was getting also before Trimix. the same thing...
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