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  1. Replies
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    Qlu, you've done so well. What stage were you at...

    Qlu, you've done so well. What stage were you at diagnosis?
  2. Thread: Ca 19-9

    by jackieb501
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    1,468

    Thanks, Susan. I was able to do it.

    Thanks, Susan. I was able to do it.
  3. Thread: Ca 19-9

    by jackieb501
    Replies
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    1,468

    Thank you so much, Dessmo!

    Thank you so much, Dessmo!
  4. Thread: Ca 19-9

    by jackieb501
    Replies
    19
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    1,468

    Oh, believe me. I don not want to not eat sugar....

    Oh, believe me. I don not want to not eat sugar. In fact, I'd like to eat more of it. I just want to know that it is safe.
  5. Thread: Ca 19-9

    by jackieb501
    Replies
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    1,468

    Thank you. So what you're saying is that, even if...

    Thank you. So what you're saying is that, even if we limit our glucose intake, the cells will draw from sugar from carbs and starches. I also understand, first hand, that we need to maintain our...
  6. Thread: Ca 19-9

    by jackieb501
    Replies
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    1,468

    David, I know you are of the belief that the...

    David, I know you are of the belief that the notion of sugar fueling cancer is a myth, but do you get the impression that Gatenby takes the opposite view? I know this is not the main idea of the...
  7. Thread: Ca 19-9

    by jackieb501
    Replies
    19
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    1,468

    David, that's exactly how I feel. I am of two...

    David, that's exactly how I feel. I am of two minds. Would it not be better to postpone the inevitable ineffectiveness of the drugs? On the other hand, if we could completely wipe it out now,...
  8. Thread: Ca 19-9

    by jackieb501
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    19
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    1,468

    Hi. I need to figure how to update my signature....

    Hi. I need to figure how to update my signature. Anyway, yes, I am on chemo. Unfortunately FOLFIRINOX did not work for me, so the chemo I am on is a mix of two drugs (gemcitibine and S-1), that had...
  9. Mmm, but my understanding is that, once you get...

    Mmm, but my understanding is that, once you get the cancer, BRCA can be good. It responds well to chemo such as FOLFIRINOX. I guess platinum based..D. Dessert would know more.
  10. Thread: Ca 19-9

    by jackieb501
    Replies
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    1,468

    Ca 19-9

    Hi, All.
    Good news to report. My MRI three months after radiation treatment shows me now as NED (No evidence of disease). The CA 19-9 dropped dramatically since radiation, but it is still not normal...
  11. Thread: Nexium

    by jackieb501
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    577

    Thanks. I wonder why some people don't even need...

    Thanks. I wonder why some people don't even need to take Creon. Do you take the PPI at least one hour before a meal?
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    Keith, that exact thing happened to me when I got...

    Keith, that exact thing happened to me when I got the infusion, those two drugs, specifically, really hit me hard. Slurred speech, I felt waves rushing through me. It was really tough the first time,...
  13. Thread: Nexium

    by jackieb501
    Replies
    4
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    577

    Do you take it everyday? I thought it seemed...

    Do you take it everyday? I thought it seemed excessive to take that everyday, plus the Creon at every meal, and I got kind of lax about the Nexium. But recently I feel like I have acid and...
  14. Thread: Nexium

    by jackieb501
    Replies
    4
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    577

    Nexium

    Does anyone here take this drug?
  15. Thread: ascites

    by jackieb501
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    2,555

    Thank you!

    Thank you!
  16. Thread: ascites

    by jackieb501
    Replies
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    2,555

    Hello, Mel, and everyone here. I have good news...

    Hello, Mel, and everyone here. I have good news to report. The doctor did a quick ultrasound and found no fluid. There was gas, and I'm guessing this was the culprit. I'm so relieved. I didn't...
  17. Thread: ascites

    by jackieb501
    Replies
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    2,555

    Thanks so much for the replies. I'm really...

    Thanks so much for the replies. I'm really encouraged to read that there is a possibility to combat ascites. I doubt I have it, but my strategy for survival is to always stay a few steps ahead so...
  18. Thread: ascites

    by jackieb501
    Replies
    16
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    2,555

    I'm sorry for your loss. I'm feeling relaxed and...

    I'm sorry for your loss. I'm feeling relaxed and not in a panic, just want to learn more about it, as this seems to be a common cause of death among PC patients. I'll be consulting with my doctor in...
  19. Thread: ascites

    by jackieb501
    Replies
    16
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    2,555

    ascites

    Hi, what can people here tell me about ascites? I know d dessert has corresponded with many patients over the years, so hoping for an answer from him or anyone. Is it true that it usually means the...
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    I was on Gemzar/Abraxane for a year, and went...

    I was on Gemzar/Abraxane for a year, and went back on it again later. The neuropathy was severe, and I still have damage. I think it's permanent. I always try to warm my feet with electric blankets...
  21. I'm still not entirely clear on the difference...

    I'm still not entirely clear on the difference between SBRT and IMRT.
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    Dessmo, haven't you had consultations with Markus...

    Dessmo, haven't you had consultations with Markus Büchler, or was he your surgeon before? I thought he could do anything.
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    Hi. I'm sorry about your mother's diagnosis. I'm...

    Hi. I'm sorry about your mother's diagnosis. I'm not sure what to do about red blood call count, foods with iron? My problem has been with white blood count. I know that FOLFIRINOX can be very...
  24. Thread: Cisplatin

    by jackieb501
    Replies
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    1,819

    Was it a local recurrence? Your story is...

    Was it a local recurrence? Your story is encouraging.
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    Yes, Gemzar/Abraxane worked. FOLDIRINOX...

    Yes, Gemzar/Abraxane worked. FOLDIRINOX apparently didn't. I'm being taken off it after three tries, because the CA 19-9 kept doubling.
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