A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    You could try germline genetic testing. If you...

    You could try germline genetic testing. If you want to order it yourself, there are direct to consumer options such as color.com for about $250 out of pocket (no insurance). It is not a full genetic...
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    Having a BRCA2 mutation also demands a lot of...

    Having a BRCA2 mutation also demands a lot of vigilance. I’m finding that after getting the appointments set up and recurring on an annual basis has freed me from constantly thinking about cancer. It...
  3. Thread: article

    by ddessert
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    The battle for survival. Evolution is all about...

    The battle for survival. Evolution is all about the survival of the fittest (for the particular environment they live in).

    If you make the environment amenable to cells that are susceptible to the...
  4. Testicular cancer is one of the few cancers that...

    Testicular cancer is one of the few cancers that can be cured by current treatments - even metastatic cases. Follow through on the appointments knowing that even if it is cancer, there’s a good...
  5. Thread: article

    by ddessert
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    I think it sounds extremely promising. But then...

    I think it sounds extremely promising. But then I’ve been talking to oncologists about using game theory on cancer treatment for several years. I don’t think they understand the idea so it usually...
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    I think I agree with you. Those readings that you...

    I think I agree with you. Those readings that you show in your link look like an extended and aggressive tumor response to treatment. While not usual, it could be happening and would be very...
  7. MD Anderson should have some clinical trials...

    MD Anderson should have some clinical trials available that have lower risk of neuropathy. It may take several weeks to get officially enrolled and started. You can always contact PanCan.org for...
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    Peritoneum metastases have been handled well by...

    Peritoneum metastases have been handled well by some people but it always seems to rely on a successful treatment.

    Be on the lookout for ascites or fluid retention - a sign of the tumor irritating...
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    In PanCan, PARPi were tested but did not have...

    In PanCan, PARPi were tested but did not have much efficacy, in general. Mostly just the patients with BRCA1, BRCA2, PALB2, and a few other mutations. It may, however, be more effective in...
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    Not exactly new trial results. This one finished...

    Not exactly new trial results. This one finished in Oct 2017 but Dr. Von Hoff likes to talk about it a lot. Unfortunately it has not attracted funding for a phase 3 trial and I’m not sure why. The...
  11. Gemcitabine/Abraxane (GAX) is the other...

    Gemcitabine/Abraxane (GAX) is the other front-line treatment option.

    If the FOLFIRI still shows efficacy (watch those CA19-9 numbers), then perhaps it still has legs for you? If not, a switch to...
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    Dessmo, I saw this publication recently and...

    Dessmo,

    I saw this publication recently and thought of you and ACC vs adenocarcinoma. Your decision to tell your caregivers that ACC should not be lumped in with adenocarcinoma for treatment and...
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    OZDAVID, Pretty much everyone here has...

    OZDAVID,
    Pretty much everyone here has pancreatic adenocarcinoma (ductal or acinar). You will find a very active pNET group on the Inspire network.

    Good Luck!
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    This seems entirely consistent with someone who...

    This seems entirely consistent with someone who has "started counting my calories in the middle of the summer and eating less".
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    Well, your doctor is right about how rare it is...

    Well, your doctor is right about how rare it is under 40 years of age, but not correct about how pancreatic cancer "usually presents" (jaundice). Two other common ways are back and/or abdominal pain...
  16. Thread: New Cancer

    by ddessert
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    #1: The first round of chemo is often the worst....

    #1: The first round of chemo is often the worst. You have no idea what it’s going to do to you nor how to overcome it. You’ll learn quickly and it often gets a bit easier.

    #2: Any stats on how...
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    I would also say that you should keep any...

    I would also say that you should keep any earliest appointments you have made. That size tumor should be hard to miss. With my father, delays from appointments really added up and I wished we had...
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    This does sound encouraging!

    This does sound encouraging!
  19. Thread: Ca 19-9

    by ddessert
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    If you limit your sugar intake, your body will...

    If you limit your sugar intake, your body will still convert starches (using amylase), proteins and fats (gluconeogenesis) into sugars. Carbohydrates are just an umbrella term for various kinds of...
  20. Thread: Ca 19-9

    by ddessert
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    Jackie, the problem with the “sugar feeds cancer”...

    Jackie, the problem with the “sugar feeds cancer” idea is not that sugar feed cancer, because it certainly does as sugar does for all cells in your body.

    The problem with “sugar feeds cancer” is...
  21. Thread: Ca 19-9

    by ddessert
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    2,284

    Jackie, there is some evidence for what you are...

    Jackie, there is some evidence for what you are saying. It seems somewhat heretical to not throw everything at this for as long as possible, but that may be causing the ineffectiveness to happen...
  22. I think PARPi started with ovarian cancers. But...

    I think PARPi started with ovarian cancers. But it is a growing and successful trend to consider treatments based on cancer genetics as well as the site of origin. Oncologists that are not on board...
  23. Thread: Ca 19-9

    by ddessert
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    I made two videos about CA19-9 and pancreatic...

    I made two videos about CA19-9 and pancreatic cancer:
    Pancanology explains causes of CA19-9
    Pancanology Explains CA19-9 and Treatment Effectiveness
  24. I will say that in general, immunotherapy has...

    I will say that in general, immunotherapy has been a bust in pancreatic cancer thus far - especially as compared to other non-solid Tumor cancers. It seems our stroma surrounding the tumor is being a...
  25. Thread: Olaparib

    by ddessert
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    That’s right, none are yet approved for...

    That’s right, none are yet approved for pancreatic cancer. I’m not familiar with all the details on how to get it, but it’s almost certain you need a doctor on your side pulling the same way!
    ...
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