A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Thread: First post

    by IndyLou
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    Hello, I'm sorry to hear that you've been...

    Hello, I'm sorry to hear that you've been diagnosed with this cancer, but I'm glad that you found your way to this site when you did.

    How are you feeling? The radiation to the mouth area starts...
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    There are special brands of formula designed for...

    There are special brands of formula designed for enteral (tube) feeding, and as long as your aunt is consuming the prescribed number of cartons, she should be able to maintain her weight. Granted,...
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    It sounds like the medical personnel followed the...

    It sounds like the medical personnel followed the proper protocols. I don't know the exact location of the initial throat cancer, but it's possible it was missed the first time your aunt was scanned....
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    Hello, I'm sorry to hear of your aunt's diagnosis...

    Hello, I'm sorry to hear of your aunt's diagnosis and her new, or previously undetected cancer in her lungs. Can you tell us where your aunt is being treated?

    Normally when cancer is first...
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    Every patient is different, Melisanda; you should...

    Every patient is different, Melisanda; you should probably discuss what you're feeling with your doctors.
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    If you care to share a link, Melisande, I'd be...

    If you care to share a link, Melisande, I'd be interested to read your blog posts.

    All the best as you continue your treatments.
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    Hi, Joe...I've been thinking about you and...

    Hi, Joe...I've been thinking about you and wondering how your results went. While I'm sorry to hear that the diagnosis was cancer, I think this will be very treatable, and you have an excellent...
  8. Hello- I'm very sorry to hear the loss of your...

    Hello-

    I'm very sorry to hear the loss of your sister; I can tell from the beautiful way you described her, that she was very dear to you. I don't claim to be a doctor, nor can I interpret some of...
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    CT and PET scans are not reliable diagnostic...

    CT and PET scans are not reliable diagnostic tests for cancer, so I would try to be patient until your biopsy results are shared. Do you have a date for the follow-up appointment?
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    I think your doctor is taking the right approach;...

    I think your doctor is taking the right approach; your story does not seem a whole lot different from mine, and you're at an age where—when you present with the symptoms you have—its reasonable to do...
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    Melisande--we each process information...

    Melisande--we each process information differently, I suppose. You are certainly free to accept or reject anything you see on this forum, but there's no need to insult us.

    The practice of...
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    Hello- I'm going to be fairly direct...

    Hello-

    I'm going to be fairly direct here...you're not living the most healthy lifestyle right now, and that eventually catches up to you. Your doctor is absolutely correct however, the symptoms...
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    Best wishes, Melisande. You're in a new phase of...

    Best wishes, Melisande. You're in a new phase of your journey.
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    You're right...most people that come here and...

    You're right...most people that come here and report that they feel almost certain that they have cancer--that "it can't possibly be anything else!" Most of them finally see a doctor, discover their...
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    Melisande--you're asking questions that all...

    Melisande--you're asking questions that all cancer patients ask at some point, but ultimately, you may have to make a decision about trade-offs. Do you want to treat the cancer, or avoid treatment...
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    Cisplatin and Taxotere have both been used with...

    Cisplatin and Taxotere have both been used with H&N cancer treatment; carboplatin may have been used at one time or another. The protocols evolve over time, and with the way immunology drugs have...
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    If I understand your question correctly, a...

    If I understand your question correctly, a simulation for radiation treatment is where they physically prepare you for the administration of radiation therapy. This milestone will mark the beginning...
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    Melisande- I'm sure it seems like a long...

    Melisande-

    I'm sure it seems like a long journey already, but it looks like you're making some breakthroughs. You now have a diagnosis, and you can consider treatment options. Things will start to...
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    Those are beautiful pictures...great scenery! ...

    Those are beautiful pictures...great scenery!

    My wife and I are going up to the Seattle area in a couple weeks. I am looking to see some of the geographical formations in that area. I'm sure you...
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    I understand your dilemma, Melisande. It DOES...

    I understand your dilemma, Melisande. It DOES sound like your local hospital is at least attempting to make some sense of things. Any thoughts on where you might go from here? I think in the end, you...
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    I certainly hope this is a case of a false...

    I certainly hope this is a case of a false positive on the PET scan. I agree that I don't think renal cancer is an SCC, and it seems odd that you would experience metastases from your kidney to your...
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    I'm sorry to hear that you aren't feeling upbeat...

    I'm sorry to hear that you aren't feeling upbeat about your procedure, Melisande. Can you remind me again, what were they probing with the FNA--the tumors in your thorax region, or something else? I...
  23. "Convenience" for you equals "compliance" to a...

    "Convenience" for you equals "compliance" to a treatment regimen, and your doctor should be fully supportive of that, unless they have some reason to believe that the infusion facility doesn't have...
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    I did a search on clinicaltrials.gov, using...

    I did a search on clinicaltrials.gov, using "SCCHN" and "Completed" as my criteria, just to find locations that have conducted H&N studies. Working in the pharmaceutical industry, I can tell you that...
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    That's an interesting take on things...like, "who...

    That's an interesting take on things...like, "who can I see about getting this diagnosis changed--where's the manager??"

    I will say that I've heard that benign lung nodules are quite common,...
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