A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: Mary N.

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  1. Replies
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    I'm back posting on my post again. I had another...

    I'm back posting on my post again. I had another MRI about a week ago and went to the oncologist yesterday. He finally admitted 9 1/2 years after diagnosis and 5 years after finishing chemo that I...
  2. Thread: 26 and alone

    by Mary N.
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    710

    Sometimes we have to do what we don't think is...

    Sometimes we have to do what we don't think is possible and it sounds that you are in that situation. I'm glad you have a job and it sounds like a boy friend and a sister. She is so lucky to have...
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    I was told I could never donate again. It only...

    I was told I could never donate again. It only takes one blood cell to multiply and start the disease process. I would not want to relieve my blood either and I was really sad because I did donate...
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    I'm not sure any particular diet helps as long as...

    I'm not sure any particular diet helps as long as it is balanced. I at a very alkaline diet but it was necessary because of the way my kidneys responded to my chemo. I would add though that it is...
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    Happy to hear that he had a good response from...

    Happy to hear that he had a good response from the MATRIX. When I was first diagnosed the doc said I maybe had 6 months to a year. I responded well although the first time on the high dose MTX it...
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    Hi sorry to meet you this way. I am a firm...

    Hi sorry to meet you this way. I am a firm believer in second opinions. I would certainly recommend that you push for a review at Sloan Kettering. I have not had MATRIX protocol but did have DLBC...
  7. Hi Sarasotalady, My cancer was in my brain -...

    Hi Sarasotalady,
    My cancer was in my brain - DLBC-NJL and I was 70 when diagnosed. I got my chemo for about 4 1/2 years because my oncologist thought I might have it reoccur because it often does...
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    Hello Hopewins, My treatment was so different...

    Hello Hopewins, My treatment was so different than your Mom's for my DLBC CNS NHL that I really don't know about the regime your mom is on. My doctor has told me that if mine reoccurs he will...
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    I also found that the port was not uncomfortable...

    I also found that the port was not uncomfortable after the first week or two and I have never been sorry that I had it. It sounds like you are right on schedule and I'm glad you have a plan. Best...
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    Hello jcricket. At this point there will...

    Hello jcricket. At this point there will probably be a bit more testing that you will go through to find out exactly where and what it is. There are many different kinds and each kind has its own...
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    Marian, It was nice to see you back to tell us...

    Marian, It was nice to see you back to tell us how well you are doing. I now check in almost daily but since nothing has happened much have rarely replied. I hope that your life and anxiety attacks...
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    Didee certainly was one of a kind and will be...

    Didee certainly was one of a kind and will be missed. We both started here about the same time but I have just been lurking for quite a while. She was always helpful. Comfort to all friends and...
  13. Thread: A good laugh

    by Mary N.
    Replies
    13
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    4,636

    Oh my -too funny

    Oh my -too funny
  14. Replies
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    27,824

    Hi Jotey, Glad the brain scan came back...

    Hi Jotey, Glad the brain scan came back clean.This tricky disease often has ups and downs. I'm glad you try to find time to be a couple as that is really important to for the whole family. I hope...
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    I found it was about 3 weeks until I almost...

    I found it was about 3 weeks until I almost forgot I had the port. I think it was one of the best decisions I made to have it because I ended up having chemo for 4 1/2 years.( Actually my brain was...
  16. happy to hear you dad is in remission. It is...

    happy to hear you dad is in remission. It is time to live and enjoy life. My remission is continuing on and I wish your dad many years of cancer free although we never know.
  17. I agree that there is a point when we have to do...

    I agree that there is a point when we have to do it. When I felt rotten, I made myself drink water and I made my self eat things I needed to. I also made sure that at the very least I walked around...
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    Hi Hopewins, I took rituxan for four years every...

    Hi Hopewins, I took rituxan for four years every month. My doc felt it might be helpful in keeping the stuff from coming back. I also had high dose MTX much longer than most. I was 70 when...
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    Thanks for the thanks Hopewins. The operation to...

    Thanks for the thanks Hopewins. The operation to remove the tumor, the chemo and the radiation all take their toil. We do recover slowly and there is a real thing called chemo brain. I'm sure I...
  20. Wow - 10 days is a long time. Try having him...

    Wow - 10 days is a long time. Try having him drink some water with a couple of packets of lemon juice in it. The lemon makes an alkaline ash and help the ph. Hopefully he will soon go down and...
  21. I had to have much that was alkaline to be able...

    I had to have much that was alkaline to be able to withstand the high dose MTX. I ate a very alkaline diet and took sodium bi-carb tabs and drank much water. I do hope his kidneys are not damaged. ...
  22. He needs to drink a lot more water. His kidneys...

    He needs to drink a lot more water. His kidneys have all those dead cells to clear from his body and he will clear it faster and he will also feel much better if he drinks lots. I realize that...
  23. Good news! Sounds like he is on the way to...

    Good news! Sounds like he is on the way to remission. Glad you were able to get to Sloan-Kettering for his care. Just a word - it just may take some time to get back to where he was before the...
  24. I'm glad things seem to be going well. It is not...

    I'm glad things seem to be going well. It is not surprising that he doesn't remember how he was behaving. My daughter sure has tales to tell about my behavior when I was first diagnosed.

    It...
  25. Hi Sounds promising. There is nothing more...

    Hi Sounds promising. There is nothing more wonderful than hope. Continue to keep him well hydrated - it really makes a difference in removing the dead cells and making him feel better. hugs
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