A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    We had three of us caregiving and while my sister...

    We had three of us caregiving and while my sister was still functioning pretty well, we'd leave her alone at times for a couple days, but once she needed more care, one of us was always there. It was...
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    I don't know but I would have thought six months....

    I don't know but I would have thought six months. You should ask about this.
  3. Thread: intro

    by GBMsibling
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    That's great; some doctors insist on dishing out...

    That's great; some doctors insist on dishing out the doom and gloom. It doesn't do a bit of good, and no longterm survivor arrives in their consulting rooms with "Longterm Survivor" stamped on their...
  4. Thread: intro

    by GBMsibling
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    Hi jqh1, welcome. Sounds like you've had quite...

    Hi jqh1, welcome.

    Sounds like you've had quite a time, including the unfortunately-common experience of misdiagnosis.

    The keto diet can't work by itself, of course, but there is some slight...
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    Some are easily removable and some are not. We're...

    Some are easily removable and some are not. We're not medical people here, so we can't say, and anyway it depends on the individual. What does your doctor say about surgery for you?

    The tumor is...
  6. Thread: Regrowth

    by GBMsibling
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    Welcome, jenyj. I'm sorry to hear of your...

    Welcome, jenyj. I'm sorry to hear of your husband's GBM recurrence.

    MRIs are usually given every two months with GBM. Is he being seen by a neuro-oncologist?
  7. That dream seems pretty clear... one day you will...

    That dream seems pretty clear... one day you will follow them. But that day is not yet, and meanwhile you have a life to live, work to do, places to see, people to help, things to learn, experiences...
  8. As others have said, there's no evidence that...

    As others have said, there's no evidence that cannabis oil helps with brain tumors. The good news is ependymoma is one of the most survivable brain tumors.

    I don't understand why surgery has been...
  9. Thread: Regrowth

    by GBMsibling
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    2,977

    Well, with GBM it's different, but with GBM if...

    Well, with GBM it's different, but with GBM if it's the first time there's been regrowth, they'll often wait until the next MRI, and even until the MRI after that, just to see if it really is...
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    Hi Firewife. I'm sorry to hear it developed into...

    Hi Firewife. I'm sorry to hear it developed into GBM. We have seen quite a few people here on the forum have longer progression-free survival on Avastin than on Temodar. It might be a good idea to...
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    I'm sorry to hear she's having so many problems....

    I'm sorry to hear she's having so many problems. Sigh. I hate this disease. She's been on Avastin for quite a long time, I can see where that would definitely be cause for concern.
  12. I find planning some activity that takes you away...

    I find planning some activity that takes you away from home and familiar scenes is best for the difficult dates.

    One year, I actually booked a motel room in a town I'd never been to before and...
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    Hi Marjp456, welcome. I'm sorry to hear about...

    Hi Marjp456, welcome. I'm sorry to hear about your meningioma. The good news is that this tumor has a much better prognosis than many other brain tumors.

    If the meningioma is located in a place...
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    Good luck to your mother on her scan! Hope it...

    Good luck to your mother on her scan! Hope it turns out well. Glad to hear that she is doing so well.

    I don't suppose there's anything that can be done about scanxiety but I wish the medical...
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    I always like to assume that if we don't hear...

    I always like to assume that if we don't hear from them, they are.
  16. Thread: Milestone

    by GBMsibling
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    Congratulations on 3 years' survival! Hoping for...

    Congratulations on 3 years' survival!
    Hoping for a good MRI.
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    Congratulations! Welcome, Leopold! Glad to...

    Congratulations! Welcome, Leopold!

    Glad to hear that the seizures are more under control than they were, and that the regrowth has stopped.

    It's been quiet around here lately and I always like...
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    Hi Marie, welcome. I'm sorry to hear about your...

    Hi Marie, welcome. I'm sorry to hear about your pituitary gland tumor. As you probably know, this tumor usually has fewer complications than what you're experiencing. Probably for this reason, we...
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    Wow. That's great. There's so much that isn't...

    Wow. That's great.
    There's so much that isn't known about Avastin.
  20. First, I'm sorry no one has answered your post...

    First, I'm sorry no one has answered your post before; this section of the forum isn't very busy.

    Second, it sounds like your treatment has worked out much better than the doctors expected, which...
  21. It sounds like seeing a proctologist is a good...

    It sounds like seeing a proctologist is a good idea; s/he should be able to figure out what the problem is. Nobody has said "cancer", so assume it's something else; perhaps your abscess returning as...
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    Lollie, if someone told you nothing crosses the...

    Lollie, if someone told you nothing crosses the blood brain barrier they were mistaken. The approved treatments used for brain cancer do cross the blood brain barrier. 99% of substances do not, but...
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    Dixie, you are allowed to post whatever links you...

    Dixie, you are allowed to post whatever links you deem relevant to the discussion. Have at it.

    The link ban is on new users (less than one month on the forum) posting to any site other than their...
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    By an odd coincidence, August 25 is also the date...

    By an odd coincidence, August 25 is also the date on which US Senator Ted Kennedy died of GBM.
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    I'm sorry to hear about your mother's GBM and...

    I'm sorry to hear about your mother's GBM and that she is not receiving the Stupp protocol. I have contacted a couple of our British moderators and asked them if they can offer any advice.

    A...
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