A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: Robinflamingo

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    I don't know if you've contacted ACS, or...

    I don't know if you've contacted ACS, or CancerCare, but there are lots of resources listed online. Here's one website to start with:...
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    But if it's war, then shouldn't survival be the...

    But if it's war, then shouldn't survival be the ultimate goal? Things have improved so rapidly in the last ten years in survivor rates. What if the next big improvement is right around the corner,...
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    I've been on chemo for very nearly three years...

    I've been on chemo for very nearly three years straight, and I work every day, go on vacations, go to church, cook, shop, and enjoy all my pets, students, husband and hobbies.

    They have SO many...
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    When one of my students passed away from cancer,...

    When one of my students passed away from cancer, this is the song that meant the most to us - all of us that knew and loved him.

    Now that I'm in the third year of my battle, it means even more.
    ...
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    For me, it's an "adjustment", or what I like to...

    For me, it's an "adjustment", or what I like to call "new normal" - no, I don't do all the things that I did before I was diagnosed (three years ago, three recurrences, still doing chemo) but I work...
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    More Ovarian Cancer Awareness News

    Renowned actress Kathy Bates apparently had ovarian cancer five years ago and didn't tell anyone at the time. Now she's coming out with a PSA and a five minute long interview to publicize the need...
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    Sorry I haven't replied sooner - for months on...

    Sorry I haven't replied sooner - for months on end I was the only regular, and I got out of the habit of checking this site.

    I am on Carbo and Taxol. It is only one of many combinations used for...
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    Re: ovarian cancer

    What chemo are you on? This sounds like it could be neuropathy. You should talk to your doc or your chemo nurses. They should be able to help you.

    The B vitamins are also helpful for...
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    With no fluid present, it sounds like it's NOT...

    With no fluid present, it sounds like it's NOT ovarian cancer, but I'd love to hear what happened at your appointment...
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    Well, they removed my ovaries after I was...

    Well, they removed my ovaries after I was diagnosed, and we still test monthly and CT scan quarterly for no recurrence. The bowel is a common place for ovarian cancer to recur. If you are bloating...
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    You have listed some of the symptom of ovarian...

    You have listed some of the symptom of ovarian cancer in your post. I am not sure what to tell you about the doctors. I'm blessed with an amazing oncologist, a great GYN surgeon and a pretty...
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    I lost 90 pounds from May to September. I was...

    I lost 90 pounds from May to September. I was diagnosed in July, when I had already dropped 45 pounds. But I had so much fluid on me that when they drained me, I dropped 25 pounds...that week.

    I...
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    Your GYN should do a CA125 test if there's...

    Your GYN should do a CA125 test if there's anything on the ultrasound, and also set up for a CT scan. Don't let them tell you that you've just gained weight or something. Insist on more tests until...
  14. If our spam filters are merciless, why are there...

    If our spam filters are merciless, why are there still spam messages about sexual acts in at least two forums, and my post about spam left unanswered?
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    I do think it's worth seeing the doctor again. ...

    I do think it's worth seeing the doctor again. Be sure to tell him/her everything you've told us.
  16. Thread: ERT

    by Robinflamingo
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    I think it's different with us because we are...

    I think it's different with us because we are used to losing hormone functionality thru menopause, so it's probably not as big a deal. I know I was already post menopausal when I had my ovaries...
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    God bless you and yours as you work to find your...

    God bless you and yours as you work to find your place in the world without your beloved wife. I'm sure she is watching over you, and will always be right beside you in your heart. How beloved she...
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    We need a way to flag spam...

    Some of the forums I'm on have a button you can use to alert the owner and moderators to spam. Can we have a way to help you get rid of the idiots?
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    What about Stepmom? I think it's excellent. ...

    What about Stepmom? I think it's excellent.

    By the way, there's an awesome online movie called "The Survivor Movie" which you should watch if you haven't seen it.
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    My question is why aren't they draining the fluid...

    My question is why aren't they draining the fluid off her abdomen? When I entered the hospital, they took 5 liters of fluid off my lungs and 11 off my abdomen. I IMMEDIATELY felt better. I mean...
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    Don't we all wish we knew the answers to those...

    Don't we all wish we knew the answers to those questions!! There are almost no consistent symptoms, which is why this is such a hard disease. If you read thru the rest of the posts in this section...
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    Your concerns certainly are legitimate and do not...

    Your concerns certainly are legitimate and do not cheapen any one else's problems...and what you are going through is not normal. While the CA125 by itself is not a good diagnostic tool, it can tell...
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    Bloating is one of the only symptoms of Ovarian...

    Bloating is one of the only symptoms of Ovarian Cancer. I would definitely pursue this. Don't let them tell you that what you are going through is normal. I had the thin watery discharge too. It...
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    My CA125 was over 500 when I was diagnosed, but I...

    My CA125 was over 500 when I was diagnosed, but I also had the bloated stomach, the fluid, and the general malaise. So the fluid collapsed my lung, which sent me to the hospital.

    After three...
  25. I had a complete hysterectomy, both ovaries, the...

    I had a complete hysterectomy, both ovaries, the omentum, and my incision goes from six inches above my naval to the pubic mound. I had 48 staples removed last Wednesday - he left them in for 18...
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