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Type: Posts; User: JohnnyG

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    Actually no not yet. Funny you asked that,...

    Actually no not yet. Funny you asked that, because that is on my top to do list here real soon. Because when I first left Missouri to come back to my home state for Cancer Treatment. I had one pair...
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    Thanks for that! Yeah so far it seems like the...

    Thanks for that! Yeah so far it seems like the predisone is working to clear it up, it doesn't seem to be getting any worse. I'm just hoping that my platelets start trending up again. Also one thing...
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    Can you move this to transplant forum, I've seen...

    Can you move this to transplant forum, I've seen you mention that before, Where is this forum at?
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    Well, not yet as it's all just brand new. It has...

    Well, not yet as it's all just brand new. It has just started here recently. I noticed I had got sick with upper respiratory, stuff not once but back to back. The first time that's when I slowly...
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    GVHD AML Post Transplant Low Platelets

    Hello everyone,

    It's been a while since I last posted the thread I made called AML Leukemia No More Chemo. After I was in remission, in I had a long long stay in the Hospital like 5 Months in the...
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    HaHa! Always proof read I say. Let's just say...

    HaHa! Always proof read I say. Let's just say this for all new comers. If ANY of your Blood Counts are Screwy, or even if they are not and your worried, then get another opinion see the Doctor again....
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    Update. Just wanted to give a quick update. I...

    Update. Just wanted to give a quick update. I went to City Of Hope as you all know who read this thread. After Radiation Strong Chemo and a Stem Cell Trans plant from my older brother 10 + 10 match....
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    My problem, I had Dry Mouth, No Taste from my...

    My problem, I had Dry Mouth, No Taste from my taste buds getting destroyed by radiation and chemo. I also had no appite and went weeks without eating in hospital, they put me on TPN then took me off...
  9. Thread: Stomach Pains

    by JohnnyG
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    Is he on pain meds? Pain meds can cause...

    Is he on pain meds? Pain meds can cause constipation which can cause stomach pains. You really need to get him to Dr. Cause Stomach pains can be anywhere from liver, kidneys, to you name it. GVH if...
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    Try City Of Hope Dr. SandHu, I had and I mean had...

    Try City Of Hope Dr. SandHu, I had and I mean had AML, so far im in remission. I've had so many Chemo's and Clinicals, from Missouri to LA. I was in UCLA and they said theres nothing left. Told me to...
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    Firstly Po18guy I must say I thought you were...

    Firstly Po18guy I must say I thought you were just a moderator here, until I read your signature. You have been through a lot my friend, hats off to your tremendous battle.

    I would like to...
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    Well ended up back in ucla, had low grade fevers...

    Well ended up back in ucla, had low grade fevers and some fluid in my lung, they thought was pneumonia turns out it wasn't, but I have a lot of blast in my blood and marrow. He's talking about...
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    DATE: 2/7/2018 WBC: 2.17 x10E3/uL MCH:...

    DATE: 2/7/2018



    WBC: 2.17 x10E3/uL MCH: 30.0 pg

    RBC: 2.57 x10E6/uL RDW-CV: 13.2 %

    HGB: 7.7 g/dL PLT: 3 x10E3/uL
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    Well been on the clinical drug, but it keeps...

    Well been on the clinical drug, but it keeps killing off my hemoglobin so much they stopped it for now until they talk to team. I'm not sure about my mutations. I don't know where to go from here. My...
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    You know I still not sure what mutation I am, how...

    You know I still not sure what mutation I am, how do I find that out? I was treated at UCLA Ronald Reagan. They say they have only one clinical trial, phase 1, oral pill, that to me is a broad range...
  16. I'm in same boat. I need some advice, I'm 36...

    I'm in same boat. I need some advice, I'm 36 years old have AML M4 I think. I've done 7+3 induction didn't work, then High dose Cytarabine didn't work. Then even 2nd line MEC still didn't work, my...
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    Aml Refractory No More Chemo

    I've went through all chemo even 2nd line MEC, couldn't get into remission to do transplant. Any ideals what I should try now anyone?
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