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    Busby, sorry to have been absent. I did attend a...

    Busby, sorry to have been absent. I did attend a very informative all day session in Virginia Beach on Prostate Cancer. My doctor was one of the presenters, but there were about 150 of us (nobody...
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    Still a Member of Zero Prostate Club

    I've been absent from here for awhile. I try to at least stay read in on how everyone is doing, even if I don't post stuff.

    First the good news! I had my "every 90 day" PSA yesterday and it...
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    ADT is a slog. No doubt about it. I finished...

    ADT is a slog. No doubt about it. I finished the two years last Spring. The frequency of testing obviously varies from case to case. I've been doing a CBC and a Metabolic Panel every 90 days...
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    I've been absent from posting for awhile....and...

    I've been absent from posting for awhile....and just read all 7 pages of posts. Sorry to see another comrade joining the PCa journey, but reading the progression of posts once again confirms the...
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    If it's any comfort to you -- virtually everyone...

    If it's any comfort to you -- virtually everyone who posts and reads this forum either has PCa or is concerned about someone who has been diagnosed. Each of us have some similarities, but we're all...
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    When I entered the clinical trial back in Spring...

    When I entered the clinical trial back in Spring 2017, my doctor at JH had me complete “Color” along with a number of other genetic tests. His reasoning was on the order of “what kind of genetic...
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    Good luck with this, Mike. I find the...

    Good luck with this, Mike.

    I find the continence issue to be -- confounding. In trying to differentiate between "stress" and "urgency" (for whatever classification is worth), I find that serious...
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    Congrats, Trex! I did 69 Gy, and it was a slog...

    Congrats, Trex! I did 69 Gy, and it was a slog going through this. I completed my sessions limn Nov 17, and while we're all different, I haven't had any significant changes in ANYTHING since...
  9. Really heartening to see someone who followed a...

    Really heartening to see someone who followed a very rational and (I believe) intelligent process to arrive at a decision that has the highest potential for zero future issues with P'Ca. I also...
  10. As part of the clinical trial, I have completed a...

    As part of the clinical trial, I have completed a survey about every 3 months for the last 30 months that clearly aims at my head space. The treatment team (doctor and two nurses) are specifically ...
  11. Thread: Four years post RP

    by BAB
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    Congratulations, and many more undetectable PSA...

    Congratulations, and many more undetectable PSA years to come.
  12. One of my friends had the Urolift. Not good. He...

    One of my friends had the Urolift. Not good. He ended up with significant bleeding, bladder spasms, several trips to the ER. Also, had to be catheterized due to bleeding.

    The urologist said...
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    I found this site really answered a lot of...

    I found this site really answered a lot of questions as I was going through the diagnosis, RALP and all the follow up treatment. Prostate cancer, different from many other varieties, gives you some...
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    The Gy prescriptions you guys are receiving sound...

    The Gy prescriptions you guys are receiving sound REMARKABLY familiar. I had a total of 69 Gy. 46 to the pelvic area, 23 to the fossa. Incidentally, they had a nice celebration for me after my...
  15. Thread: My RALP Journey

    by BAB
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    As I recall, I was told the longer incision was...

    As I recall, I was told the longer incision was the one used to remove the "bagged up" prostate. Two years later, that incision is the only visible sign that I had a RALP. The more visible...
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    Djin, you put so much light into this dark...

    Djin, you put so much light into this dark disease. The research you do and the explanations you provide are a great bridge that allow me to be smarter on managing my role as "patient" and asking...
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    I never, ever, watched the injection. I don't...

    I never, ever, watched the injection. I don't think I've looked since I was 5 years old.
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    He’s really fortunate to have you as a friend. A...

    He’s really fortunate to have you as a friend. A lot of his attitude toward dealing this is going to be tempered by how you’ve handled it.

    None of us need to do this alone. If he wants...
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    Since I live in NC and was being treated at...

    Since I live in NC and was being treated at Hopkins (Baltimore), we had a lengthy discussion about the RT part of my treatment. Since I had a multi-disciplinary care team in NC and had met the RO...
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    Djin, your doctor sounds really collaborative,...

    Djin, your doctor sounds really collaborative, which I think says a lot about his professionalism. It is a step to go from quarterly PSA’s to 6 months, and I would have done exactly what you did.
    ...
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    I finished up the two years of ADT a few months...

    I finished up the two years of ADT a few months ago. Most of my injections were about two inches above and 4 inches to the left of my navel. At this injection site, you can feel the lump (or...
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    I really understand where you are. I finished...

    I really understand where you are. I finished two years on ADT 6 weeks ago, and there's no doubt of the side effects. The plus has been having an undetectable PSA for the duration of the ADT, but I...
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    First, it's wonderful that you're at your Dad's...

    First, it's wonderful that you're at your Dad's side as your family takes on this challenge. I speak from personal experience as my son has been at my side since day one of this journey.

    There...
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    Mr. B. A lot of great advice. Trust me. ...

    Mr. B.

    A lot of great advice. Trust me. When you're 74, you're going to want to look back to 54 and remember that you took the time and energy to get a second opinion. If you can swing it, go...
  25. Thread: What do I do now?

    by BAB
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    I get it with the ADT stuff. I just finished two...

    I get it with the ADT stuff. I just finished two years on Trelstar/Lupron/whatever. I knew upfront that this was going to be a slog, but I psyched myself up by believing that it’d be different for...
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