A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Thread: Pnet sarcoma

    by po18guy
    Replies
    2
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    3,570

    Sorry to hear of this. The link was removed as it...

    Sorry to hear of this. The link was removed as it involves an unheard of device with no proven ability to do anything to cancer. Frankly, it sounds like a scam. Since this thread is 1 1/2 years old,...
  2. 2019 Seattle T-Cell Lymphoma/Leukemia patient seminar

    It's that time of year (once) again. Dr. Andrei Shustov, founder of the T Cell Leukemia Lymphoma Foundation, internationally known T-Cell Leukemia and Lymphoma researcher and clinical specialist,...
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    Sorry to hear of this. It could be anything. More...

    Sorry to hear of this. It could be anything. More tests are in order, as well as imaging.
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    91

    Do you have a cancer history? Or just a swollen...

    Do you have a cancer history? Or just a swollen node? A CT certainly is not the insurance company playing around - they cost thousands and insurance companies do not enjoy paying for them. Doctor...
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    Sorry to hear this. First, do you have control of...

    Sorry to hear this. First, do you have control of your anxiety? That cannot help you, either ill or well. And no doctor can tell cancer from an MRI, an ultrasound, even a CT or PET scan. I'm sorry,...
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    92

    Forgot to mention that lung nodules are very...

    Forgot to mention that lung nodules are very common. Probably every human that ever lived has had them. I have had several and all resolved on their own. They are associated with colds/viruses, flu,...
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    Welcome, but sorry to hear this. Actually, it is...

    Welcome, but sorry to hear this. Actually, it is way too early to tell. The biopsy results will determine the immediate future. The second mass may also have to be biopsied. Three potential...
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    Welcome! Some heartfelt advice: 1. Worry,...

    Welcome! Some heartfelt advice:

    1. Worry, anxiety and panic cannot help you, either sick or well.
    2. Please avoid diagnosing yourself!
    3. The wait is unavoidable. Keep as busy with life as you...
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    Sorry to hear this. If he is in the US, and not...

    Sorry to hear this. If he is in the US, and not at an NCI designated comprehensive cancer center, I would strongly urge him to at least consult at such a facility. They are cutting edge, employ the...
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    Very sorry to hear of this. The medical...

    Very sorry to hear of this. The medical profession can be downright inhuman in how they treat patients. First of all, we have a slogan here:

    That is the long and the short of it. Only a biopsy...
  11. Thread: New in TN

    by po18guy
    Replies
    733
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    295,114

    Always great to hear from you, and I echo your...

    Always great to hear from you, and I echo your comments. But forget cancer - at our age, the heart is by far the biggest threat. Kinda like the grim reaper's shell game to get us to focus on the "C"...
  12. Yes. Steroids think the skin, among deleterious...

    Yes. Steroids think the skin, among deleterious actions, thus making it all the more susceptible to solar-based cancers. I have pre-cancerous lesions frozen on my scalp regularly.
  13. Lymphoma is not normally detected by blood work....

    Lymphoma is not normally detected by blood work. It is detected by conducting a biopsy of excised tissue such as a lymph node or tumor mass. From the web:

    Sounds like you may simply need a...
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    149

    I would expect that they are cutting edge (so to...

    I would expect that they are cutting edge (so to speak), perhaps investigating clinical trials that might be of help. I'll admit that your diagnosis is a challenge. Yet, if you see my condensed...
  15. Thread: Thoughts

    by po18guy
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    2
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    145

    Very sorry to hear of this. First, cancer is not...

    Very sorry to hear of this. First, cancer is not invisible. Something producing that much pain, that many symptoms for that amount of time would stand out like a sore thumb. The problem with symptoms...
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    194

    I had muscular neuralgia years after completing...

    I had muscular neuralgia years after completing CHOEP-14. I was receiving a biological drug in clinical trial and it may have been an emerging side effect. You are young, which means resilient. Give...
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    Someday, Deb, I'll tell you why I developed...

    Someday, Deb, I'll tell you why I developed lymphoma in the first place. You'll understand.
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    Sorry to hear this. Are you consulting at a major...

    Sorry to hear this. Are you consulting at a major cancer institute?
  19. I saw human pancreatic cell lines mentioned, but...

    I saw human pancreatic cell lines mentioned, but the study went a little blurry after that. Lots of facts were tossed about, but the methodology was not clear or specific as I read it. To me the...
  20. If you have no cancer history, no treatment...

    If you have no cancer history, no treatment history, no pancytopenia history, and depending on your age, I would take a much more aggressive posture toward finding the ultimate diagnosis. If...
  21. Thank you for getting back! I would ask if a...

    Thank you for getting back! I would ask if a further workup could be done, as MDS ranges from very low to high risk for transformation to one of the myeloid leukemias. I had a touch of 20q deletion...
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    NOT at all what we were waiting to hear. Yet, as...

    NOT at all what we were waiting to hear. Yet, as it has been, time remains on your side as experience is gained and treatment combos and strategies develop and appear.
  23. Thread: Worried

    by po18guy
    Replies
    1
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    132

    1. Tell parents. 2. Tell doctor. 3. Do not...

    1. Tell parents.
    2. Tell doctor.
    3. Do not jump to cancer - even though there are far worse diseases.

    We could guess, but we'd be wrong.
  24. Thread: Car t

    by po18guy
    Replies
    114
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    13,332

    Currently no clue as to the meaning of the...

    Currently no clue as to the meaning of the immature granulocytes, or their percentage. However, it is almost certainly a part of the roller-coaster that virtually all treatment is. 4 1/2 years out,...
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    Very true! The fear of cancer is much more...

    Very true! The fear of cancer is much more terrifying; much more paralyzing, than the actual fight against cancer. Fear of the known is almost always more easily dealt with than fear of the unknown....
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