A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: jamiepat

Page 1 of 7 1 2 3 4

Search: Search took 0.00 seconds.

  1. Thread: The tumor

    by jamiepat
    Replies
    2
    Views
    163

    I believe they are using it for prostate. More...

    I believe they are using it for prostate. More widespread in europe.
  2. Thread: The tumor

    by jamiepat
    Replies
    2
    Views
    163

    The tumor

    Have you all read the Tumor by John Grisham? He says it's the most important book he has written and it is free (e book) from Amazon. It deals with HIFU, I think - something that really interests...
  3. Replies
    3
    Views
    306

    For a list of possible options check out...

    For a list of possible options check out pancreatic.altervista.org and contact pancan for clinical trials in your area. Best wishes!
  4. Replies
    5
    Views
    448

    Your dad's situation sounds really promising. ...

    Your dad's situation sounds really promising. Unless he has a super aggressive disease it will most likely look much the same by Dec (this is my unprofessional, learned by anecdotes, opinion). I...
  5. Thread: My new plan

    by jamiepat
    Replies
    8
    Views
    481

    If the FFx doesn't work, you mentioned parp...

    If the FFx doesn't work, you mentioned parp inhibitors. Are they still thinking about it? My oncologist also has suggested these. Might be a good try. Maybe we'll be on the same treatment......! ...
  6. Replies
    15
    Views
    1,815

    I'm so sorry events took that turn. It was hard...

    I'm so sorry events took that turn. It was hard to believe since things started out positively and you worked so hard with the chemo and whipple and after effects. It's not fair, and I 'll just say...
  7. Thread: My new plan

    by jamiepat
    Replies
    8
    Views
    481

    Interesting link - thank you. Actually, very few...

    Interesting link - thank you. Actually, very few surgeons perform this for stage 4 patients. It is probably best used for stage 3 to reduce the tumor away from blood vessels in hopes of following...
  8. Replies
    2
    Views
    283

    I can't remember from your previous posts, but...

    I can't remember from your previous posts, but has she used gem/abraxane? What I've found with my own treatment was that the platinum chemos (oxalaplatin, cisplatin) were the harshest with...
  9. Thread: My new plan

    by jamiepat
    Replies
    8
    Views
    481

    Thanks for the luck Ramblinwreck. And thanks...

    Thanks for the luck Ramblinwreck. And thanks Daviddessert for posting the question about pet scans on nanoknife warriors. It was interesting to read what Dr Donoway (he's my surgeon by the way)...
  10. Thread: My new plan

    by jamiepat
    Replies
    8
    Views
    481

    My new plan

    I'm a year and a half out since diagnosis with stage 4 - mets to the liver - a couple of lung modules and a partial thrombosis in the portal vein. Gem/abraxane/cisplatin worked well for the first...
  11. Replies
    3
    Views
    432

    I'm sorry that had to happen right when he's...

    I'm sorry that had to happen right when he's getting started - bummer. The first time I missed a treatment because of inadequate platelet count I was very depressed and worried that I was slipping...
  12. Replies
    15
    Views
    1,815

    Hi johndoe60, platelets and neutrophils go low...

    Hi johndoe60,
    platelets and neutrophils go low after treatment. Bone marrow stimulants help with the white cells but I need to miss a treatment if platelets drop below 60. Average is maybe 60 to...
  13. Replies
    15
    Views
    1,815

    Hi Susan, I'm scared too! (Check out new...

    Hi Susan,

    I'm scared too! (Check out new signature). I was glad to hear about your tumor killing success and sorry for the new developments. I thought for sure you would have graduated the...
  14. Replies
    15
    Views
    1,815

    Hang in there. The parp inhibitor sounds...

    Hang in there. The parp inhibitor sounds promising. I'm looking at that as well. (something to look forward to after folfirinox!)
  15. Replies
    11
    Views
    5,166

    I'm also hopefull about this treatment. ...

    I'm also hopefull about this treatment. Something that gives me pause though, is the combination with folfirinox. This chemo itself is usually not effective over years and years (let alone being ...
  16. Thread: Ca 19-9

    by jamiepat
    Replies
    19
    Views
    2,968

    Congrats Jackie! Glad that you are continuing to...

    Congrats Jackie! Glad that you are continuing to hold it in check. Are you following up with chemo?

    Legodude - yes, the ca19 is most useful to look at trends. Do watch David's videos -very...
  17. Replies
    8
    Views
    1,433

    Beginning abraxane/gemcitabine/cisplatin my hair...

    Beginning abraxane/gemcitabine/cisplatin my hair fell out. When it became less effective, my hair was growing back in. Seems like the whole body responds, not just tumor.
  18. Thread: ascites

    by jamiepat
    Replies
    16
    Views
    3,697

    Yaaaaay! Good to know.

    Yaaaaay! Good to know.
  19. Thread: ascites

    by jamiepat
    Replies
    16
    Views
    3,697

    I thought at the beginning of my treatment that l...

    I thought at the beginning of my treatment that l was experiencing ascites, but it turned out to be side effects of the chemo causing bloated stomach. Don't panic. Also wasn't there a post not too...
  20. Replies
    8
    Views
    1,756

    Steroids: I was awake with no sleep for 2 days...

    Steroids: I was awake with no sleep for 2 days following chemo and asked the Dr to cut them back. He gave me half the usual dose which let me get the sleep i needed - you might ask re a smaller...
  21. It this helps - 3 Drs i have asked about sbrt vs...

    It this helps - 3 Drs i have asked about sbrt vs the longer course of treatment - all opted for sbrt. Best wishes!
  22. Replies
    3
    Views
    1,466

    This is a great chunk of advice for finding...

    This is a great chunk of advice for finding relevant trials. Let me add - don't be shy about calling the contact person listed at the bottom. They usually have more information about the trial you...
  23. Replies
    6
    Views
    2,242

    So sorry to hear your news. About the start date...

    So sorry to hear your news. About the start date for the trial - you might be waiting forever. I would try to get a definitive answer or move on. I take it that this trial was local? If you...
  24. I'm struggling with a low fat diet as well, due...

    I'm struggling with a low fat diet as well, due to gall bladder issues. Try experimenting with how much she can eat without problems. No pizza, heavy cheese, potatoes chips, etc unless in very small...
  25. Replies
    6
    Views
    2,599

    brigette, did you mean the two therapies: ...

    brigette, did you mean the two therapies: Folfirinox and gemcitabine/abraxane or gemcitabine/gemzar? I'm curious because I'm now resistant to gemcitabine/abraxane and would like to know of other...
Results 1 to 25 of 151
Page 1 of 7 1 2 3 4