A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    6 days is a pretty long delay onset for the hives...

    6 days is a pretty long delay onset for the hives to be due to one of the chemo drugs. Although it might be that many days before your WBC rebounds enough to even cause that type of reaction. Look at...
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    Your MD Anderson oncologist has probably already...

    Your MD Anderson oncologist has probably already reviewed this, but here is one of the places to look for treatments based on mutations.
    ...
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    That dropping CA19-9 is a good sign, but the CT...

    That dropping CA19-9 is a good sign, but the CT scan will be the real confirmation. Totally understand the lack of energy or desire for anything after chemo. The first round is often the worst as you...
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    If you ask cancer patients if they’ve had some...

    If you ask cancer patients if they’ve had some symptom or other, you will always get a “yes” answer. It does not matter what symptom or what cancer. Cancer patients have had every symptom imaginable,...
  5. That’s good that you were able to handle it well....

    That’s good that you were able to handle it well. I think they quote the maximum time so you’re never complaining about that. Mine have always been about 2/3 of the quoted time or less.

    I’m not...
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    Like your doctor said, it is not time to worry...

    Like your doctor said, it is not time to worry yet. Those are common symptoms and there are many causes that are at least 1000X more likely than pancreatic cancer.
  7. That’s just one of the types of SBRT which uses...

    That’s just one of the types of SBRT which uses high doses of radiation over fewer days. Some of the others use implanted gold beads, breathing monitors or other methods to track out the movement...
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    Well, I’m pretty sure that acinar and pNET cancer...

    Well, I’m pretty sure that acinar and pNET cancer tumors don’t generate CA19-9, just adenocarcinoma so that measure is fairly useless for you. An alternative is to try CA-125 which is often a backup...
  9. Thread: 1 Year Later

    by ddessert
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    Thanks for the update and glad to hear that dad...

    Thanks for the update and glad to hear that dad is at least hanging in there.
    I'm going through my dad's stuff right now after his death and realized right away that there will never be another...
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    Finding Clinical Trials

    We all stress out that there are not enough treatment options, but only 4.8% of pancreatic cancer patients do clinical trials. How can we possibly know what is a good clinical trial?

    First,...
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    I joined this trial and had the physical exam and...

    I joined this trial and had the physical exam and MRI yesterday. The trial nurse informed me that 5 of the first 9 screened had PIRADS scores of 3 or higher, indicating the need for a biopsy, which...
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    Because olaparib matches your mutation, do the...

    Because olaparib matches your mutation, do the platinum treatments also match?

    You had FOLFIRINOX, did your CA19-9 drop while taking it? If it was working well, it could also be an option. If both...
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    Annual Pancreas-specific MRI and endoscopic...

    Annual Pancreas-specific MRI and endoscopic ultrasound on alternating years.
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    Iím here right now and the NCI+PanCan are doing...

    Iím here right now and the NCI+PanCan are doing an early detection initiative to follow people >50 years old who have new onset diabetes. These later aged new diabetes cases have shown to have higher...
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    PanCan Advocacy Day

    Brigitte and I are both traveling to Washington DC again this year to advocate with our Representatives and Senators for more cancer research funding. There should also be an opportunity for a few...
  16. Wow! Having a lot of experience with pancreatic...

    Wow! Having a lot of experience with pancreatic cancer, I read though your entire OP and had no inkling that you were heading towards pancreatic cancer until you mentioned it in your last sentence.
    ...
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    Thanks for checking in Ahmad. Your dad has taken...

    Thanks for checking in Ahmad. Your dad has taken some of the hardest treatments there are. The fact that it is working for him probably helps make it easier (symptom relief and psychologically...
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    Your age and sudden progression of symptoms do...

    Your age and sudden progression of symptoms do not point to pancreatic cancer, but perhaps something more suddenly onset.

    Let your doctor know if your pain levels track with eating. This could be...
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    FOLFIRINOX is a great first choice while you wait...

    FOLFIRINOX is a great first choice while you wait for the genetic test results. That may give you the best information on the right treatment for you.

    The lesions on your liver are probably your...
  20. Thread: Mom diagnosed

    by ddessert
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    Paul, sorry that your mom and family have to go...

    Paul, sorry that your mom and family have to go through this.

    It is hard to know whether that rise in CA19-9 is a good or bad thing. That’s just something we have to learn over time. You might...
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    No one can say for sure, but after 5 years or so,...

    No one can say for sure, but after 5 years or so, your chance of a recurrence is around the same as for a normal person. For a BRCA2 person, that is still 7X the average risk.
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    Alyssa, just based on your reported family...

    Alyssa, just based on your reported family history of cancer, perhaps you can also consult with a genetic counselor who can review that history and possibly give you some other feedback? If you are...
  23. I was going to say that some major centers have a...

    I was going to say that some major centers have a ďsenior adultĒ oncology group that might be useful.
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    But this is not why we are here.

    But this is not why we are here.
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    This sounds like a person that will not see a...

    This sounds like a person that will not see a doctor unless they are going to diagnose them with pancreatic cancer.

    A referral for a gallstone will go over much better with a doctor than a 35-year...
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