A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    Best wishes, Melisande. You're in a new phase of...

    Best wishes, Melisande. You're in a new phase of your journey.
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    You're right...most people that come here and...

    You're right...most people that come here and report that they feel almost certain that they have cancer--that "it can't possibly be anything else!" Most of them finally see a doctor, discover their...
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    Melisande--you're asking questions that all...

    Melisande--you're asking questions that all cancer patients ask at some point, but ultimately, you may have to make a decision about trade-offs. Do you want to treat the cancer, or avoid treatment...
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    Cisplatin and Taxotere have both been used with...

    Cisplatin and Taxotere have both been used with H&N cancer treatment; carboplatin may have been used at one time or another. The protocols evolve over time, and with the way immunology drugs have...
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    If I understand your question correctly, a...

    If I understand your question correctly, a simulation for radiation treatment is where they physically prepare you for the administration of radiation therapy. This milestone will mark the beginning...
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    Melisande- I'm sure it seems like a long...

    Melisande-

    I'm sure it seems like a long journey already, but it looks like you're making some breakthroughs. You now have a diagnosis, and you can consider treatment options. Things will start to...
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    Those are beautiful pictures...great scenery! ...

    Those are beautiful pictures...great scenery!

    My wife and I are going up to the Seattle area in a couple weeks. I am looking to see some of the geographical formations in that area. I'm sure you...
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    I understand your dilemma, Melisande. It DOES...

    I understand your dilemma, Melisande. It DOES sound like your local hospital is at least attempting to make some sense of things. Any thoughts on where you might go from here? I think in the end, you...
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    I certainly hope this is a case of a false...

    I certainly hope this is a case of a false positive on the PET scan. I agree that I don't think renal cancer is an SCC, and it seems odd that you would experience metastases from your kidney to your...
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    I'm sorry to hear that you aren't feeling upbeat...

    I'm sorry to hear that you aren't feeling upbeat about your procedure, Melisande. Can you remind me again, what were they probing with the FNA--the tumors in your thorax region, or something else? I...
  11. "Convenience" for you equals "compliance" to a...

    "Convenience" for you equals "compliance" to a treatment regimen, and your doctor should be fully supportive of that, unless they have some reason to believe that the infusion facility doesn't have...
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    I did a search on clinicaltrials.gov, using...

    I did a search on clinicaltrials.gov, using "SCCHN" and "Completed" as my criteria, just to find locations that have conducted H&N studies. Working in the pharmaceutical industry, I can tell you that...
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    That's an interesting take on things...like, "who...

    That's an interesting take on things...like, "who can I see about getting this diagnosis changed--where's the manager??"

    I will say that I've heard that benign lung nodules are quite common,...
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    Yes, exactly. I think if you have a "common"...

    Yes, exactly. I think if you have a "common" cancer, and you're dealing with a reputable oncologist/cancer center, I think second opinions are more confusing and can be information overload to an...
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    Melisande- Yours is a most puzzling case. Did...

    Melisande-

    Yours is a most puzzling case. Did the tumor board at Moffitt meet yesterday, and if so, did they have any recommendations? I am still hanging on the fact that the lung nodules (which I...
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    Just did some casual searching, but PET scans...

    Just did some casual searching, but PET scans seem to be fairly reliable for pulmonary lesions >= 1 cm. Smaller sized ones are more challenging, but I asked this question earlier in this thread. If I...
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    Hello. I'm sorry that you're having to face some...

    Hello. I'm sorry that you're having to face some medical challenges. You should certainly be referred to a specialist, but you should know that they'll have to do the biopsy and possibly some other...
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    This seems like a very puzzling case, indeed, and...

    This seems like a very puzzling case, indeed, and it seems that they're not quite ready to put a label or a stage on this cancer. I suppose there's no harm in having the endoscopy in #2, above, but...
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    Melisande- I'm sorry to hear of your latest...

    Melisande-

    I'm sorry to hear of your latest news--you previously had a PET scan--did that show any activity in the lungs? From the procedures you've described, it seems like your medical team is...
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    I think you're getting a little bit ahead of...

    I think you're getting a little bit ahead of yourself, but you can always try to negotiate with your medical provider; you may or may not be able to afford an out-of-pocket cost. If the cost of...
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    I can't say that I recall anyone describing a...

    I can't say that I recall anyone describing a lump in the same location as you. Quite frankly, "lumps" associated with cancer are typically much larger, and there is no pain associated with them.
    ...
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    I have no plans to move you, Melisande. You're...

    I have no plans to move you, Melisande. You're welcome to hang out in H&N as long as you like!
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    As a moderator in this forum, I sometimes don't...

    As a moderator in this forum, I sometimes don't say things as directly as I should...many nurses don't have that problem! :smile:

    I'm sorry to hear of your latest health episode--as if you don't...
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    I believe there very well IS a medical consensus...

    I believe there very well IS a medical consensus on how to treat CUP for HNSCC. There are established protocols, and it will be up to your primary oncologist to share their approach.

    In my case,...
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    Melisande- As you go through your final...

    Melisande-

    As you go through your final treatment plan with your oncologist, I would ask them about nutrition throughout your treatment. With the majority of your tumors lower in the thorax, it's...
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