A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: Melisande

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    Interesting about the false positives on the PET...

    Interesting about the false positives on the PET scan.

    I have no reason at all to believe that they will have any problem accessing at least one of the suspect lymph nodes. Itís right above my...
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    Update: I received the written report from...

    Update:

    I received the written report from the radiologist today. Apparently, the nurse soft-pedaled the report on the phone. There was an additional ďlesionĒ that the nurse failed to mention,...
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    @po18guy — Thanks for your words of wisdom. I...

    @po18guy — Thanks for your words of wisdom. I appreciate hearing from one who has been in the trenches, so to speak.

    @ghi5000 — I have no idea what to recommend, but maybe someone else here will....
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    So, yesterday I spoke with a friend who is a...

    So, yesterday I spoke with a friend who is a public health expert. She told me I should continuing working with the local oncologist, at least through the biopsy. Then, once I have the slides, I...
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    Actually, Moffitt just said that every first...

    Actually, Moffitt just said that every first visit is billed as a second opinion, no matter what. I asked how much that would cost out of pocket and they said —$500 to $1,500.

    Wow, dealing with...
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    Thanks. Frankly, I was still hesitating even...

    Thanks. Frankly, I was still hesitating even after his last post, because it will be very inconvenient to do that. However, I just learned that my insurance — Aetna — does not cover second opinions...
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    Wow, I am sorry to hear that. That must have been...

    Wow, I am sorry to hear that. That must have been infuriatingó particularly the misdiagnosis.

    So, I am taking that as an endorsement for the nuclear option (aka just go to well-known cancer...
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    Things are unfortunately moving very slowly here....

    Things are unfortunately moving very slowly here. I finally got a CT-scan of my neck yesterday (donít have the results yet of course), but am no closer to having a biopsy done. I donít even have a...
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    @po18guy ó Itís not that I am in a rush. Itís...

    @po18guy ó Itís not that I am in a rush. Itís that I really prefer not to take antibiotics unless there is a very good reason. Certainly not merely to follow some protocol if the therapeutic yield in...
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    Seriously?!? Would they really waste time...

    Seriously?!? Would they really waste time prescribing one or even two (?) courses of antibiotics to someone who had a large, hard, painless node for > 8 months? I have a hard time taking antibiotics...
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    I am glad you are not worried 👍. Actually, I...

    I am glad you are not worried 👍.

    Actually, I am feeling fine too ... even though I just got back from the hematologist. He examined me and talked to me for a while and told me he was really pretty...
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    Well, of course it’s possible that it’s not...

    Well, of course it’s possible that it’s not cancer. I do have a hunch though that whatever it is is something serious that will greatly impact my life .... just like the last two times I had a cancer...
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    Thanks again for your words of wisdom. All the...

    Thanks again for your words of wisdom.

    All the more useful because I am now sick (again!) with my 3rd head/chest cold so far this calendar year. I usually don’t get worked up about a stupid head...
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    I just got off the phone with my Mom and she...

    I just got off the phone with my Mom and she suggested that if I am going to have surgery to have the lymph node removed (to be biopsied), I should start thinking now about finding a really good...
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    @PLB — I too was thinking that — at least there...

    @PLB — I too was thinking that — at least there is no way this is an aggressive malignancy. That in and of itself is staving off any potential panic.

    @po18guy. Yup, that is I have read....
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    Lymphoma? (I read the sticky)

    I am a 55 y.o. woman and I have read the sticky about lymph nodes and lymphoma. That said ...

    This weekend I felt a large (about 3cm), hard, painless lump above my right collar bone, close to my...
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    Thanks so much. I found it! In the meantime,...

    Thanks so much. I found it!

    In the meantime, it seems like my local GI has been effectively spurred into action. I got a call from the nurse saying that he is ordering a bunch more lab work for...
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    Yeah, Iím sure heís operating under constraints...

    Yeah, Iím sure heís operating under constraints Iím unaware of.



    That would be amazing. Iíll try not to get my hopes up too much, but yeah ...
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    Thanks again ddessert. Well, your arguments...

    Thanks again ddessert.

    Well, your arguments make a lot of sense. Unfortunately, it doesnít seem like common sense goes very far in the medical world sometimes. Itís just so crazy-making and...
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    Yes, I did a little research after I posted...

    Yes, I did a little research after I posted (sorry)and see that the EGD w/ biopsy is just standard procedure. I really want an EUS though. I’ll definitely get in touch with the PanCan people today,...
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    Also, ddessert, can you give me some links to...

    Also, ddessert, can you give me some links to sources that confirm what you are saying, that I should have any biopsy done in a major cancer center? I am seriously thinking of cancelling and...
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    Thanks ddessert for that informative answer. I...

    Thanks ddessert for that informative answer. I took a look at the consent form I signed and it says “EGD with biopsy.” I’m actually feeling kind of upset by this because I was under the impression...
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    Also, when they say I’m going to have an...

    Also, when they say I’m going to have an endoscopy, this is just shorthand for endoscopic ultrasound? I mean it’s not like they do an endoscopy without the ultrasound part, right? My GI mentioned...
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    Iím wondering about this. I already have the...

    Iím wondering about this. I already have the colonoscopy/endoscopy scheduled for this coming Thursday at our local place here in Orlando and I was planning on getting the MRI w/ contrast set up on...
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    I saw my GI today and now he is suspecting...

    I saw my GI today and now he is suspecting cancer. I got the “I don’t want to alarm you, but ...” speech. I have been have worsening symptoms for over a month now (nausea, loose stools, abdominal...
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