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Type: Posts; User: IndyLou

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  1. That's an interesting take on things...like, "who...

    That's an interesting take on things...like, "who can I see about getting this diagnosis changed--where's the manager??"

    I will say that I've heard that benign lung nodules are quite common,...
  2. Yes, exactly. I think if you have a "common"...

    Yes, exactly. I think if you have a "common" cancer, and you're dealing with a reputable oncologist/cancer center, I think second opinions are more confusing and can be information overload to an...
  3. Melisande- Yours is a most puzzling case. Did...

    Melisande-

    Yours is a most puzzling case. Did the tumor board at Moffitt meet yesterday, and if so, did they have any recommendations? I am still hanging on the fact that the lung nodules (which I...
  4. Just did some casual searching, but PET scans...

    Just did some casual searching, but PET scans seem to be fairly reliable for pulmonary lesions >= 1 cm. Smaller sized ones are more challenging, but I asked this question earlier in this thread. If I...
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    Hello. I'm sorry that you're having to face some...

    Hello. I'm sorry that you're having to face some medical challenges. You should certainly be referred to a specialist, but you should know that they'll have to do the biopsy and possibly some other...
  6. This seems like a very puzzling case, indeed, and...

    This seems like a very puzzling case, indeed, and it seems that they're not quite ready to put a label or a stage on this cancer. I suppose there's no harm in having the endoscopy in #2, above, but...
  7. Melisande- I'm sorry to hear of your latest...

    Melisande-

    I'm sorry to hear of your latest news--you previously had a PET scan--did that show any activity in the lungs? From the procedures you've described, it seems like your medical team is...
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    I think you're getting a little bit ahead of...

    I think you're getting a little bit ahead of yourself, but you can always try to negotiate with your medical provider; you may or may not be able to afford an out-of-pocket cost. If the cost of...
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    I can't say that I recall anyone describing a...

    I can't say that I recall anyone describing a lump in the same location as you. Quite frankly, "lumps" associated with cancer are typically much larger, and there is no pain associated with them.
    ...
  10. I have no plans to move you, Melisande. You're...

    I have no plans to move you, Melisande. You're welcome to hang out in H&N as long as you like!
  11. As a moderator in this forum, I sometimes don't...

    As a moderator in this forum, I sometimes don't say things as directly as I should...many nurses don't have that problem! :smile:

    I'm sorry to hear of your latest health episode--as if you don't...
  12. I believe there very well IS a medical consensus...

    I believe there very well IS a medical consensus on how to treat CUP for HNSCC. There are established protocols, and it will be up to your primary oncologist to share their approach.

    In my case,...
  13. Melisande- As you go through your final...

    Melisande-

    As you go through your final treatment plan with your oncologist, I would ask them about nutrition throughout your treatment. With the majority of your tumors lower in the thorax, it's...
  14. Melisande- It sounds like you've been...

    Melisande-

    It sounds like you've been processing quite a bit with this latest information. Once you have a diagnosis and start to do work-up activities, the time goes by quickly.

    First and...
  15. Hello, Melissa- I have been following your...

    Hello, Melissa-

    I have been following your Worried/Lymphoma thread for a while now, but now that we're talking about SCCHN and CUP, I feel I can offer some opinions, as I went through the same...
  16. I'm sorry to hear of your wife's diagnosis, but I...

    I'm sorry to hear of your wife's diagnosis, but I concur with what your doctor said about it being very treatable. I know of several people who had symptoms just as you described, were also diagnosed...
  17. Thanks for the update. I do want to prepare you...

    Thanks for the update. I do want to prepare you for a possibility with the CT scan. In many cases, a CT scan alone cannot tell if a "mass" is cancerous. Only a biopsy of the mass can do that. It's...
  18. Hello- Based on my experience, I was probably...

    Hello-

    Based on my experience, I was probably fully dosed within a month. You can read my signature for the details.

    Generally speaking, your PCP (or whomever you initially present your...
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    Hello- It sounds like you've been through a...

    Hello-

    It sounds like you've been through a lot, and the lack of specific answers along the way has not made your suffering any easier. We are not doctors on this forum, and I cannot possibly...
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    Hello- Blinatumomab is the molecule name for...

    Hello-

    Blinatumomab is the molecule name for Blincyto, the branded name for an immunotherapy treatment. It's primarily used to treat acute lymphoblastic leukemia (ALL.)

    Here's a thread I found...
  21. Thread: Car t

    by IndyLou
    Replies
    101
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    10,011

    Thanks for checking in and providing an update....

    Thanks for checking in and providing an update. It's nice to have a fairly routine checkup. I do hope the "delirium" continues to subside. Is there anything that can be done to increase the...
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    Hello, and welcome to this forum. I apologize for...

    Hello, and welcome to this forum. I apologize for the delay in replying.

    I'm sorry to hear about your friend. Esophageal cancer can be challenging to treat because of the complications with eating...
  23. Thread: Brain Cancer

    by IndyLou
    Replies
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    819

    Hello, I'm sorry to hear of your current...

    Hello,

    I'm sorry to hear of your current situation with brain cancer, and I can understand your desire to try as many things as you can to alleviate your symptoms. That said, we take a more...
  24. As Southsider suggested, it would be extremely...

    As Southsider suggested, it would be extremely rare and unusual for you to have stomach cancer at such an early age. We have a very limited knowledge of your medical history, and couldn't possibly...
  25. Thread: Car t

    by IndyLou
    Replies
    101
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    10,011

    Wow, what a rollercoaster ride you're on! There's...

    Wow, what a rollercoaster ride you're on! There's just never a dull moment with James, is there?!! I'm glad to hear that he's OK now, despite the scare with pentamidine. Thank goodness he was in the...
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