A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: legodude

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  1. Replies
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    I'm sorry about your dad, David. Hopefully he can...

    I'm sorry about your dad, David. Hopefully he can find better care soon.

    Just throwing in my me too here... I'm nearly 6 months into my new life with cancer. I have seen a total of 6 different...
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    Fungi link to Pancreatic Cancer

    I thought this was pretty interesting.

    https://www.nature.com/articles/d41586-019-02892-y

    This is something in the very early stages of study, so there's no trials or drugs discussed at this...
  3. Thanks everyone for your responses. I got an...

    Thanks everyone for your responses.

    I got an appointment this week at MD Anderson with an oncologist much more specialized than my current doc.



    Really sorry to hear that. Oxaliplatin is...
  4. My oncologist said that neuropathy is also a...

    My oncologist said that neuropathy is also a symptom of GAX. We talked about it and she did not recommend me switching to it. Again, her plan is to wait and see if my neuropathy improves and then go...
  5. Had to stop Oxaliplatin - what are my options?

    After 9 rounds of FOLFIRINOX, my peripheral neuropathy has gotten so bad that my doctor discontinued Oxaliplatin from the protocol. Since then I've had two rounds of FOLFIRI (just FOLFIRINOX without...
  6. Thread: New Cancer

    by legodude
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    939

    I'm in the same boat. My diagnosis was last...

    I'm in the same boat. My diagnosis was last April. I've never been given a prognosis, even after seeing three different oncologists. The only plan I seem to have in front of me is to do chemo and...
  7. Thread: Ca 19-9

    by legodude
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    That's fantastic news! I've tried finding...

    That's fantastic news!

    I've tried finding reliable info on what CA 19-9 values really mean. My values are sky-high. My oncologist just says that the high values are because of the disease. Well,...
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    Yes. I just had my 8th Folfirinox infusion. I...

    Yes. I just had my 8th Folfirinox infusion. I started noticing post-treatment neuropathy sometime after the 2nd infusion, if I recall correctly. It's been a slight burning and sometimes a very light...
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    The doctor that put my port in said I could do...

    The doctor that put my port in said I could do anything I wanted except for contact sports. He also said to avoid water that isn't treated, e.g. don't swim in a nasty creek or lake.

    I've exercised...
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    Thanks for that info! Much appreciated. No, I...

    Thanks for that info! Much appreciated.

    No, I doubt my oncologist knows much more than what the mainline chemo treatments are. At least that's all the info she presents to me. She's not giving me...
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    Thank you, Brigitte. I try to cover everything...

    Thank you, Brigitte. I try to cover everything with my oncologist every time I see her (every 2 weeks). My wife usually goes with me to make sure I don't forget anything. We're keeping a close eye on...
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    Thank you. I try to stay positive. It's not easy...

    Thank you. I try to stay positive. It's not easy but I try.
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    I got chemo yesterday. 30 min into the...

    I got chemo yesterday. 30 min into the Oxaliplatin infusion I got to feeling really bad. Nausea, vertigo, and hives.

    They paused the infusion for about 30 min. and gave me benadryl and steroids. I...
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    I saw my oncologist Tuesday, and she didn't have...

    I saw my oncologist Tuesday, and she didn't have any answers regarding the hives. My blood test Tuesday showed my neutrophil count around 1, so my dr. postponed my chemo (that was scheduled for Wed.)...
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    Thank you. I'm sorry about your father, but his...

    Thank you. I'm sorry about your father, but his story gives me hope. I've not been given any prognosis, so I have no idea what to expect. Just taking this thing day by day...
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    This is a great topic. Wish I'd seen it months...

    This is a great topic. Wish I'd seen it months ago.

    I was in a lot of pain when first diagnosed. I was given morphine in the hospital.

    I was offered "whatever I wanted" when discharged. I ended...
  17. Those two are different drugs. Omeprazole...

    Those two are different drugs. Omeprazole (generic name) is a PPI (proton pump inhibitor). It slows down the production of acid. Less acid in your stomach means your stomach lining can recover from...
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    Right, same thought here. The 6 day delay seems a...

    Right, same thought here. The 6 day delay seems a little strange. It is hard not to get hot here. I try to stay indoors as much as possible, but I do occasionally have to get outside to go on errands...
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    Hives after FOLFIRINOX

    I've had five chemo infusions to date (started early May 2019). My treatments are every 14 days. I've never had hives before after treatments.

    6 days after the last treatment, I started to get...
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    Thanks so much, ddessert for this info. This is...

    Thanks so much, ddessert for this info. This is exactly where I find myself right now. I have molecular profiling results but little to no guidance in what to do next. I've read through the details...
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    Thanks everyone for your responses. I apologize...

    Thanks everyone for your responses. I apologize for the late reply here. Getting through the chemo treatments has been pretty rough, and I find little time to do normal things where I can think...
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    Stage 4 - Diagnosed about 1 month ago

    Hi! I just found this forum. Looking to reach out and hear from other people in similar situations and how their treatments and lives have progressed.

    Earlier this year I started having...
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