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    I am just soooo tired and nauseated. I hope for...

    I am just soooo tired and nauseated. I hope for a little improvement before I have to start chemo. I took chemo for a year in 2012 when first diagnosed and I feel like I lost a year because I felt...
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    Just finished Proton Therapy

    Seven weeks and 30 Rad treatments are behind me and Chemo will begin in about a month for a year. UGH
    RACL
  3. Thread: not great MRI

    by RACL
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    1,774

    Thinking of you Nikos. Give us an update in five...

    Thinking of you Nikos. Give us an update in five weeks.
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    Thanks for your reply Nikos. The insurance...

    Thanks for your reply Nikos. The insurance approved after three requests, which is about normal. I was prepared to fight, I have fought for many patients in the past. Being a nurse I find it...
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    I apologize because I can’t remember if anyone...

    I apologize because I can’t remember if anyone here has had proton radiation. If anyone has experience with the proton therapy, please let me know how you did as in side effects and how I may feel...
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    Streak of stable MRIs ended

    I had growth on the latest MRI, enough to warrant treatment. The suggested treatment is Proton therapy for six weeks and then the chemo to follow. I was disappointed greatly but not surprised. ...
  7. Thread: New positives

    by RACL
    Replies
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    3,125

    Hello Grandma, good hear good news for you.

    Hello Grandma, good hear good news for you.
  8. Thread: Update on mother

    by RACL
    Replies
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    6,086

    I love your Mom’s sense of humor.

    I love your Mom’s sense of humor.
  9. Thread: Boring scan

    by RACL
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    So happy for you and that new baby boy, a stable...

    So happy for you and that new baby boy, a stable scan is such a relief. I also had a stable scan this month and I am now on a six month regimen. ����
    Rhonda
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    Whew another stable MRI today

    My mind starts the game playing about a week or two weeks out every time before my MRI. I am a wreak until I hear the word stable, then I forget all about a tumor for a while. 😀
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    Hoping the best for you. I go next week for my...

    Hoping the best for you. I go next week for my MRI and I know the anxiety associated with waiting on results. In fact sometimes I think I create a few symptoms before I go each time.
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    Not sure if you have Medicare advantage or...

    Not sure if you have Medicare advantage or original Medicare plus supplement. As in billing for dialysis pts there are some quirky billing tactics used so Temodar may be billed under part B. Part D...
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    Keep us up to date on insurance info as you work...

    Keep us up to date on insurance info as you work through this. I am totally interested as it is open enrollment time. ��
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    Briefly, I was in ER on a Tues night and the mass...

    Briefly, I was in ER on a Tues night and the mass was found on a CT, I saw a neurosurgeon on Wed morn. The MRI was set up for Fri morn, I met again with neurosurgeon the next Monday only to hear...
  15. I was diagnosed in 2012 with an Oligo and did a...

    I was diagnosed in 2012 with an Oligo and did a year regimen of Temador. I did not have radiation. I am very unfamiliar with the PCV. Hopefully another Oligo surviver will have more info on PVC. I...
  16. Thread: happy...

    by RACL
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    3,546

    Great news

    Great news
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    Whew, another stable scan for me this week as...

    Whew, another stable scan for me this week as well.
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    Good for you, Dixie. I will remember your words...

    Good for you, Dixie. I will remember your words humble and acceptance, because I have a hard time with the acceptance of help.
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    Way to roll....

    Way to roll....
  20. So sorry to hear that you are dealing with this,...

    So sorry to hear that you are dealing with this, but listen to sibling, she gives good advice on forum. You need to try to be patient until path results are available after biopsy so a regimen can...
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    Sorry to hear you are experiencing this all over...

    Sorry to hear you are experiencing this all over again....I hope the surgery goes well for your son.
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    Wonderful news....so pleased for you....keep on...

    Wonderful news....so pleased for you....keep on kicking. :up:
  23. Thread: Dantrekker

    by RACL
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    Dan, never let the fight end.....you gave a lot...

    Dan, never let the fight end.....you gave a lot of people great inspiration with your positive attitude.
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    Yesterday MRI stable

    Thrilled this morning to get the stable call, my MRI was scheduled at 7:30 in the morning in Atlanta. It was a nightmare ride to Emory and back home again. Normally the ride takes two hours but with...
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    So thrilled for you.....keep it up. :up::up::up:

    So thrilled for you.....keep it up. :up::up::up:
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