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  1. Thread: Car t

    by johnr
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    101
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    9,647

    From watching a programme in the UK following 2...

    From watching a programme in the UK following 2 patients through treatment I would say the neurotoxicity is the massive difference and some of the issues that develop as part of that,
  2. Thread: Car t

    by johnr
    Replies
    101
    Views
    9,647

    great news and makes those dark days just...

    great news and makes those dark days just memories on the road to success
  3. Replies
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    1 year is a good milestone lets hope the next 12...

    1 year is a good milestone lets hope the next 12 months are uneventful and dominated by daily living and family life
  4. Replies
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    Great update and long may it continue as for the...

    Great update and long may it continue as for the coronary calcification one has to ask was it really there in the first place on the previous scan.
  5. Josh first its really important you do follow up...

    Josh first its really important you do follow up with the therapist don't turn down the chance to bring some normality back into your life.

    As for your back do some core exercises and keep them...
  6. Josh given that then do follow Po's advice as you...

    Josh given that then do follow Po's advice as you need help to break that "cycle of thought" the other trick I used in the early days was to always look to find a positive to focus on so that the...
  7. Josh another thought that may help especially as...

    Josh another thought that may help especially as you are heading to 5 years, the risk of a secondary cancer is there we all know that, but its not a large risk and it is way down the road, so try to...
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    Good to see you are able to sort things in a...

    Good to see you are able to sort things in a round able way, if you need a good hermit's cave Barry and I can give some good recommendations for the NE of England, though the flight might be a...
  9. Hi Josh, learning to trust your body again and...

    Hi Josh, learning to trust your body again and finding coping strategies to deal with relapse worries are well discussed over the years and each of us has to find what works for us and at times that...
  10. Hi again and sorry to read she now has a...

    Hi again and sorry to read she now has a diagnosis, I did wonder if it may be HL, treatment is standard with ABVD and most get a good response at the mid point scan and over 90% now make full...
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    your welcome

    your welcome
  12. Replies
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    Hi done that for you as it was easier than...

    Hi done that for you as it was easier than explaining, if its wrong tell me how you would like it wording

    John
  13. Hi again, at this stage it could be anything or...

    Hi again, at this stage it could be anything or nothing and whilst we can second guess, that's all it would be a guess, the scan will give them a clearer picture and the are a number of non cancerous...
  14. Whilst the CT scan was more about the neck (I...

    Whilst the CT scan was more about the neck (I assume from your first post) its probable she has had a neck and chest scan or they may have gone down to the abdomen, worth asking what was done, as the...
  15. So what was the update from the ultrasound has it...

    So what was the update from the ultrasound has it led to a referral to a haematologist? also just in case its your mother in laws cancer related incidents that is driving this worry, try to manage...
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    Hi Riley, sorry to see you have health concerns,...

    Hi Riley, sorry to see you have health concerns, the are around 80 different sub types of lymphoma and typing it can be a challenge in some cases, whether thats the case with your nodes only time...
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    The second generation of CAR-T treatment is I...

    The second generation of CAR-T treatment is I believe currently being developed and its a much smarter version with reduced toxicity, when the trials will start I have no idea but I did read that one...
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    The programme follows 2 leukaemia patients one...

    The programme follows 2 leukaemia patients one Male who was receiving donor T cells from his brother and a teenage boy who received his own cells back, both were challenging patients especially the...
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    Yes at the end they showed shots of people who...

    Yes at the end they showed shots of people who had been on the trial and some were close to 2 years in remission.
  20. Replies
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    655

    UK TV programme following CAR-T patients

    Tonight UK time 9.00pm on BBC 2 the is a programme called War In The Blood which follows 2 patients in the UK who took part in a trial of CAR-T therapy hopefully it will be available on the BBC...
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    Yearly visits sounds like a positive move, so...

    Yearly visits sounds like a positive move, so lets hope the routine issues remain as such and a sense of calm prevails

    John
  22. In general terms I would agree an excision biopsy...

    In general terms I would agree an excision biopsy is best, but when done well core biopsies can give a diagnosis especially if several have been taken as an excision biopsy may not always be...
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    Hi and sorry you have had to join the forum due...

    Hi and sorry you have had to join the forum due to the challenges your wife lymphoma is presenting, one thing you learn whilst dealing with lymphoma is whilst we may have some things in common, each...
  24. Thread: Checking In

    by johnr
    Replies
    3
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    630

    Role on the 11th of September and your official...

    Role on the 11th of September and your official remission date, and good to see life is being good to you, but do park up the survivor guilt, so stick with the cured and life will continue to...
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    Some years previous around 2015 to 17 a sub type...

    Some years previous around 2015 to 17 a sub type of fnhl was identified and the was talk of it being classed as pre fnhl and may never need treatment, not sure where the research and discussions got...
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