A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: Brucecav

Page 1 of 2 1 2

Search: Search took 0.00 seconds.

  1. Replies
    30
    Views
    11,738

    Thanks I forgot where I left that question just...

    Thanks I forgot where I left that question just typed it again I will try and delete that one. I was wondering as I am having shoulder and hip pain also my ribs seem to hurt when laying on them....
  2. Replies
    0
    Views
    131

    Philadelphia Positive Chromosomes

    Anyone with Phil Positive Chromosomes know iof your blood tests show you have brown spots on your bones, or is it just bone pain you get?

    Sorry found my old post and got a good response.
  3. Pablo I have (ALL) acute lymphoblastic leukemia...

    Pablo I have (ALL) acute lymphoblastic leukemia Philadelphia Positive December 2016.
    BCR/ABL by PCR was negative for p210 and p190 assays, but was positive for rare e1-a3 variant

    Not familiar...
  4. Replies
    30
    Views
    11,738

    Question about the Phil + side of the ALL, those...

    Question about the Phil + side of the ALL, those that have had brown spots on their bones how did you know this was happening. Just pain or did your blood tests show some sign that this was happening?
  5. Replies
    30
    Views
    11,738

    So glad to hear he is doing better this all is so...

    So glad to hear he is doing better this all is so hard to go through. I know it has been very hard on my wife also I would have been lost through all this without her by my side.

    I hope he keeps...
  6. Replies
    9
    Views
    6,058

    Sorry been awhile since I have checked in. Thanks...

    Sorry been awhile since I have checked in. Thanks we did enjoy Disney World hope I gave my kids and grand kids something to remember me by. Well today is Day 1034 for me and I am still ticking. Still...
  7. Replies
    0
    Views
    242

    Veterans & Agent Orange

    I have been dealing with Acute Leukemia now for almost 3 years, caused by Agent Orange and or cantaminated Camp Lejeune drinking water. I have started a web site dedicated to Veterans dealing with...
  8. Replies
    9
    Views
    6,058

    Thanks going to call my Oncologist of 2.5 years...

    Thanks going to call my Oncologist of 2.5 years tomorrow morning and ask his nurse about the 4 modules they discovered in my lung, naturally is has me concerned hope I do not have more elsewhere will...
  9. Replies
    30
    Views
    11,738

    abeucher, how is your husband doing hope good. I...

    abeucher, how is your husband doing hope good. I am still on Nilotinib almost 2.5 years now. I hope things are going good for you two. I found out yesterday I have 4 nodules in my one lung hope it is...
  10. Replies
    9
    Views
    6,058

    Well been awhile since I last checked in, took my...

    Well been awhile since I last checked in, took my grand kids to Disney World stayed at Shades of Green a Department of Defense resort on Disney property. Hope I gave the grand kids something to...
  11. Replies
    9
    Views
    6,058

    Update still taking the Nilotinib and anti...

    Update still taking the Nilotinib and anti rejection medicine, approaching my second birthday will be Feb 22, 2019. My cancer DR let us come south in our RV for 3 months this winter. So we are on the...
  12. Replies
    30
    Views
    11,738

    Today I was reading about the side effects of...

    Today I was reading about the side effects of Nilotinib think I have about 12 of them been taking it daily for around 18 months now. Noticed under common side effects it says, no blood pressure, no...
  13. Replies
    30
    Views
    11,738

    acute lymphoblastic leukemia Philadelphia...

    acute lymphoblastic leukemia Philadelphia Positive December 2016.
    BCR/ABL by PCR was negative for p210 and p190 assays, but was positive for rare e1-a3 variant My age is 69 years young

    HI all...
  14. Replies
    5
    Views
    3,113

    po18guy,was just telling my wife the retired RNC...

    po18guy,was just telling my wife the retired RNC she said the doctor does check for Leukemia cells every time but that part of the blood tests has to be sent to California so we never know the...
  15. Replies
    5
    Views
    3,113

    Yes been getting blood work done every month...

    Yes been getting blood work done every month however last time in June DR said I can now wait two months for blood work. Last time around June 8th blood work no signs of any Leukemia cells.

    The...
  16. Replies
    30
    Views
    11,738

    Abeucher how is your husband doing?

    Abeucher how is your husband doing?
  17. Replies
    5
    Views
    3,113

    Nilotinib - Tasigna Anyone else taking this

    Was wondering if anyone else has been taking Nilotinib - Tasigna ??

    Been experiencing what feels like bone pain again saw the last 3 weeks. Woke up at 3 am right hip, ribs and neck spine hurting....
  18. Replies
    20
    Views
    12,961

    Pete well said I am a Marine and now at 15 months...

    Pete well said I am a Marine and now at 15 months since my stem cell transplant and still inactive can say to all do not give up keep a positive attitude and keep telling yourself you can win this...
  19. Replies
    4
    Views
    3,588

    Sraab God Bless hang in there. Not sure where in...

    Sraab God Bless hang in there.
    Not sure where in the USA you live but I have a rare type of ALL Phil positive and rare type of chromosome type.

    I live in south central PA and was sent right away...
  20. Replies
    12
    Views
    9,680

    Sorry been awhile since I checked in, had my stem...

    Sorry been awhile since I checked in, had my stem cell transplant Feb 22, 2017 so been about 15 months now. Still taking my Nilotinib - Tasigna 400 MG every day my doctor said he MAY try and start to...
  21. Replies
    30
    Views
    11,738

    Been awhile since I checked in sorry, doctor...

    Been awhile since I checked in sorry, doctor still has me on the Nilotinib - Tasigna 400 MG X1 guess I will be staying on this for at least two years from my stem cell transplant. Well was on the...
  22. Replies
    12
    Views
    9,680

    Well just found my original post, had my one year...

    Well just found my original post, had my one year birthday Feb 22, 2018 and still around. Now April 8, 2018 and I am doing good. See my cancer doctor tomorrow will get more blood work done as usual...
  23. Replies
    103
    Views
    31,781

    Very sorry to here about your condition I hope it...

    Very sorry to here about your condition I hope it turns out for the best seems they are coming out with new treatments all the time. God Bless
  24. Replies
    30
    Views
    11,738

    Well I should have kept a record of all my...

    Well I should have kept a record of all my treatments but did not. My Acute ALL Phil + is on the presumptive list of diseases for exposure to Agent Orange and contaminated Camp Lejeune drinking...
  25. Replies
    30
    Views
    11,738

    Abeucher, have the exact kind of Leukemia as you...

    Abeucher, have the exact kind of Leukemia as you also Phil +, I am now almost at 12 months since my stem cell transplant Feb 22, 2017. I am 68 years young hope things work out ok sure is scary...
Results 1 to 25 of 40
Page 1 of 2 1 2