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Type: Posts; User: jwessel

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    Had my one month post transplant follow up...

    Had my one month post transplant follow up appointments. Transplant process is now considered complete. Blood counts continue to nudge up towards the low end of normal with white counts solidly in...
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    Sorry to hear that access is complex. This seems...

    Sorry to hear that access is complex. This seems similar to attempts to get at my lung nodule. A needle biopsy failed due to location and danger of a collapsed lung. There was concern as well that a...
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    Now that winter is setting in here in the...

    Now that winter is setting in here in the northeast it does seem that cold weather accentuates my neuropathy. I have fairly severe neuropath in the feet and toes from CHOP. Warm soaks make them...
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    Just completed six cycles of CHOP, which included...

    Just completed six cycles of CHOP, which included vincristine, and then a stem cell transplant. During CHOP I had a lot of muscle cramping, particularly at night. I started to wear compression socks...
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    Approaching 64 years old, I just completed an...

    Approaching 64 years old, I just completed an auto transplant. This past Saturday it was two weeks since I had returned home. While there may be complications, doing an auto transplant is not...
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    debpower, thanks for your kind words and...

    debpower, thanks for your kind words and thoughts. I was not familiar with the Poisonwood Bible. I took some time to read several reviews and comments. Our experience would have been different in...
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    Reflections

    Jotey, thanks for your encouragement!

    This stage of the journey seems to be coming to an end. Outpatient follow-up called this morning and wanted to see me today for a follow up. Seemed annoyed...
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    Day +11. Extremely thankful to be continuing my...

    Day +11. Extremely thankful to be continuing my healing at home!

    The Hickman Port came out yesterday. One of the disadvantages of it going in early is that my body had grafted in. It took 30...
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    Day +10. Thanks for all off the encouragement! ...

    Day +10. Thanks for all off the encouragement!

    Came off all pain meds yesterday. Had several bouts with the runs which they predicted would happen after coming off the meds. All IVs are now off...
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    Day +9. The bottomless source of mucus dried up...

    Day +9. The bottomless source of mucus dried up last night. Did a mouth rinse and noticed that I had some healthy mouth sores. Mouth pain must have been masked by the pain of swallowing. They all...
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    Day +8. Day started out rough primarily due to...

    Day +8. Day started out rough primarily due to poor sleep between 1am and 3am, during which I produced a lot of mucus which was increasingly bloody. I was positive that I would be needed another...
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    Autumn in the Northeast/west. My favorite time of...

    Autumn in the Northeast/west. My favorite time of year. I am getting a nice view of crystal clear fall weather outside. Fortunately I have been able to stay inside, in the moment. Day 1-5 demanded...
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    Deb, thanks for you prayers and for remembering...

    Deb, thanks for you prayers and for remembering the lady next door.

    Counts went down further, however I feel like I am turning the corner for good! I was able to drink first 1tbs and then 2 more...
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    Day + 5. Starting to understand the ropes, in...

    Day + 5. Starting to understand the ropes, in this cycle of counts going down, fevers, morphine, and Tylenol. Was coaxed into trying a liquid dose of Tylenol. Do not do it! The flavoring agents make...
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    Day +4. There was an early morning rumor that my...

    Day +4. There was an early morning rumor that my White counts had actually gone up! I was too groggy to get the counts. It am happy to visualize the stem cell puppies grafting and starting to yap!...
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    Day +3, WBC down to .13, HGB 10.5, Platelets 52....

    Day +3, WBC down to .13, HGB 10.5, Platelets 52. Fever set in last night and has continued off and on through the day depending on Tylenol treatment. It is good that the appetite has disappeared...
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    Thanks all! Numbers took a dive today, (Day+2)...

    Thanks all! Numbers took a dive today, (Day+2) and so did my appetite; WBC .55, HGB 10, Platelets 72. Went rapidly from struggling with normal diet, to soft diet, to considering liquid or no diet...
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    po18guy & PBL, thanks for your continued...

    po18guy & PBL, thanks for your continued encouragement!

    PBL, sorry to disappoint on the Car-T question. I believe I am getting just a run of the mill, everyday type auto stem cell transplant, no...
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    Stem Cell Puppies Come Back Home!

    PBL, thanks for your kind encouragement!

    This was the big day. Three bags of recovered stem cells. I had thought that they would give them back in the two bags in which they collected them, It...
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    Last chemo going in today. Another milestone...

    Last chemo going in today. Another milestone through this journey. Busulfan caused quite a bit of involuntary muscle twitches. Perhaps this contributed to my fall. Etoposide for 48 hours seemed to...
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    Thanks for the encouragement. Today I found out...

    Thanks for the encouragement. Today I found out that, at least here, IV Saline cannot be ordered in 12 hour chunks, only 24 hour order. Scratch the idea of a night time top off of fluids....
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    Checked in at the spa yesterday. An early evening...

    Checked in at the spa yesterday. An early evening round of Busulfan. First day was uneventful. The second day I fell during the night. Fainting is listed as a side effect of Busulfan. Drowsiness, and...
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    True. But that would be out of character for me....

    True. But that would be out of character for me. My doctors are encouraging me to get symptoms checked out earlier, before showing up in the ER approaching my deathbed!

    Perhaps I left the false...
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    So true! But a saying I learned growing up in the...

    So true! But a saying I learned growing up in the bush country of equatorial Africa also comes to mind, "little lions become big lions and big lions kill". So I like to keep an eye on everything.
    ...
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    Not one and done, but a good day for collecting...

    Not one and done, but a good day for collecting stem cells. Reported 5.4m of the targeted 7.0m collected! Hope is to finish up tomorrow and then have until the Monday the 23rd to rest up for the...
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