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I will share this, John, thanks.

My next step is to meet with an interventional radiologist to find out if he thinks he can get a needle to the node without hitting anything else, lol. We'll see...

So, as of now I have a general surgeon and a vascular surgeon who have refused to do the node excision due to its location deep in the abdominal cavity. Too many complexities and too much risk.

I...

Well, I have the scan results and it shows a collection of hot spots in both sides of theiiac chain. Highest SUV is 12.8 which is high for FL and just marginally high for tFL.Next stop is at the...

Team body parts removed or replaced might have been more satisfying. Best wishes for a recovery without (additional) incidents!

Good health,

kermica

Thanks, John. I saw another last night regarding the very positive outcome for a small cohort of patients -28 - with FL who underwent CAR_T. I believe 11 had tFL and the other 17 straight FL. All...

thanks, Jotey. We are back from Boston and, unfortunately, all bets are that I have relapsed following my stem cell transplant six months ago. What is not known is whether the returned lymphoma is...

Thanks, Deb, (and all). The mammography was negative for any suspicious lesions. The doc tells me I have condition called gynecomastia which is a hormonal imbalance, often seen in men who take a...

Thanks, everyone. Yes, the counts are back up where they should be so it is good to know that I am not getting dragged down by some beast and that no infections are attacking at the moment.
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op 1987, stem cell transplants are not used until a patient has proven refractory to at least one or two other lines of treatment. I would assume this is due to cost, toxicity and other factors.
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Hi everyone and my apologies for not being around any more than I have been. Things have gotten somewhat strange so I thought I would provide an update. I saw my oncologist on Thursday and, while...

Hi Jiminipdx. I am going to try and comment about how one (well, this one) manages the emotional roller coaster we call fNHL. I have been on this ride for 11 years now and, for e, find the greatest...

Thanks, all! I got things straightened out last Friday, received my booster and brought two doses home for self injection over the weekend. I go in today for another blood count, we will see how...

Good luck with the procedure, POGuy, I am interested in how things work out for you as my vision seems to be slowly worsening over time.

Good health,

kermica

Yes I am shopping for mountain top caves now as it appears I will be off grid for a while. Today's interesting development is that my insurance company, for the first time ever, rejected the...

Thanks everyone, this place remains a source of comfort in the storm so thanks. I Fell, I had Neulasta after every chemo session I have had so that is about 23 times, I think. It worked great for...

Hey folks, sorry I have been off the board for a while. My recovery had been progressing smoothly and my counts were very good for the first 90 days post transplant. Then, last week, I got hit with...

I think this sounds like outstanding news, POGuy! As someone who has six appointments in the next three weeks, I envy you, my friend. As someone who is at least somewhat familiar with all you have...

Hi Jim, sorry to say I have no experience with the problem you describe. I have used lots of anti-coagulants for a coronary issue complicated by an ulcerated aneurysm. Happily, the docs did the...

Bank, this is very nice to hear, congratulations! May you enjoy all the days before you and may they by cancer free forever!

Good Health,

kermica

John is correct, stick with one thread, it makes it much easier to follow your story. As far as the ups and downs and reactions of others, remember that we are all different and there is little or...

Hi Marian, I hope you and David are doing as well as can be! I have had lots of changes in your absence, mostly a stem cell transplant a couple of months ago from which I am slowly recovering. ...

Jim, so sorry to hear of this development. Infections are the one thing that scares me on this journey - get em anywhere and don't know they are there til they decide to show you they are there. ...

Hi there, JiminPDx and welcome to the place no one wants to be but any come to value. I am sorry to hear of your diagnosis but be assured that fNHL is one of the blood cancers that can be treated...

Hi Marie, and thank you for your kind words, prayers and good thoughts. Don't think you can't make a contribution just because you haven't had as many treatments as some of us, just see your post...

Thanks, Simon, I'm doing okay, I think. I did have a spike in my white blood count last week (up to 23,500, I believe) but nobody in my local office got excited about it so neither have I. I would...