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Type: Posts; User: Chiarosel

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  1. Hey, Paul, sorry to hear that the radiation is...

    Hey, Paul, sorry to hear that the radiation is hitting so hard when you've got a major essay due. I did the 6 weeks of radiation and it was at about the mid-point when the fatigue hit me (as well as...
  2. My radiation was done at Methodist in Houston by...

    My radiation was done at Methodist in Houston by Dr. Bin S. Teh, Radiation Oncologist. It was Tomotherapy, similar to IMRT, and the results have been very good (10 months post-treatment at this...
  3. I would recommend that your friend contact the...

    I would recommend that your friend contact the maker, Merck, about getting it from them. I know they provide co-pay assistance and, here in the U.S., will be transitioning to a different co-pay...
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    You could also check into having the doc...

    You could also check into having the doc prescribe Keppra XR (extended release). It would provide a longer dose without the trough.

    I've been changed to a different anti-seizure med...
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    Kim, good for you! A biopsy will give you a lot...

    Kim, good for you! A biopsy will give you a lot more information about what kind of tumor you have and how best to treat it.

    I didn't have a biopsy, instead going in for a craniotomy for...
  6. Thread: Rugby

    by Chiarosel
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    You three are a hoot!

    You three are a hoot!
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    Houston, I was set up with a Neuro-Oncologist...

    Houston, I was set up with a Neuro-Oncologist from the beginning with Methodist. Dr. Yvonne Kew. Her Nurse Practitioner came to visit me in the hospital after my surgery to help answer questions...
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    Howdy, Houstonwife. I'm sorry to hear about your...

    Howdy, Houstonwife. I'm sorry to hear about your husband's diagnosis and your concern and confusion.

    I think GBMsibling and Irishgirl have given you some good information to go on. I do think...
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    JK, My Neuro-Onc told me that once a seizure...

    JK,

    My Neuro-Onc told me that once a seizure had occurred because of a brain tumor, brain chemistry changes and seizures/epilepsy become more common. She put me on Keppra to start with but it...
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    Howdy, Chris. Sorry you are having to go...

    Howdy, Chris.

    Sorry you are having to go through all of this. I know it can be scary and frustrating to have to wait. And good luck on the thyroid biopsy.

    With regard to the MRI: I've had...
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    Jeff, Like Josh, I had a rigid mesh mask...

    Jeff,

    Like Josh, I had a rigid mesh mask form-fitted to my face for radiation, not tattoos. And I had radiation after surgery to hit the 20% they couldn't remove for an Oligodendroglioma right...
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    Howdy, Most lowe. I have an Olidodendroglioma...

    Howdy, Most lowe. I have an Olidodendroglioma grade III, right frontal lobe, presented with a seizure and had 80% removed (7.5cm x 3.5cm x 2.5cm biggest piece taken out) July 2012. I do have the 1p...
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    I can only imagine what a difficult place in...

    I can only imagine what a difficult place in which you find yourself right now as you try to make sense of what is happening and what may happen down the road. I know, for me, that not knowing how...
  14. Thread: good morning

    by Chiarosel
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    Good to hear, Josh! Always nice when we get that...

    Good to hear, Josh! Always nice when we get that "stable" read! Enjoy the good weather up your way this weekend.

    Chiaro
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    Still here, too. Busy winding up another school...

    Still here, too. Busy winding up another school year and getting the 8th graders ready for end of year exams. Making plans for the summer, seeing how many trips I can squeeze in between chemo...
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    Well, I'd be aiming for the parts I haven't seen...

    Well, I'd be aiming for the parts I haven't seen yet. Been as far north in NSW as Ballina, but not into Queensland, and I love the Kempsey area. Been throughout eastern Victoria, but not much west...
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    Trying to remember... I think the last time I saw...

    Trying to remember... I think the last time I saw Sir Les Patterson was in the Toyota Avalon commercials saying "H'Avalon drive and don't come back" or something similar.

    I do miss Australia. ...
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    Oh, now you've done it.... I just went down the...

    Oh, now you've done it.... I just went down the rabbit hole and spent an hour and a half on youtube watching Dame Edna videos. Gawd, but Barry Humphries was funny!
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    Sibling, I'm so sorry for your loss. You and...

    Sibling, I'm so sorry for your loss. You and your sister, through your posts, have been an inspiration.

    Many hugs and thanks for what you've shared.

    Chiaro
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    There is also the possibility that her behavior...

    There is also the possibility that her behavior is depression related because of not having anything meaningful to do. I know that when I don't have a routine to follow, it is very easy to sink into...
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    Cathy, I have a Grade III Oligodendroglioma (1P...

    Cathy, I have a Grade III Oligodendroglioma (1P 19Q co-deleted)right frontal that presented with a seizure and was partially (80%) debulked in July of last year. The largest piece sent to pathology...
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    Scott, definitely ask your doctor for an...

    Scott, definitely ask your doctor for an anti-nausea drug. Zofran is probably the most common. And make sure you have an empty stomach when you take it, with plenty of water to get it through...
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    I once went to Dodge, Texas, just so that I could...

    I once went to Dodge, Texas, just so that I could truthfully say that I "Got the Hell out of Dodge!"
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    Adsense-NewsMax

    5 Signs That You'll Get Cancer

    I clicked on it just to see if it was the kind of thing I was afraid it was and it was an infomercial of scare tactics trying to sell his newsletter by bashing...
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    Again, the studies that Danny is referring to are...

    Again, the studies that Danny is referring to are talking about using PCV concurrently with radiation on co-deleted oligodendrogliomas, so bear that in mind.
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