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    Left eye done. For now, it is blurrier than...

    Left eye done. For now, it is blurrier than before, due to inflammation. According to doctor, that is the result of removing a "world-class" cataract. Lovely. At any rate, I now have the best lens...
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    Chemo fog, London fog, or just cataracts?

    Heading to Seattle in a few hours to get my vision back. New internal lenses - left eye first. Only $3500 out of pocket. At least we have it, now that the mortgage is paid. Sadly, I have no parrot to...
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    For safety's sake, I am going to avoid ladders...

    For safety's sake, I am going to avoid ladders and take up juggling knives.
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    Thank you! We hope so. Just to spice things up a...

    Thank you! We hope so. Just to spice things up a bit, I broke my left little toe and capped that off by apparently eating something that was a little "off." I have that helium balloon feeling...
    ...
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    Thnnks, deb! A few hiccups and bumps in the road,...

    Thnnks, deb! A few hiccups and bumps in the road, but we are making progress.
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    "Officially" 4 years old today

    Member abeucher who posts in the Leukemia/MDS forums just wished me a happy birthday. Then it struck me - it was four years ago today that I received that pale transfusion of stem cells. Further...
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    John, thank you for the well wishes. I appear to...

    John, thank you for the well wishes. I appear to have the remainder of the month without a medical appointment. Odd, that bit. Nevertheless, we are holding our own. Having said that, I bear always in...
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    No more swabs, as my symptoms have now subsided...

    No more swabs, as my symptoms have now subsided sufficiently for concern to decrease. As well, after putting me through the motions, poking, probing, photographing and scrutinizing my blood numbers,...
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    Am feeling better, but was swabbed again today...

    Am feeling better, but was swabbed again today (Friday) for the presence of HPIV. Dr. palpated several submandibular nodes at about 1cm, but it concerned neither of us, since I am still in recovery...
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    TY, all! DW is threatening to drag me to the...

    TY, all! DW is threatening to drag me to the local urgent care clinic once again if I do not improve from my current state. Simply put, colds and viruses last about 30 days, given my current level of...
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    Turns out that I have parainfluenza virus type 3...

    Turns out that I have parainfluenza virus type 3 (HPIV-3). Another to add to my roster. Types 1 & 2 cause croup, so I dodged a bullet there. It seems to be clearing up, but I am still surrounded by...
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    Thanks, all! I must eay that I feel substantially...

    Thanks, all! I must eay that I feel substantially worse than when I was in the hospital - but that was infections+anemia. Will simply have to wait this one out. As to my mountain bike, I ride...
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    Everything was going along halfway decent....

    Everything was going along halfway decent. Therefore, I had to develop a couple of infections. Worst is pneumonia in the left lower lobe - the usual suspect. However, the same (or another) infection...
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    Thank you, Richard. It appears that I need dosing...

    Thank you, Richard. It appears that I need dosing which is not currently offered by the manufacturer. So we must settle on a two-day average dose, even though the drug seems to act for about a 10-12...
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    Thank you, David! Just plugging along. Trying to...

    Thank you, David! Just plugging along. Trying to find a dose of Ruxolitinib that will effectively control the GvHD while killing me at an acceptable rate. OK, maybe a slight exaggeration, but not all...
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    Thanks for asking! Either the GvHD is morphing a...

    Thanks for asking! Either the GvHD is morphing a bit, or I have developed some allergies. Performing my own experiment, holding one drug at a time to exclude each from causing the symptoms I am...
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    Thank you very much! Another BMB is no biggie....

    Thank you very much! Another BMB is no biggie. Doing it in a search for two suspected marrow cancers - not so much. Since my blood numbers rebounded, it's called off for now. All part of that...
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    Good to hear from you! Hey, meet us in Honolulu!...

    Good to hear from you! Hey, meet us in Honolulu! OK then, how about San Fran June 8th?
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    That is great news! It gives me hope. We'll see....

    That is great news! It gives me hope. We'll see. Oh, and see you at the seminar August 31st?
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    Thank you. Transplant is where our faith - in...

    Thank you. Transplant is where our faith - in medicine, ourselves, providence - is tested. I knew that rough seas were ahead, but was at peace nevertheless.
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    Jak2 take 2

    After more than a month off of the Jakafi, and increasing upper body itching, we have decided to re-start the drug, but at half dose. I suggested a bump, perhaps 20mg daily for three days, as is done...
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    Call me NEO 2.0

    I either dodged yet another bullet, or more likely slipped and fell just in time. Marrow seems to have rebounded, as my hematocrit has climbed back up to my normal substandard level - a win. No more...
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    The concern is that, for some reason, my marrow...

    The concern is that, for some reason, my marrow might be failing. The Myelodysplastic Syndrome may not have been completely eradicated, or another marrow cancer, Myelofibrosis, is a possibility. I do...
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    There are more physicians with quizzical...

    There are more physicians with quizzical expressions and scratching various body parts than I have witnessed in some time. The problem, you see, is that my motorcycle is still not road-worthy. As...
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    It has not been a banner year, but I am still...

    It has not been a banner year, but I am still here. Still in diagnostics and probably staring at a bone marrow biopsy.
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