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  1. As part of the clinical trial, I have completed a...

    As part of the clinical trial, I have completed a survey about every 3 months for the last 30 months that clearly aims at my head space. The treatment team (doctor and two nurses) are specifically ...
  2. Thread: Four years post RP

    by BAB
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    Congratulations, and many more undetectable PSA...

    Congratulations, and many more undetectable PSA years to come.
  3. One of my friends had the Urolift. Not good. He...

    One of my friends had the Urolift. Not good. He ended up with significant bleeding, bladder spasms, several trips to the ER. Also, had to be catheterized due to bleeding.

    The urologist said...
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    I found this site really answered a lot of...

    I found this site really answered a lot of questions as I was going through the diagnosis, RALP and all the follow up treatment. Prostate cancer, different from many other varieties, gives you some...
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    The Gy prescriptions you guys are receiving sound...

    The Gy prescriptions you guys are receiving sound REMARKABLY familiar. I had a total of 69 Gy. 46 to the pelvic area, 23 to the fossa. Incidentally, they had a nice celebration for me after my...
  6. Thread: My RALP Journey

    by BAB
    Replies
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    1,262

    As I recall, I was told the longer incision was...

    As I recall, I was told the longer incision was the one used to remove the "bagged up" prostate. Two years later, that incision is the only visible sign that I had a RALP. The more visible...
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    Djin, you put so much light into this dark...

    Djin, you put so much light into this dark disease. The research you do and the explanations you provide are a great bridge that allow me to be smarter on managing my role as "patient" and asking...
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    I never, ever, watched the injection. I don't...

    I never, ever, watched the injection. I don't think I've looked since I was 5 years old.
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    He’s really fortunate to have you as a friend. A...

    He’s really fortunate to have you as a friend. A lot of his attitude toward dealing this is going to be tempered by how you’ve handled it.

    None of us need to do this alone. If he wants...
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    Since I live in NC and was being treated at...

    Since I live in NC and was being treated at Hopkins (Baltimore), we had a lengthy discussion about the RT part of my treatment. Since I had a multi-disciplinary care team in NC and had met the RO...
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    Djin, your doctor sounds really collaborative,...

    Djin, your doctor sounds really collaborative, which I think says a lot about his professionalism. It is a step to go from quarterly PSA’s to 6 months, and I would have done exactly what you did.
    ...
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    I finished up the two years of ADT a few months...

    I finished up the two years of ADT a few months ago. Most of my injections were about two inches above and 4 inches to the left of my navel. At this injection site, you can feel the lump (or...
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    I really understand where you are. I finished...

    I really understand where you are. I finished two years on ADT 6 weeks ago, and there's no doubt of the side effects. The plus has been having an undetectable PSA for the duration of the ADT, but I...
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    First, it's wonderful that you're at your Dad's...

    First, it's wonderful that you're at your Dad's side as your family takes on this challenge. I speak from personal experience as my son has been at my side since day one of this journey.

    There...
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    Mr. B. A lot of great advice. Trust me. ...

    Mr. B.

    A lot of great advice. Trust me. When you're 74, you're going to want to look back to 54 and remember that you took the time and energy to get a second opinion. If you can swing it, go...
  16. Thread: What do I do now?

    by BAB
    Replies
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    1,772

    I get it with the ADT stuff. I just finished two...

    I get it with the ADT stuff. I just finished two years on Trelstar/Lupron/whatever. I knew upfront that this was going to be a slog, but I psyched myself up by believing that it’d be different for...
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    You have been majorly instructive as I wend my...

    You have been majorly instructive as I wend my way past the 2 1/2 year mark.

    I have a tremendous amount of respect for the work you do bringing more information than I could ever ferret out...
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    Much has been written about how to handle a...

    Much has been written about how to handle a cancer diagnosis. I can only speak for myself on what this has been like for the past two years. I’ve made friends with others who are on this journey,...
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    Prior to beginning my clinical trial my Dr. did a...

    Prior to beginning my clinical trial my Dr. did a whole string of genetic testing. What we found that there was no apparent genetic predisposition. What he DID find was that I have dMMR (deficient...
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    The lab report shows the less than symbol and...

    The lab report shows the less than symbol and 0.1. There’s an adjectival statement that says this constitutes an undetectable reading. Neither my local folks nor JH have used the ultra sensitive...
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    Djin....and I got an update on the polyploid...

    Djin....and I got an update on the polyploid giant cancer cells and EP53 research. Dr. Pienta said he could get some of the EP53 from a local elephant. Unfortunately, in its current form it would...
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    Gary, thanks for posting that link. I did 20...

    Gary, thanks for posting that link.

    I did 20 years in the Army, including an exciting year in Vietnam. Like my Dad before me (WWII and Korea), I pretty much never talked about that year -- just...
  23. Playing "chicken" isn't a very attractive option...

    Playing "chicken" isn't a very attractive option for people who have a low tolerance for risk! What I heard from my Doc today at Hopkins leads me to believe that he's not going to play that game. I...
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    Continuing Membership in the "Zero Club"

    My exit from the two year clinical trial is now complete. Blood drawn at 8 am. CBC, Testosterone, and PSA.. Results were in by this afternoon. The mild anemia has been resolved (after effects...
  25. Take a deep breath. Maybe a couple of deep...

    Take a deep breath. Maybe a couple of deep breaths.

    If you check my stats, I ended up with G9, a couple of lymph nodes, etc.

    I had a RALP, chemo, 69 Gy of radiation, and just completed two...
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