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  1. Replies
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    Team body parts removed or replaced might have...

    Team body parts removed or replaced might have been more satisfying. Best wishes for a recovery without (additional) incidents!

    Good health,

    kermica
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    Thanks, John. I saw another last night regarding...

    Thanks, John. I saw another last night regarding the very positive outcome for a small cohort of patients -28 - with FL who underwent CAR_T. I believe 11 had tFL and the other 17 straight FL. All...
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    thanks, Jotey. We are back from Boston and,...

    thanks, Jotey. We are back from Boston and, unfortunately, all bets are that I have relapsed following my stem cell transplant six months ago. What is not known is whether the returned lymphoma is...
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    Thanks, Deb, (and all). The mammography was...

    Thanks, Deb, (and all). The mammography was negative for any suspicious lesions. The doc tells me I have condition called gynecomastia which is a hormonal imbalance, often seen in men who take a...
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    Thanks, everyone. Yes, the counts are back up...

    Thanks, everyone. Yes, the counts are back up where they should be so it is good to know that I am not getting dragged down by some beast and that no infections are attacking at the moment.
    ...
  6. op 1987, stem cell transplants are not used until...

    op 1987, stem cell transplants are not used until a patient has proven refractory to at least one or two other lines of treatment. I would assume this is due to cost, toxicity and other factors.
    ...
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    Hi everyone and my apologies for not being around...

    Hi everyone and my apologies for not being around any more than I have been. Things have gotten somewhat strange so I thought I would provide an update. I saw my oncologist on Thursday and, while...
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    Hi Jiminipdx. I am going to try and comment...

    Hi Jiminipdx. I am going to try and comment about how one (well, this one) manages the emotional roller coaster we call fNHL. I have been on this ride for 11 years now and, for e, find the greatest...
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    Thanks, all! I got things straightened out last...

    Thanks, all! I got things straightened out last Friday, received my booster and brought two doses home for self injection over the weekend. I go in today for another blood count, we will see how...
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    Good luck with the procedure, POGuy, I am...

    Good luck with the procedure, POGuy, I am interested in how things work out for you as my vision seems to be slowly worsening over time.

    Good health,

    kermica
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    Yes I am shopping for mountain top caves now as...

    Yes I am shopping for mountain top caves now as it appears I will be off grid for a while. Today's interesting development is that my insurance company, for the first time ever, rejected the...
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    Thanks everyone, this place remains a source of...

    Thanks everyone, this place remains a source of comfort in the storm so thanks. I Fell, I had Neulasta after every chemo session I have had so that is about 23 times, I think. It worked great for...
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    Hey folks, sorry I have been off the board for a...

    Hey folks, sorry I have been off the board for a while. My recovery had been progressing smoothly and my counts were very good for the first 90 days post transplant. Then, last week, I got hit with...
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    I think this sounds like outstanding news, POGuy!...

    I think this sounds like outstanding news, POGuy! As someone who has six appointments in the next three weeks, I envy you, my friend. As someone who is at least somewhat familiar with all you have...
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    Hi Jim, sorry to say I have no experience with...

    Hi Jim, sorry to say I have no experience with the problem you describe. I have used lots of anti-coagulants for a coronary issue complicated by an ulcerated aneurysm. Happily, the docs did the...
  16. Thread: New in TN

    by Kermica
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    Bank, this is very nice to hear, congratulations!...

    Bank, this is very nice to hear, congratulations! May you enjoy all the days before you and may they by cancer free forever!

    Good Health,

    kermica
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    John is correct, stick with one thread, it makes...

    John is correct, stick with one thread, it makes it much easier to follow your story. As far as the ups and downs and reactions of others, remember that we are all different and there is little or...
  18. Thread: Hi everyone!

    by Kermica
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    Hi Marian, I hope you and David are doing as well...

    Hi Marian, I hope you and David are doing as well as can be! I have had lots of changes in your absence, mostly a stem cell transplant a couple of months ago from which I am slowly recovering. ...
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    Jim, so sorry to hear of this development. ...

    Jim, so sorry to hear of this development. Infections are the one thing that scares me on this journey - get em anywhere and don't know they are there til they decide to show you they are there. ...
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    Hi there, JiminPDx and welcome to the place no...

    Hi there, JiminPDx and welcome to the place no one wants to be but any come to value. I am sorry to hear of your diagnosis but be assured that fNHL is one of the blood cancers that can be treated...
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    Hi Marie, and thank you for your kind words,...

    Hi Marie, and thank you for your kind words, prayers and good thoughts. Don't think you can't make a contribution just because you haven't had as many treatments as some of us, just see your post...
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    Thanks, Simon, I'm doing okay, I think. I did...

    Thanks, Simon, I'm doing okay, I think. I did have a spike in my white blood count last week (up to 23,500, I believe) but nobody in my local office got excited about it so neither have I. I would...
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    As always, here's hoping you (or they) can get...

    As always, here's hoping you (or they) can get the dosing so that it yields maximum benefit at minimal physical cost. Is that an MGB you are recabling? That would be a fun job, they are so simple,...
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    Thank you both for your warm wishes. As to how I...

    Thank you both for your warm wishes. As to how I am feeling, the best word I can use to describe it is depleted. Tired, some real back pain and, of course, all of the precautions reduce you...
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    So, the checkup at Dana went really weell. I...

    So, the checkup at Dana went really weell. I have a better understanding of what we are doing and where it will take us in the end. I will have a scan at Day 100 and return to Dana at that point. ...
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