A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    Mehdi sharif, I too am sorry your father is ill....

    Mehdi sharif, I too am sorry your father is ill. If I understand you correctly, he is having seizures? That is a sign that something is wrong but the list of what it might be is rather long. I do not...
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    Hello Everybody! It seems like many years and not...

    Hello Everybody! It seems like many years and not just 2.5 since I last posted. Not much has changed. Last MRI was a month ago and the report said "No Change." It has now been 15 years since my...
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    Update on my story

    Hi everyone. It has been quite a while since my last post. This is just a short note to update my friends. Overall, my life has not changed much. I still have good and very bad days. Today has been a...
  4. Well, having uncontrolled seizures is not a good...

    Well, having uncontrolled seizures is not a good thing, that is for sure. At the very least seizures mean the person cannot legally drive... a big deal for me since I live alone. Between 1992 (first...
  5. Thread: Latest update

    by brainman
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    Plugh, I am glad to see you still around but so...

    Plugh, I am glad to see you still around but so sorry that you had the stroke and still having problems. I rarely come on anymore but do check in from time to time... especially to see if some of my...
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    Just a drop in. I will do this from time to time....

    Just a drop in. I will do this from time to time. Still have a lot of good memories and friends here :)
  7. Thread: 1 year mri

    by brainman
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    3,449

    Did you mean "surgery on 12/6/11" or "surgery on...

    Did you mean "surgery on 12/6/11" or "surgery on 12/6/2010"?

    I went through almost the exact same thing. Mine was about the same size as yours but a little further back.

    After diagnosis in...
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    When to start cussing

    A 6 year old and a 4 year old are upstairs in their bedroom. The 6 year old asks, "You know what? I think it's about time we started cussing." The 4 year old nods his head in approval. The 6 year old...
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    Hi Knightly. While I am sorry you have cancer, I...

    Hi Knightly. While I am sorry you have cancer, I am happy that you are doing so well! While my original diagnosis was Astrocytoma, when it recurred and another hospital did the second biopsy, the...
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    Hi Rhianna. You are probably already in the...

    Hi Rhianna. You are probably already in the hospital. Be assured that we are thinking about you. I hope that all goes well and you will post again soon.
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    Between 1992 and 2005, I moved. Since in 2005 I...

    Between 1992 and 2005, I moved. Since in 2005 I was closer to a major cancer center, I did not travel the 3 hours to go to the same doctor and hospital. My old hospital was not able to find the...
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    It is hard to say without knowing the specifics....

    It is hard to say without knowing the specifics. However, with a lot of brain cancers, sleeping more and more is not a good sign :(
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    Hi mayfield park. I am very sorry about your...

    Hi mayfield park. I am very sorry about your mother's brain tumor. Do you have any details (type of cancer cells, grade, location)? In order to answer your question, I need at least the cell type. I...
  14. Thread: Throat Cancer

    by brainman
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    11,076

    Hi goose. I am sorry about your cancer....

    Hi goose. I am sorry about your cancer. Metastatic cancers with unknown primaries are not that rare. The problem is, what to do next? Whatever you do, you are taking your chances at this point. I too...
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    Hi, Katy's husband. Thank you for updating your...

    Hi, Katy's husband. Thank you for updating your wife's story. I am not sure what they mean by a malignant astrocytoma. I guess it means a grade II, Mine was also a grade II in 1992 and I am still...
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    Hi Melissa. I am so sorry about your cancer. One...

    Hi Melissa. I am so sorry about your cancer. One vital piece of information that you do not give is the grade of the tumor. My answer really depends on that detail. If is a grade II, your plan to...
  17. Oh, Pam, I am sooo sorry about this new...

    Oh, Pam, I am sooo sorry about this new development. Yes, about the only thing any of us can do it to take one day at a time. Somehow, it takes something like this to make us aware of that :(
  18. Thread: Meningioma

    by brainman
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    Hi kat. I am so sorry about your cancer. I know...

    Hi kat. I am so sorry about your cancer. I know very little about Atypical Meningiomas so cannot help you much. I do hope that others will be around soon.
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    Hi Manny. Welcome to the forum. I am sure you...

    Hi Manny. Welcome to the forum. I am sure you would rather not be here. Looking forward to reading about your journey.
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    I don't remember exactly how long it took me to...

    I don't remember exactly how long it took me to adjust. It seems to have been a couple of months. Caffeine helped some but not much because I have such a high tolerance to it. My job also required my...
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    Hi Kurt. I am so sorry about your cancer. The did...

    Hi Kurt. I am so sorry about your cancer. The did not do a biopsy yet?? That is the only way to be 100% sure of what you are dealing with. The good news is that if it is a low grade glioma, you could...
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    jefuchs, glad to here from you! It is wonderful...

    jefuchs, glad to here from you! It is wonderful that your wife is doing well :)
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    Good information! Thanks for the links.

    Good information! Thanks for the links.
  24. Hi cloudstar. I do not see where pbj or anyone...

    Hi cloudstar. I do not see where pbj or anyone else has deleted posts! We sometimes do delete posts for various reasons. You can read our rules to see all of them.

    Sorry for getting off topic....
  25. Thread: Idh1

    by brainman
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    Hi irishgirl. No, I have not heard of the IDH1...

    Hi irishgirl. No, I have not heard of the IDH1 mutation but I will do some research. Since the Human Genome project, they have found several mutations. Some are positive and others negative. Good...
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