A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Wow! Having a lot of experience with pancreatic...

    Wow! Having a lot of experience with pancreatic cancer, I read though your entire OP and had no inkling that you were heading towards pancreatic cancer until you mentioned it in your last sentence.
    ...
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    Thanks for checking in Ahmad. Your dad has taken...

    Thanks for checking in Ahmad. Your dad has taken some of the hardest treatments there are. The fact that it is working for him probably helps make it easier (symptom relief and psychologically...
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    Your age and sudden progression of symptoms do...

    Your age and sudden progression of symptoms do not point to pancreatic cancer, but perhaps something more suddenly onset.

    Let your doctor know if your pain levels track with eating. This could be...
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    FOLFIRINOX is a great first choice while you wait...

    FOLFIRINOX is a great first choice while you wait for the genetic test results. That may give you the best information on the right treatment for you.

    The lesions on your liver are probably your...
  5. Thread: Mom diagnosed

    by ddessert
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    Paul, sorry that your mom and family have to go...

    Paul, sorry that your mom and family have to go through this.

    It is hard to know whether that rise in CA19-9 is a good or bad thing. That’s just something we have to learn over time. You might...
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    No one can say for sure, but after 5 years or so,...

    No one can say for sure, but after 5 years or so, your chance of a recurrence is around the same as for a normal person. For a BRCA2 person, that is still 7X the average risk.
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    Alyssa, just based on your reported family...

    Alyssa, just based on your reported family history of cancer, perhaps you can also consult with a genetic counselor who can review that history and possibly give you some other feedback? If you are...
  8. I was going to say that some major centers have a...

    I was going to say that some major centers have a “senior adult” oncology group that might be useful.
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    But this is not why we are here.

    But this is not why we are here.
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    This sounds like a person that will not see a...

    This sounds like a person that will not see a doctor unless they are going to diagnose them with pancreatic cancer.

    A referral for a gallstone will go over much better with a doctor than a 35-year...
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    I had to visit a major cancer center (Moffitt in...

    I had to visit a major cancer center (Moffitt in Tampa) to get the Gem/Ox Treatment and even then I had to provide them with the evidence. You at least have the tumor report to back you up so...
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    I am no doctor but all of your pancreatic-like...

    I am no doctor but all of your pancreatic-like symptoms can be explained by gallstones which you do have.

    I would concentrate your doctors on the gallstones (perhaps they are getting larger?). In...
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    Gem/Ox may be the "easiest" of the platinum...

    Gem/Ox may be the "easiest" of the platinum combinations, but is still tough on the kidneys. She will want to have two functioning kidneys going into that, which is likely if she's been doing...
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    MRI Prostate Screening for High-Risk men

    The National Institutes of Health has a clinical trial for men at high genetic risk for prostate cancer. This is trial is for men without prostate cancer, ages 30 to 70, who have tested positive for...
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    Not sure what you’re looking for as you know we...

    Not sure what you’re looking for as you know we cannot diagnose you but you don’t say what else you’re looking for.

    I do know that if you list a crap-load of symptoms and ask a bunch of cancer...
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    MD Anderson is really one of the top places in...

    MD Anderson is really one of the top places in the country for pancreatic cancer and their advice could be valuable. However, my sense of their value to stage 4 patients is colored by patient...
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    Good points Semiramide! As one of the few 5-year...

    Good points Semiramide! As one of the few 5-year survivors of PanCan, I must walk a fine line between providing hope and dispensing reality.

    The reality for PanCan seems to be that patients with...
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    Dad passed away tonight

    Dad drew his final breath with his daughter and wife of 60 years by his side tonight. My brother and I were in the next room and we all said our goodbyes.

    Dad chose hospice care in the home just...
  19. If many of the women in your family are dying of...

    If many of the women in your family are dying of cancer, ask to speak with a genetic counselor to give you more clarity.
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    Environmental factors may also play a big role in...

    Environmental factors may also play a big role in cancer development. You will share the same environment as your family for a good portion of your life. It could be another smoker inside the same...
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    Try talking to the Patient Advocate Foundation...

    Try talking to the Patient Advocate Foundation
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    Thanks, Boonems. I vividly remember the HUS your...

    Thanks, Boonems. I vividly remember the HUS your sister endured and have warned several others with similar symptoms. I strive to make sure that her unfortunate experience was not in vain.
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    No change in size over 10 months is a good sign,...

    No change in size over 10 months is a good sign, but I would still not ignore it.
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    Thanks for the kind words, all. I learned so much...

    Thanks for the kind words, all. I learned so much from my previous co-moderator BobInBonita who was gracious enough to share much of his hospice experience with me for the year that he was there. I...
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    The nurse tells us it is a matter of days now for...

    The nurse tells us it is a matter of days now for my dad. All the immediate family is here now.
    He is still fighting and trying to figure out how to beat this, but his body betrays him.
    Thankfully...
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