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  1. I'm struggling with a low fat diet as well, due...

    I'm struggling with a low fat diet as well, due to gall bladder issues. Try experimenting with how much she can eat without problems. No pizza, heavy cheese, potatoes chips, etc unless in very small...
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    brigette, did you mean the two therapies: ...

    brigette, did you mean the two therapies: Folfirinox and gemcitabine/abraxane or gemcitabine/gemzar? I'm curious because I'm now resistant to gemcitabine/abraxane and would like to know of other...
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    I'm so sorry for your loss. It must have been a...

    I'm so sorry for your loss. It must have been a great comfort to your father having all the family together. It's good to hear the hospice staff were awesome. God bless.
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    So have you guys been taking folfirinox along...

    So have you guys been taking folfirinox along with cpi-613? Has that caused problems over that length of time of are you just cpi613 alone? I'm on this treatment and am curious.
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    When I was first diagnosed, I cut out tea and...

    When I was first diagnosed, I cut out tea and coffee. Later I found out both of these are beneficial for cancer patients especially for extra energy and adding fluids. There must be one of two that...
  6. Extraordinary life your father had. Thanks for...

    Extraordinary life your father had. Thanks for sharing with us.
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    Yen, I'm curious how that would work with...

    Yen, I'm curious how that would work with insurance or clinical trial with Olaparib. Could you share it you find out?
  8. I am doing well now - I'll work on an update more...

    I am doing well now - I'll work on an update more detailed.
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    David, I hope you and your family have some good...

    David, I hope you and your family have some good moments with your dad thanks to the treatments you were able to wrestle out of the staff there. What an honorable and loving family to follow his...
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    Jackie, I had treatment today and met the woman...

    Jackie, I had treatment today and met the woman I was telling you about - the stage 4 with mets to the liver, lungs and lymph nodes. She's an awesome person and is 12 years out now from diagnosis. ...
  11. Susanmac, if the mass of tissue is inflammation,...

    Susanmac, if the mass of tissue is inflammation, wouldn't the ca-19 reflect that by going up- just as what is happening? Let's hope for that. I have also read of pdac patients having a second...
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    David, of course you are doing the right thing...

    David, of course you are doing the right thing waiting for your dad to stabilize on this treatment. I'm just mad that he had to wait. I hope the best for him and I guess I am feeling relaxed about...
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    David, this is outrageous treatment - what your...

    David, this is outrageous treatment - what your dad is going through. I think all stage 4 patients are treated with similar prejudice but your dad's story is horrible. The time that he has had to...
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    What's up?

    What's up?
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    Yes. Not on folfirinox but with my first...

    Yes. Not on folfirinox but with my first treatment of gem,abrx,cis. Went from 124,000 to 146,000. I didn't freak since by that time I had read that this happens. After that it started dropping...
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    David and Jackie, I found him by googling...

    David and Jackie, I found him by googling "oncologists" in the Seattle area, plus had a friend who sees him. Here is a link to his website. http://www.lifespringcancer.com/our-practice/our-team/ ...
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    I'm with you wanting to know the outliers. I...

    I'm with you wanting to know the outliers. I have finally understood the good and bad of treatment at major centers. You get standard chemo or their clinical trials and that's it. Most oncologists...
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    David, I had the same experience with lab...

    David,
    I had the same experience with lab results giving a worthless "CA19 over 40,000" . Not sure why - probably a lab screw up? Regarding your dad's treatment schedule, metronomic treatment might...
  19. Thread: Update

    by jamiepat
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    slight shrinkage first ct but it continued. My...

    slight shrinkage first ct but it continued. My body did "acclimate" to the chemo after more treatments and it didn't seem as difficult. Also, get your dad some knee high pressure stockings if he...
  20. Thread: Update

    by jamiepat
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    Ahmad, make sure that the chemo infusion itself...

    Ahmad, make sure that the chemo infusion itself includes a before and after IV hydration around the cisplatin. This is really important. Also, to help with the swelling, I was given dexamethasone...
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    Depression and lack of energy can look and feel...

    Depression and lack of energy can look and feel the same. I know I was very low energy before diagnosis and looking back, this could have seemed like depression. Your wife may not have been...
  22. David, I'm sad that this has happened to your...

    David, I'm sad that this has happened to your father - two in a family shouldn't have to happen. And I'm also sad that after all the excellent help and advice you have given so generously, I have...
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    I'm also on Gem/Abrx. That is a nice drop in...

    I'm also on Gem/Abrx. That is a nice drop in Ca19. I would be very happy with that. Enjoy it and keep going!
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    Also possible that in pdac metastatic "type"...

    Also possible that in pdac metastatic "type" cells that will travel, grow in parallel with tumor cells from earliest stages, making metastases an almost certainty. Evidenced by clean (RO) resection...
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    Amazing! I'm happy for you. It's got to be the...

    Amazing! I'm happy for you. It's got to be the chocolate......hmmmm.
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