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  1. Recurring phlebitis 4 years after treatment for oligo 3?

    My ex-husband (and father of my son) was diagnosed with an oligo grade 3 in Nov 2014, in the right frontal lobe. He had the markers (1p19q co-deletion & IDH mutation). Had a successful (around 90%)...
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    Great news, very happy for you!

    Great news, very happy for you!
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    @NikosF, can I ask why you highly recommend the...

    @NikosF, can I ask why you highly recommend the ketogenic diet? I've read about it but am curious to get a personal perspective. My hubby's diet is crap, tons of sugar. I keep telling him that he has...
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    Hello. My hubby (also has an oligo, grade III,...

    Hello. My hubby (also has an oligo, grade III, had resection followed by chemo and then radiation) was to do 4-6 cycles of PCV. His neuro-oncologist stopped the vincristine midway into his 2nd cycle,...
  5. Thread: Stable

    by chouwife
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    As yes, the MGMT. My hubby is also "triple...

    As yes, the MGMT. My hubby is also "triple positive".
  6. Thread: Stable

    by chouwife
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    That's great news, thanks for sharing! If I...

    That's great news, thanks for sharing! If I recall correctly, your hubby has an oligo right? Like mine. He'll have his next MRI on April 8 and hoping for the best! What is IMRT, can you please remind...
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    Really interesting, thanks for sharing! I feel...

    Really interesting, thanks for sharing! I feel fortunate that my hubby was able to avail of genome sequencing (despite this not being the norm here in Thailand where we live). It was thanks to a...
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    Congratulations! You are truly an inspiration and...

    Congratulations! You are truly an inspiration and have been a big source of advice and support to all of us. Best wishes for continued good health!
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    Focused ultrasound treatment?

    I just read about John Grisham's new (and free for download!) book called The Tumor, about a brain tumor, and the supposed potential of focused ultrasound treatment. I've never heard about this, has...
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    Hi Debbie (I accepted your friend request...

    Hi Debbie (I accepted your friend request BTW)...thanks for the reply! How wonderful that your Keppra irritability and other issues have gone away after stopping the medication. My hubby can't stop...
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    Another thing to do - when we're at the point...

    Another thing to do - when we're at the point when we can (hopefully) lower my hubby's dosage, his neurologist said that an EEG can be done to check for any seizure activity/zaps in the brain in...
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    Hi Debbie, congrats on the clear MRI! My hubby...

    Hi Debbie, congrats on the clear MRI! My hubby has a right frontal oligo III. Had a good resection followed by PCV chemo and radiation. First post-treatment MRI was good. He has been on 1000 mg...
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    Happy to report that my hubby's first...

    Happy to report that my hubby's first post-treatment MRI (2 months out from radiation) happened this past weekend and looked very good. Doctor says the next MRI can be at the beginning of June....
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    Thank you so much for the feedback, everyone!...

    Thank you so much for the feedback, everyone! Hope that you and your families all have a restful and healthy holiday season.
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    How soon after radiation...?

    For those of you have experienced it or supported family/friends with it, I have two questions:

    1. When after the radiation did you/they have the first conclusive MRI?
    2. How soon after the...
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    My hubby did 3 1/2 rounds of intensified PCV (he...

    My hubby did 3 1/2 rounds of intensified PCV (he had to do at least 4 rounds but couldn't finish), before proceeding to 6 weeks of radiation. I'm happy to answer any questions. He was taking a stool...
  17. Thread: New growth

    by chouwife
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    What is pseudoprogression?

    What is pseudoprogression?
  18. Hi there! I'm very sorry to hear about your...

    Hi there! I'm very sorry to hear about your husband. Our story is sadly similar to yours...

    My hubby (now 41) also has an anaplastic oligo in his right frontal lobe. It was diagnosed last November...
  19. Thank you for your thoughts, GBMsibling and Lboy!...

    Thank you for your thoughts, GBMsibling and Lboy! His liver enzyme levels are much better now but the doctor prefers to not do the 4th cycle of the PCV for now and proceed to radiation. He will have...
  20. Update and some questions

    Hi everyone, I wanted to update you about my husband's ongoing treatment for anaplastic oligodendroglioma grade III. As noted above, we live in Bangkok, where my husband (will be 41 on Saturday!) was...
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    Just wondering when after radiation the scans can...

    Just wondering when after radiation the scans can tell us something, as you mention GBMsibling that the first follow-up scan after radiation will probably be inconclusive? My hubby will be starting...
  22. Hi PlsHelp20, welcome, and I'm so sorry to hear...

    Hi PlsHelp20, welcome, and I'm so sorry to hear about your girlfriend and about what she (and you) are going through. My husband was diagnosed with a grade 2 astrocytoma as well last November and had...
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    My husband has an oligodendroglioma in his right...

    My husband has an oligodendroglioma in his right frontal lobe and underwent surgical resection (got about 95% of it) back in November. Now he is undergoing PCV chemo and will then have radiation. Be...
  24. Hi, I guess your post is an old one, but I'd be...

    Hi, I guess your post is an old one, but I'd be happy to chat. My husband has an oligodendroglioma in his right frontal lobe and is going through chemo now (following surgery).
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    Very happy to hear!

    Very happy to hear!
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