A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. You do know that the median age of onset for...

    You do know that the median age of onset for pancreas cancer is 70? And that pancreas cancer takes 18-20 years to develop? And that 0.00001% of all pancreatic cancers are in 20-year olds? And that...
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    If the FOLFIRINOX was still working when he...

    If the FOLFIRINOX was still working when he stopped, 2/3 FOLFIRINOX may still be an option.

    PARPi have only been effective in patients in tumors with HR mutations) like BRCA1, BRCA2, PALB, etc).
    ...
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    My recommendation is no more exploratory stuff...

    My recommendation is no more exploratory stuff unless it is necessary for treatment. I get the "feeling" from researchers and doctors that putting more stress on the body weakens the immune system...
  4. If you look for survivor stories in places like...

    If you look for survivor stories in places like Let's Win PC or PanCan.org, you can find quite a few successes that you might gain hope and learn from.
  5. Thread: My new plan

    by ddessert
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    It sounds like you want to fight until the end!...

    It sounds like you want to fight until the end! There is a NanoKnife Surgery Warriors Facebook group to check out (say Hi if you’re there). I just posted a question about IRE/PET scans there based on...
  6. I think the Lewis Antigen test must be pretty...

    I think the Lewis Antigen test must be pretty specialized and I don’t know how to have it tested. I do understand that some people who don’t make CA19-9 are monitored through CEA or CA-125 but those...
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    Has he done genetic testing? This is giving many...

    Has he done genetic testing? This is giving many patients an idea of what treatments might be effective for them.

    If his scans show growth with FOLFOX, I’m wondering why he’s not moved on to...
  8. This question is often asked and you can check...

    This question is often asked and you can check out my Causes of CA19-9 video.
  9. This sounds like the standard plan (assuming that...

    This sounds like the standard plan (assuming that “Gemcitabine and Nanoparticle” is Gemcitabine/Abraxane). The second one is called FOLFIRINOX with a neutrophil stimulator (pegfilgrastim).

    Has she...
  10. In this forum, we stay with the clinically proven...

    In this forum, we stay with the clinically proven treatments and with CBD/THC there are none. There are many other sites that talk about this and the discussions belong there.

    For these kinds of...
  11. Graham, I’m not sure if this will help or not,...

    Graham, I’m not sure if this will help or not, but my observation in the Worried forum is that people there are much more stressed about pancreatic cancer than the people who actually have it. I...
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    I hesitate to say this to others, but I asked a...

    I hesitate to say this to others, but I asked a big-time oncologist about how people tolerate chemotherapy. So this is a generalization and not applicable to everyone, but they agreed that people who...
  13. Graham, your stated symptom: That is an...

    Graham, your stated symptom:



    That is an extremely short list of symptom that led you straight to pancreatic cancer.

    Here are some physical symptoms of anxiety:...
  14. While anxiety can cause all of these symptoms, so...

    While anxiety can cause all of these symptoms, so does depression which might be deeper root to be examined. You deserve to live - a life free from pain. Please call up a friend now.
  15. Really? You can think of no other causes for...

    Really? You can think of no other causes for these symptoms? Every one of your top symptoms is amongst the most common for hundreds of ailments, either physical or mental.

    Appetite loss,...
  16. Hi, the 20 years is info is still valid, but that...

    Hi, the 20 years is info is still valid, but that does not mean 20 years of symptoms before cancer. At age 64, that is not going to be too comforting for you.

    Just FYI, anxiety all by itself can...
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    So I think that timeline starts with the first...

    So I think that timeline starts with the first mutation of normal cells which is a long way from being cancer. Along the way, many mutations must pile up before a cell can become a cancerous. See my...
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    As long as you’re in Moffitt’s GI cancer center...

    As long as you’re in Moffitt’s GI cancer center and not their senior adult oncology center, you should be okay.

    The doctors seem to really like the chemo before surgery and think it is definitely...
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    My understanding is that mutinous adenocarcinomas...

    My understanding is that mutinous adenocarcinomas are almost always in female patients, but at least their prognosis is better than the more common ductal adenocarcinoma.

    You can check out my New...
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    I'm not your doctor, but they usually don't...

    I'm not your doctor, but they usually don't repeat scans closely together because not much changes over a short period of time. You've had other tests since then that did not find anything either.
    ...
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    I’m not sure what this means? All day, but yet 1...

    I’m not sure what this means? All day, but yet 1 or 2 hours.

    If you come to a cancer forum and ask if cancer patients have had some set of symptoms, you should always expect that the answer is...
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    I guess I’m stuck because I don’t know what...

    I guess I’m stuck because I don’t know what “BRCP” stand for?
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    You could try germline genetic testing. If you...

    You could try germline genetic testing. If you want to order it yourself, there are direct to consumer options such as color.com for about $250 out of pocket (no insurance). It is not a full genetic...
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    Having a BRCA2 mutation also demands a lot of...

    Having a BRCA2 mutation also demands a lot of vigilance. I’m finding that after getting the appointments set up and recurring on an annual basis has freed me from constantly thinking about cancer. It...
  25. Thread: article

    by ddessert
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    The battle for survival. Evolution is all about...

    The battle for survival. Evolution is all about the survival of the fittest (for the particular environment they live in).

    If you make the environment amenable to cells that are susceptible to the...
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