A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    Nearing the end

    Oct 25, 2007

    I cannot recall ever being this tired. Over the weekend, the bottom simply fell out of all my energy. My lungs heave, but I am not getting the oxygen I need. Standing up and walking...
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    chemo and radiation now

    Well, I have personally been down this road. My Whipple procedure surgery was on October 21, 2004, and I have been through first radiation and chemo together, and then round after round of chemo....
  3. Thread: GTX protocol

    by freeio
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    GTX protocol

    Well, I have been on the Gemzar and the Xeloda, but not the Taxotere. It would seem that there are a variety of mixes they can try, but unfortunately, pancreatic cancer does not routinely respond...
  4. Fellow survivor

    Hi Jim,

    It is good to hear from another one who is still with us. After my own three year PC survival, I know for a fact that this is a really big deal to make it this long. PC is messy bad...
  5. Thread: Linda Gale

    by freeio
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    Doctors vary a whole lot

    My doctors have been mostly pretty good, but there are a couple who were very odd. Perhaps you remember the scene in the throne room from the Wizard of Oz. "Ignore that man behind the curtain!" There...
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    radiation therrapy

    In my case, I went ahead with the radiation therapy (post-whipple procedure) and there were no adverse consequences. It was painless, and had as close to no side-effects of any of the treatments I...
  7. Thread: Linda Gale

    by freeio
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    Ready to go, but still working

    Hi Linda,

    Pancreatic cancer is unrelenting, and the outcome varies primarily by the timing and the route to the end. After three years of fighting this, I do not know how much longer this will go...
  8. Thread: Linda Gale

    by freeio
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    I'm there alrady

    Hi Linda,

    I have been in stage IV pancreatic cancer for a about two years now. It has spread to my liver, lungs, lymph nodes and ducts, peritoneum, and bones. For all of that I am still alive...
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    We shall meet again

    Loss of a loved one is very difficult. We would seem to wish that our relationships here could go on forever, but that is not how it happens. Some of us go on before the rest, and leave holes in the...
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    stents, bile ducts, and feeling rotten

    From personal experience, that blocked bile duct with its attendant backup of bile and production of biliruben is a nasty condition. I do hope that the new stent helps with that.

    Having said that,...
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    Keep the memory alive

    Pat,

    Thank you for reminding us of those who have gone before. Yes indeed, we shall meet again - but not yet.

    Best Wishes,

    Marty
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    Even with the best of care...

    Mac,

    I am so sorry to hear about your father. Pancreatic cancer is a difficult diagnosis, both to get right in the first place, and if that is the diagnosis, to do much about it. In my case,...
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    Hospice called in

    The spreading tumors are spinning off clotting compounds, and the blood clots in my legs, back, and now the arteries in my lungs are making life very difficult. I can barely breathe, and am going...
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    Could be

    While there is no one certain diagnosis of pancreatic cancer, yours does sound like there is a significant possibility. When someone with normally low glucose levels presents with suddenly high ...
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    Pat is right

    Pat is right. In many respects, it is easier to be the patient than the caregiver. As the patient, as a very happy Baptist, I am not worried about me. My future is assured. Rather, my concern is that...
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    Nausea

    I am very sorry to hear about your husband. Pancreatic cancer is a very difficult diagnosis, and one which has no upside. I was diagnosed three years ago, and while I am still alive and able to use...
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    Thank you for the continued support

    Nancy, In,

    Thank you for the kind words. I asked the Lord that He would allow me to keep my mind to the end, and so far, He has done that for me. The majority of forum members are caregivers,...
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    It is getting much worse now.

    Something went further wrong last night. It looks to me like more pulmonary embola have formed, or it has otherwise progressed. I now have problems breathing while just sitting down, with the oxygen...
  19. The reason

    On the one hand, you may be right that it is almost certainly pancreatic cancer. However, there is the possibility that it is something else, and the treatment would not be the same. To not do the...
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    on negative biopsies

    In my case all of the early biopsies came back negative for cancer too. This happens because the biopsy needles are small and easily miss the cancerous part. The first time that they were able to...
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    Note that rootsman sent me a personal message...

    Note that rootsman sent me a personal message pushing the same miracle cure. If it looks like advertising, and it quacks like advertising, it just may be advertising.
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    What to expect

    Lisa,

    Sorry to hear about your FIL's pancreatic cancer. This is a messy disease which almost never comes to a good outcome.

    Having said that, I am now three years from my initial diagnosis, and...
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    Further treatment delayed until I stabilize

    They had been considering putting me on a study drug (Ascenta's AT-11) but all of that has stopped, until I can overcome the pulmonary embolism (multiple embola all over both lungs). Until I...
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    treatment

    They let me out of UAB Hospital yesterday, and the treatment regeme is based on heavy doses of blood thinners. In this case they are using Lovelox and Coumadin. They also have me using a Combivent...
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    A parallel risk to watch for

    I have been dealing with pancreatic adenocarcinoma for about three years now, and during the last couple of months, the tumor markers have skyrocketed. This was not unusual by itself, but the tumor...
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