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    My fhnl diagnosis change my life for the better....

    My fhnl diagnosis change my life for the better. I was stage 4 but not symptomatic in 2013, ended up having chemo in 2017 due to also being diagnosed with aggressive HL so they treated both.

    I...
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    Hope you are doing well :)

    Hope you are doing well :)
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    I am currently following a ketogenic diet (ultra...

    I am currently following a ketogenic diet (ultra low carb, high fat, moderate protein) there is some evidence to suggest that this may help with some cancers.

    either way it is helping me lose...
  4. Thanks chaps, 16 months since I finished Chemo...

    Thanks chaps, 16 months since I finished Chemo now and feel like I have got years of life back :)
  5. it has been a little while but had my latest...

    it has been a little while but had my latest checkup yesterday - everything continues to be going perfectly!
  6. I had to keep refusing them when I went through...

    I had to keep refusing them when I went through my treatment as I never needed them, but they kept trying to get me to take them!
  7. well everything was in the green - all completely...

    well everything was in the green - all completely normal for a normal person again :) could not be happier.
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    fingers and toes all crossed for you

    fingers and toes all crossed for you
  9. Well it has been a year this week since I had my...

    Well it has been a year this week since I had my last treatment and I am in clinic this afternoon for my latest checkup - things have changed so much I forgot i had it booked whereas before the 2-3...
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    I think the question is could a 3 point belt be...

    I think the question is could a 3 point belt be used rather than a full harness?

    my answer would be that depends on how hard the car is being used and the likelyhood of rolling it. a 3 point belt...
  11. My goal after diagnosis was always to delay treat...

    My goal after diagnosis was always to delay treat for absolutely as long as long as possible, if nothing else this gives science the most time possible to come up with better treatment/ a cure.
  12. I kept getting a pain under my ribs and you could...

    I kept getting a pain under my ribs and you could actually feel it if you pressed your fingers in there
  13. I was diagnosed NHFL in 2013 after having a small...

    I was diagnosed NHFL in 2013 after having a small lump that frequently changed size for about 18 months. I had treatment in 2017 but for Hodgkins lymphoma that came on to a point where the treatment...
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    When I was going through my Chemo I left the...

    When I was going through my Chemo I left the house 6 times in 6 months to go somewhere other than the hospital, those were all within the first 2 months of treatment. We had barely anyone visit the...
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    sometimes is takes the body a little while to...

    sometimes is takes the body a little while to breakdown the dead tissue and make it all go away.
  16. Okay first of all from reading that you don't yet...

    Okay first of all from reading that you don't yet KNOW the hodgkins has actually returned yet...

    I think at 45 I'd be knackered from 12hr night shifts never mind 65 :)

    Right now he has a cough...
  17. The way I view this is that before diagnosis you...

    The way I view this is that before diagnosis you didn't really know that anything was wrong with you, or you didn't really know what it was.

    now you KNOW you have cancer so immediately your head...
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    since you posted about your head lumps I've had a...

    since you posted about your head lumps I've had a couple some up on my own head. Had to very much take my own advice and not freak out, a couple of weeks later and while not gone they are very much...
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    we need a like button in the forum. Chemo puts...

    we need a like button in the forum.

    Chemo puts your body through hell, some chemos are worse hell than others but they all f*** you up. Your body then has to recover and rebuild from that and as I...
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    Also don't forget that you lymph glands do swell...

    Also don't forget that you lymph glands do swell when you have an infection of some kind, so it could be a sign you are coming down with something, I had to deal with a very unexpected case of...
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    it is probably and most likely just a spot, your...

    it is probably and most likely just a spot, your follicles will all be starting to work properly again and some of mine certainly got a bit lumpy as my hair started to come back.

    Think about how...
  22. Thread: NHL follicular

    by simon_h
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    I was diagnosed with fnhl in 2013, nodes above...

    I was diagnosed with fnhl in 2013, nodes above and below the diaphragm. I didn't have treatment until last year, and only then because I also developed hodgkins as well.

    My goal was always to...
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    a 10 hour infusion sounds rough, best of luck...

    a 10 hour infusion sounds rough, best of luck with it fingers crossed it works for you.
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    Water, exercise and good clean non-processed food...

    Water, exercise and good clean non-processed food are the best way to get rid of the gook :)
  25. Thread: NHL causes?

    by simon_h
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    https://www.ncbi.nlm.nih.gov/pubmed/16878041

    https://www.ncbi.nlm.nih.gov/pubmed/16878041
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