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    Great video, summarizes a lot of the studies in...

    Great video, summarizes a lot of the studies in your subforum I've read! I'm certain we're headed for ART, will be seeing RO in 2 weeks. Husband may actually be getting radiation before the follow...
  2. Thread: New here!

    by AceVA
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    Glad you heard back and there was no...

    Glad you heard back and there was no upgrade!:smile:

    Sounds like we'll be a few weeks behind you on the RT schedule.
  3. That decipher was on a single biopsy core, .4%...

    That decipher was on a single biopsy core, .4% mets and 1% mortality. Waiting on the post-RP Decipher.

    I know there's a chance the surgery will have been curative, but every step so far has been...
  4. Interesting, our surgeon at CC (well, his nurse)...

    Interesting, our surgeon at CC (well, his nurse) offered, and strongly recommended decipher post-RP and said it would most likely be covered by insurance since it was pT3a. She said anything that's...
  5. I agree this study raises a lot of questions,...

    I agree this study raises a lot of questions, especially about the poorer outcomes from RT- they even say it's a novel finding, and it's a small N. Not going to read too much into that part until...
  6. Thanks for that response, though I'm now learning...

    Thanks for that response, though I'm now learning that PSMA doesn't do well with bladder adjacent cancer, and since that's where the positive margin was PSMA may not work. Fingers crossed his PSA...
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    I want to add my hearty thank you for all the...

    I want to add my hearty thank you for all the work you've put into the subforum! It's a treasure.
  8. It's not super clear, but it would make sense...

    It's not super clear, but it would make sense that anyone with higher gleason grades was selected to ART by their doctors. (Retrospective study after all) It's also very small numbers, and therefore...
  9. High volume G6 & Bladder Neck Invasion (& update)

    Seems like there's a few of us active right now with this pathology - and interestingly all younger men too IIRC.

    This article is one of the best I've found yet, and perfectly describes my...
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    How likely is it that it's contained? IE, what is...

    How likely is it that it's contained? IE, what is the chance of EPE on the MSK nomogram?

    We gambled and did surgery hoping it was contained, and it wasn't.

    While your husband is young, which...
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    I don't think this is a binary choice, random...

    I don't think this is a binary choice, random biopsy, or no biopsy. As others have pointed out, an MRI to identify potential problem spots is one option. Unfortunately they are most useful when done...
  12. Thread: New here!

    by AceVA
    Replies
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    I should clarify, the path report indicated the...

    I should clarify, the path report indicated the G7 was between 11-25% and the G6 was 76-90%, so not sure exactly how much in that range. But the G7 was organ confined, the bladder neck positive...
  13. Thread: New here!

    by AceVA
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    I think our husbands are twins!:shock: Early...

    I think our husbands are twins!:shock:

    Early 40s, ended up with pT3a large volume G6 tumor with bladder neck invasion. My husband did have a tiny bit of G7, but it was less than 25% of the tumor...
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    I agree with Djin, way too few surgeries done....

    I agree with Djin, way too few surgeries done. Sounds like you're headed to the right guy at MD Anderson, which is great.

    Re: shortening & ED after surgery, there's some good evidence that penile...
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    My just turned 44 year-old husband is two weeks...

    My just turned 44 year-old husband is two weeks post surgery. I'm in my mid-30s and we have a toddler, so I have a lot of sympathy for where you're at right now.

    They can't/shouldn't do the...
  16. Thread: Pathology is in

    by AceVA
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    I know nothing can be done in 90 days, but if ART...

    I know nothing can be done in 90 days, but if ART is recommended, we'd like to know in time to plan ahead, book the morning slot, etc.

    How did you get a PSA at 30 and 60 days?
  17. Thread: Pathology is in

    by AceVA
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    We apparently don't get to speak with the surgeon...

    We apparently don't get to speak with the surgeon again until his follow up appointment near the end of October when we do the first PSA check. Really baffled that they give us a path report with...
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    Do you have the full report from the biopsy? If...

    Do you have the full report from the biopsy? If so, add a summery of it to your signature. Gleason 7 means you're likely headed for treatment, but you may be able to take your time and consider all...
  19. Thread: Pathology is in

    by AceVA
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    Can you point me to the issue with bladder neck...

    Can you point me to the issue with bladder neck margins & continence? Can't say I've run across that. :(

    We knew from the MSKCC nomogram that there was a 68% probability of ECE, but given the low...
  20. Thread: Pathology is in

    by AceVA
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    Forgot to include the EPE + :( Lymph nodes...

    Forgot to include the EPE + :(

    Lymph nodes were negative, they took 12 and dissected 6.

    Nerve bundles were saved.

    Margin(s) involved <3mm, length of margin, 4 mm

    & positive margins on...
  21. Thread: Pathology is in

    by AceVA
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    Pathology is in

    And it is adverse. Not as adverse as it could be, but not good.

    Almost a third of the prostate was tumor volume - mostly G6, with a little G7, so at least there wasn't 8 & 9 in there?
    BNI+...
  22. Thread: New blood test

    by AceVA
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    To clarify, I was asking for those tests over a...

    To clarify, I was asking for those tests over a year ago when the first ever PSA test came back at 15.5, and the Uro was giving him week after week of antibiotics (I think 20 weeks in total) because...
  23. Fascinating, would love to see this same study...

    Fascinating, would love to see this same study done for each stage. I wonder if it holds true all the way down?
  24. Thread: New blood test

    by AceVA
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    The big question is, will Uros actually use it? ...

    The big question is, will Uros actually use it?

    I asked repeatedly over a year for one of the available advanced tests (PHI, PCA3, MiPS, or 4kScore) and was denied at every appointment.
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    There's a clinical trial of EPO at Hopkins, used...

    There's a clinical trial of EPO at Hopkins, used immediately pre & post RP! If that study gets good results it might be easier to talk your Uro into it. :smile:
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