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Type: Posts; User: dec0der

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    His blood platelet count went back up and is now...

    His blood platelet count went back up and is now at 99k. I doubt it was from giving him the kiwi's, but its going back up. From 50k on Monday to 99k today (Wednesday) is a nice jump in two days. Now...
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    Looks like you are correct. It seems he dropped...

    Looks like you are correct. It seems he dropped another 9000 points and his blood platelet is now at 50k. They want to retake his blood this Wednesday, i really hope it starts to trend upwards. ...
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    Flu season is over. It's OK to go have a meal...

    Flu season is over. It's OK to go have a meal at a restaurant if his WBC is in the normal range. Make sure food is cooked well. No raw foods.

    Google, Low-Microbial Diet Sloan Kettering. This...
  4. Yes, his dr is a neuro-oncologist. We had a...

    Yes, his dr is a neuro-oncologist. We had a follow-up visit with him yesterday.

    My Dad just completed his 12 week chemotherapy cycle and the onc wants him to do this additional round of chemo as...
  5. Even though the MRI is clear the neuro-oncologist...

    Even though the MRI is clear the neuro-oncologist wants him to go for a round of "Cytarabine" with "Dexamethasone". Outpatient IV, 2 days per week for only 1 week. then in a few weeks another round....
  6. We are home now. Dad has completed his 12 week...

    We are home now. Dad has completed his 12 week chemotherapy and is in remission/cancer free. We do not have to go for immune therapy, but we do need to do a few more outpatient chemo sessions. ...
  7. I am a full timer and have the required hours. My...

    I am a full timer and have the required hours. My job is saying my 12 week FMLA period is over. Plus I'm with the company 11 years, not that it matters.

    I will call HR tomorrow and request an...
  8. Lot going on meaning.... I only have 2 days...

    Lot going on meaning....

    I only have 2 days of FMLA left.

    This means I need to make a decision. Either try to get an FMLA extension which I believe there is no extension available, request a...
  9. Hi all, I am here again at Sloan-Kettering for...

    Hi all,

    I am here again at Sloan-Kettering for our last treatment. When he clears in a few days I believe they will perform a lumbar puncture and MRI of brain to confirm he is in remission I...
  10. His last time in he cleared in 5 days. Now were...

    His last time in he cleared in 5 days. Now were going in again for another round. What did you do after your chemotherapy treatment? Did you go to immune therapy? Use Neulasta onpro? He is not...
  11. Funny how you mentioned that your husbands level...

    Funny how you mentioned that your husbands level went up. They just told us his level went up 10 points, from 140 to 150. Im so frustrated right now you have no idea. I feel like throwing something. ...
  12. Been here since last Saturday he still isnt...

    Been here since last Saturday he still isnt clear. MTX level is 140 today, Monday March 5th. Frustrated, exhausted and worried. His creatine levels in kidneys is still 1.5 and stable. Ultrasound...
  13. Now they just brought him to ultrasound for his...

    Now they just brought him to ultrasound for his kidneys. Hope they arent damaged.

    His creatine level is 1.5, I believe it should be 0.5
  14. Still here at sloan. He is clearing a little...

    Still here at sloan. He is clearing a little slower, so we're telling him to drink more water. He usually clears in 3 days. Today is day 4 and his level is 700. Yesterday it was 1300. Dr wont...
  15. MRI showing 99% of cancer gone. Chemo team...

    MRI showing 99% of cancer gone. Chemo team thinks he may need 4 more treatments. Dr will confirm tomorrow. We have been here at Sloan-Kettering since Saturday, waiting for him to clear the...
  16. Things are going well for a change. My father has...

    Things are going well for a change. My father has improved dramatically. No more walker, etc. Agitation is gone too. No more sun downing. Went for Rituxan treatment yesterday and now going back for...
  17. Hi Mary, Yes, he got more MTX last week and...

    Hi Mary,

    Yes, he got more MTX last week and just cleared, he is home now. This week is another round of Rituximab via out-patient. Then he goes back for in-patient MTX & Procarbazine. We will be...
  18. Understood, I didn’t word it properly. My Bad. ...

    Understood, I didn’t word it properly. My Bad.

    He took his first 6 hour treatment of Rituximab today and it all went very well so far.
  19. They didn’t mention it, but it seems like its...

    They didn’t mention it, but it seems like its mostly from the tumors. I take him tomorrow for his blood work and Rituximab treatment. This will be an out-patient visit. I had a few aides come by...
  20. They discharged him on the 15th. I got the stair...

    They discharged him on the 15th. I got the stair lift installed the day before. Right now he is on Dexamethasone to reduce brain swelling and Thorazine to calm him down, plus his daily high blood...
  21. Mary, he will receive the chemotherapy every 2...

    Mary, he will receive the chemotherapy every 2 weeks for 12 weeks. I think they will try again tomorrow with the Rituximab. I also had a stair lift installed in our home today, this way it will be...
  22. So some good news on the chemo front. Chemo is...

    So some good news on the chemo front. Chemo is working and shrinking Dads lymphoma brain cancer. The bad news is they see a new spot of cancer in the brain.

    Will see what they do next. Tonight...
  23. They want to give him an Aortic angiography...

    They want to give him an Aortic angiography tomorrow to rule out Aortic dissection and will also give a lumber puncture. His pH is low 7's today so they gave him the Leucovorin via IV today and...
  24. Things are so crazy, I feel like I am in a bad...

    Things are so crazy, I feel like I am in a bad dream.


    They still need to clear him for the CT Scan with IV Contrast for the abdominal aneurysm to make sure its not Aortic dissection. They keep...
  25. So they inserted a PICC line in his arm...

    So they inserted a PICC line in his arm (peripherally inserted central catheter). They couldn't give him any chemo today as his Aorta is widening and want to check his abdominal aorta aneurysm as it...
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