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  1. Thread: Wait Time

    by Chaase
    Replies
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    9,885

    My dx has now been going on 7 months, initially...

    My dx has now been going on 7 months, initially we thought it was neurological due to the symptoms present, then was told a bio marker was present for gynecological, and during surgery 3 months later...
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    Certainly is, I will be getting more scans done...

    Certainly is, I will be getting more scans done at the end of March to see if anything can be found. Until then, I will just keep plodding along waiting :)
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    Saw the GP - all of my results & tests are going...

    Saw the GP - all of my results & tests are going to the medical panel. I have also had more bloods and have to do a 24hr urine analysis.
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    Confused as hell... After advice on what to do next

    Hi all UPDATE:

    2nd Laparoscopy was done on the 28th December, recovery has been pretty good.

    I got the Cytology report sent to me today in prep for the Dr appt tomorrow. I'm still waiting on a...
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    Biopsies clear. Contrast CT ordered. Found a...

    Biopsies clear.

    Contrast CT ordered. Found a 4cm Cyst that has previously not been detected.. Gynae hasn't even said anything about it after doing my oophorectomy on the left!

    I wont know if...
  6. Sorry to hear they cant work anything out. ...

    Sorry to hear they cant work anything out.

    Have you looked at Fibromyalgia. I have it too and it is exactly as you describe. Call the Rhumy again and ask if they think it may be a possibility or...
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    Endoscopic US showed an ulcer at the CO Junction...

    Endoscopic US showed an ulcer at the CO Junction of my stomach. Biopsies taken and everything looked normal.

    A follow up with my Gyno surgeon today:

    "Yes, you have it, we don't know what or...
  8. So sorry to hear this :( Rational thoughts...

    So sorry to hear this :(

    Rational thoughts are needed...

    The Dr's not telling you what stage he has may be because they know there is no point. Treatment is most likely not going to work or...
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    No news is good news huh? that is until you just...

    No news is good news huh? that is until you just cant take it anymore. it has been 6m and still cant decide if I do or don't. I am getting an endoscopic ultrasound to biopsy the stomach, pancreas...
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    Thank you :) I am in Central Coast,...

    Thank you :)

    I am in Central Coast, Australia. Not too far from Sydney so I am quite lucky that I can choose my specialist from either location. So far, all of my specialists have been the top of...
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    Metastatic Adenocarcinoma - CUP.

    Hi all,

    Unfortunately after a long 6 months of being poked, prodded, told that what I am feeling and my gut instinct is wrong, I finally have an informal Dx.
    Informal because it is from the...
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