Type: Posts; User: abeucher
We have a follow up tomorrow to monitor last months results. It also has been five years since the bone marrow transplant and just over five year diagnosis. James seems to be doing well so I don’t...
Yes. Check with your oncologist. If anything, it should ease your mind. Perhaps your having pain from the cold weather. My husband has some arthritis from treatment and his dr just told him the cold...
ClonoSeq came back negative. Fantastic news on our Anniversary. They will monitor the other indicators to be sure he remains in remission.
Hello Brucecav - James was having pain in is lower back. They ran all the usual labs but didn't see any leukemia. They continued to observe with a CT scan and could see something but were not sure so...
9 month post CAR T biopsy reveals no leukemia however the PCR test shows 0.00050 Philadelphia chromosome. We are waiting for ClonoSeq results to confirm or deny the PCR results. We should hear...
Thank you , Mary and congratulations to you! Po18guy, you’re 100 percent correct and thank Hod for the ability to complain.
Today’s biopsy went well. I did see some lab work that o haven’t seen...
Po18guy - Steroids definitely helped. I watched a documentary years ago about a man that had the same diagnosis as James. It was called First In Human. Anyway, they were so disappointed when they had...
Monday will be James’ 9 month post CAR T bone marrow biopsy. We have been enjoying our time together. We haven’t been to Moffit in a few weeks and all seems to be going well. Still dealing with a low...
My husband has been treated for ALL at Moffitt since 2014. Over five years with Dr Bijal Shah. Yes, ALL and he’s in remission.
Thank you very much
Hello Johnr - I tried to find the program you are referring to on BBC but what I found is that it isn't available anymore. I could only view the trailers. I really wanted to see it.
James is...
I would say that the biggest differences are neurotoxicity did not happen when my husband has his transplant in 2014. Also, my husband's WBC was 0 during transplant and with CAR T , his counts didn't...
clonoSEQ results are in, there is no evidence of cancer. : )
clonoSEQ definition:
The clonoSEQ Assay measures minimal residual disease (MRD) to monitor changes in burden of
disease during...
6 months Post CAR T
Yesterday we received the results from James' bone marrow biopsy from July 29th. " No morphologic evidence of B lymphoblastic leukemia." Yay! We have not received the flow or...
I hope you both are doing better.
Brucecav , I hope you enjoyed Disney. You were about and hour and a half from us.
Hi Brucecav! I am sorry to hear about the nodules - by now, I'm sure you've seen your dr. I hope all went well and you are getting the care you need.
My husband is doing really well. He went...
Happy 4th Birthday po18guy!
Hello IndyLou
We are a few blocks from the gulf in Pinellas County so we feel the gulf breeze here too. It is extremely hot right now. Fortunately, we have A/C , the gulf, and a pool and we...
Hello fighterm - My husband is 5 months post CAR T for ALL PH positive B cell leukemia trial - ZUMA 3.
I have a post about his CAR T journey on this forum. Listed as "CAR T"
5 months post CAR T ZUMA 3
Today was James' 5 month post CAR T check up. His labs were good and it was a quick visit. I'm not sure if its delirium, but he still talks out loud and doesn't realize...
IndyLou, No. Not yet. Because his immune system is so low, we have not been able to travel. Hopefully this fall. I imagine it will depend on the weather.
James seems fine today. It certainly has...
Day +129 (Monday)
James went in for his check up Monday morning. He was also scheduled to start monthly Pentmadine treatments. Shortly after treatment started, James began choking and then he...
Day 118
Hello. We've had a few weeks off (from apts) and everything has been good. We haven't been able to travel. James' dr wanted us to stay close unless we had a place to go for labs and since...
Day 101
Last Wednesday, James wasn't feeling well. He was having a lot of pain in his legs. He was sick early in the morning Thursday but we attributed it to the dose of neupogen. By Friday...
I have had concerns myself about delirium but his doctors never mention it. He is detailed about what he sees and , yes bizarre is a good word to describe it. Mostly, shapes and figures. Very odd. We...
