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    Just learned that car T cells can be done on your...

    Just learned that car T cells can be done on your donor t cells if you had a allogeneic stem cell transplant. That's amazing.
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    Car T cell coverage is expanded

    Japan has negotiated the price with Novartis. Canada is negotiating with Novartis too. The US extended the coverage for medicare.
    ...
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    CT result after 6 cycles of RCEOP

    It shows a slight progression from 2 months ago when I had a CT after 3 cycles. My biggest tumor now is 6.1 cm in the chest (originally it was 15 cm). My onc is on vacation till beginning of Sept....
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    Thanks for asking. My lymphoma is very old. My...

    Thanks for asking. My lymphoma is very old. My first lump was found 40 years ago. Luckily, it went into spontaneous remission for 14 years, then I had dlbcl in the same spot. After chop I was 15...
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    I just checked some trials for FL in Canada and...

    I just checked some trials for FL in Canada and there is one recruiting now for a new bispecific antibody, amg 562 in Toronto.
    https://clinicaltrials.gov/ct2/show/NCT03571828
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    I just checked some trials for FL in Canada and...

    I just checked some trials for FL in Canada and there is one recruiting now for a new bispecific antibody.
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    Po18, blinto is not just a usual antibody. It's...

    Po18, blinto is not just a usual antibody. It's bispecific. It binds to cd19 on a lymphoma cell and also binds via the second arm to CD3 on T cell. This way it brings cytotoxic T cells to lymphoma...
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    PBL, good answer. I was comparing it to car T...

    PBL, good answer. I was comparing it to car T cells which are even more expensive.
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    Is there any update on the further treatment and...

    Is there any update on the further treatment and results?
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    Thanks. Why is it not used for lymphoma? I see...

    Thanks. Why is it not used for lymphoma?
    I see that experience with it is very limited.
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    Blinatumomab a bispecific antibody

    I am wondering if anybody had this antibody and what was your experience.
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    Never heard of d dimers in connection with...

    Never heard of d dimers in connection with lymphoma. They are the product of blood clots being dissolved. It might be that lymphoma damaged some blood vessels and they made blood clots.
    Are they...
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    My first lump in the lymph node was discovered 40...

    My first lump in the lymph node was discovered 40 years ago, it went in remission spontaneously, then I got dlbcl in the same lymph node 14 years later, treated with chop, then I got Follicular 15...
  14. I am now in cycle 4 of 6. My first cycle was the...

    I am now in cycle 4 of 6. My first cycle was the most difficult so far. My blood pressure dropped to very low level so I could not get up from the bed. I was better prepared for the next cycle I...
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    Yes, I am happy that my cancer responds. I was...

    Yes, I am happy that my cancer responds. I was worried because I had several previous treatments. After each treatment the cancer can become drug resistant, so i was concerned. The problem is that I...
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    I can drink a lot of chicken broth , it's my...

    I can drink a lot of chicken broth , it's my savior during chemo. I drink also a lot of water with berries, candies or cheese. I start miralax a day or two before chemo with Zofran. Works fine.
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    Went to a dermatologist. He said it's not a...

    Went to a dermatologist. He said it's not a lymphoma, nor allergy, nor infection. He cauterised some pimple looking rash and some small patches. Said to come back in one month. He refused to do a...
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    Thanks. On Monday I have a CT scan, then in a...

    Thanks. On Monday I have a CT scan, then in a week I have my next appointment with my onc. Maybe she will send meto see a dermatologist.
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    Thanks. It looks like the rash is less inflamed....

    Thanks. It looks like the rash is less inflamed. I started the third cycle of chemo and I'm getting iv hydrocortisone and oral prednisone and Benadryl. I am wondering why it's getting better so...
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    Thank you for your suggestions. I will definitely...

    Thank you for your suggestions. I will definitely try Benadryl. I started a hydrocortisone cream. Interestingly they give me hydrocortisone infusion every time before my rituximab injection. They...
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    Thanks. Hopefully it's not lymphoma. I was so...

    Thanks. Hopefully it's not lymphoma. I was so disappointed yesterday when I found the rash, as I am in the second cycle of treatment. BTW, how fast the lymphoma rash spreads on skin? I though it was...
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    Red rash on the head

    I am in the second cycle of the rceop regimen for partially transformed follicuar lymphoma. I lost my hair and discovered red patches on the back of my head. Can Follicular lymphoma spread like...
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    Lymphoma clinical trials results

    https://www.fiercebiotech.com/research/novel-two-drug-combo-teaches-immune-system-to-attack-cancer
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    Interestingly, the glioblastoma patients can be...

    Interestingly, the glioblastoma patients can be organ donors. Even though GB normally does not metastasize outside the brain the cancer cells and stem cells are circulating. But due to the shortage...
  25. I am in the first week of the first cycle. I was...

    I am in the first week of the first cycle. I was ok for the first 6 days, but today was very hard on me. My blood pressure was so low that I could not get up from the sofa. I had also abdominal pain....
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