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    Just decided to check in....prayers that itís not...

    Just decided to check in....prayers that itís not a recurrence or even a meningioma. I want you (and of course everyone) to beat this monster. You give us all hope. So Iím glad I checked in so I can...
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    Thank you to all of you from the bottom of my...

    Thank you to all of you from the bottom of my heart!
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    They donít think it has spread beyond the...

    They donít think it has spread beyond the prostate, however the numbers are baffling. (And scary). The doctors all feel like he will need to remove prostate, but they wonít know if the scans arenít...
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    PSA over 100

    My brother-in-law goes to Mayo for physicals. He is currently 66 years old. He was told he could come less frequently than annually since his health was very good, so it was 3-4 years since his last...
  5. Thread: No regrets

    by maresimpson
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    5,202

    Dear Peggy, I am so sorry. We just lost my...

    Dear Peggy,
    I am so sorry. We just lost my brother on 8-19. I know how you are feeling. I am so terribly sorry the end was bad. I hope that somehow, some way that the place he is in know makes that...
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    Dear Mccindy, Would it be wrong to have your...

    Dear Mccindy,
    Would it be wrong to have your next MRI sooner than October? It might be something that eases your mind, especially if they find nothing. Otherwise your mind may take you to places...
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    Wow I cannot believe it will be three years. It's...

    Wow I cannot believe it will be three years. It's was not long after that I joined the forum. My brother had his first symptoms 3 years ago on August 18. He is in hospice care at my mother and...
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    I still think that perhaps we are moving in the...

    I still think that perhaps we are moving in the right direction. Isn't it ironic that something bad could be used for good!? Makes me think that GBM will end up being cured by mosquito venom! I...
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    Thank got it was operable! Although my friends...

    Thank got it was operable! Although my friends son had a very good result with an olio-astro that was inoperable using proton radiation. Let's hope it doesn't return this time. Hope you are getting...
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    One thing we tried lately for my bro was...

    One thing we tried lately for my bro was cannabinoid oil pills. They are derived from marijuana, but have none of the "high". After taking one at night my brother woke up and actually walked without...
  11. Thread: Boring

    by maresimpson
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    15,342

    Nikos, I am so happy for you. I'm not on often,...

    Nikos, I am so happy for you. I'm not on often, but I always search you to see how you are, because you give us HOPE! I could never convince my brother and his wife to add the supplements and make...
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    Dear Vicki, We are on tandem roads. I haven't...

    Dear Vicki,
    We are on tandem roads. I haven't posted in a while. My brother is in his 3rd year with GBM. He started having bowel and urinary issues. NO said it was prostate. My sister and I got...
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    What a good, yet hard topic. My brother...

    What a good, yet hard topic. My brother vacillates between stopping all meds and "bringing it on" to use his words, and to hanging in there and pushing forward, hoping for a miracle of remission. I...
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    catching up...

    Dear all,

    I was catching up with old posts and thought I would post an update. Had to laugh about the confusion as to GBM's sex - I always assumed you were a girl. I saw Scott thought you were a...
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    Dear Josephine, I am so excited for you and...

    Dear Josephine,

    I am so excited for you and your husband. We tried to get my brother in the Tocagen trial, but his regrowth was too large. (it was in a circle around the original tumor). I had...
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    We thought about environment. I think besides the...

    We thought about environment. I think besides the diet soda, the eating issues and stress were the factors. They haven't been in contact for over 20 years. They were together about 10-12. My brother...
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    Panic attacks and avastin

    Hi everyone!
    My brother is still stable and on avastin for about 6 months. His cognitive skills
    Have definitely gotten worse, but his scans show stable. His ability to read has gotten worse and...
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    Dear Irish, So happy to hear about 3 years. I...

    Dear Irish,
    So happy to hear about 3 years. I feel like I read somewhere that the longer you're good the better your chances of living longer become. I hope that was understandable! Anyway, I hope...
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    Gazza, We waited to see if my sister in law...

    Gazza,
    We waited to see if my sister in law would take the bull by the horns with her husband's (my brother) tumor. She didn't and we missed out on a really good clinical trial because his tumor...
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    Mccindy, I think that the holidays are hard...

    Mccindy,

    I think that the holidays are hard when you have been thrown a curve ball like a brain tumor! And a new house doesn't help, because there are no memories in it of prior years celebration....
  21. Thread: Holidays

    by maresimpson
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    4,556

    Nikos, So GLAD that your scan is clear! I...

    Nikos,

    So GLAD that your scan is clear! I lost a friend in Lake Forest last Wednesday from a GBM as well. Attended the memorial tonight, which was lovely, but because my brother has a GBM it was...
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    They upped my brother from 2000 to 2500. He was...

    They upped my brother from 2000 to 2500. He was in a constant tonic/clonic state even with atavan. Finally they put him out fully and it stopped. I feel so lousy for him. He can't read at all and he...
  23. Thread: Stable MRI

    by maresimpson
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    I've been off the grid. Happy news!

    I've been off the grid. Happy news!
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    I noticed mccindy is on 4000mg keppra. My brother...

    I noticed mccindy is on 4000mg keppra. My brother is on 2000 (1000 2x a day) is there a "normal" amount of keppra? They are talking about raising him to 2500 and I'm thinking gosh is that enough? If...
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    Dear Sib, Thank you so much for getting back to...

    Dear Sib,
    Thank you so much for getting back to me! I am so glad to have an idea of a timeframe. Everything that you read on the Internet re seizures makes one think you bounce back in a day. I want...
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