A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Thread: Car t

    by johnr
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    11,595

    Hi if the programme is ever shown again I will...

    Hi if the programme is ever shown again I will try to download it and will see how it may be shared as it was really good and insightful. Fingers crossed that things continue to improve and settle...
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    Keep looking for positives in life when the...

    Keep looking for positives in life when the doubts creep up it may help to, where here listening and supporting you, you can do this
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    we like that keep at it and your new approach...

    we like that keep at it and your new approach will work for you
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    Hi Josh many people have posted about raised...

    Hi Josh many people have posted about raised nodes in the neck and collarbone region on the sites I visit (over the years) and very few turn out to be lymphoma, your remission is a positive which as...
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    Josh if it is HL relapsing then the nodes will...

    Josh if it is HL relapsing then the nodes will grow and you will quickly know that you need to contact your doctor so basically waiting a while to see what happens will not change things but will...
  6. Hi I have moved your post to the worried forum...

    Hi I have moved your post to the worried forum due to you not having a lymphoma diagnosis, if the biopsy that the doctor has planned is diagnosed as lymphoma then we will move your post again. At...
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    Did you read chemoman's advice about worrying and...

    Did you read chemoman's advice about worrying and anxiety?

    I used the magic button and sorted this for you, posts deleted, as for rchop working, the are lots of us about now who have benefitted...
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    Your feelings are totally understandable and good...

    Your feelings are totally understandable and good that your call prompted some action, as I said earlier sometimes you have to be pro active so make sure you keep the "wheels well oiled" and chase...
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    Hi sorry to see you feeling the need to post, I...

    Hi sorry to see you feeling the need to post, I had a blood cancer so cannot comment on the likelihood of your husbands situation other that to advise, pick up the phone and call the doctor, explain...
  10. Thread: Car t

    by johnr
    Replies
    104
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    11,595

    From watching a programme in the UK following 2...

    From watching a programme in the UK following 2 patients through treatment I would say the neurotoxicity is the massive difference and some of the issues that develop as part of that,
  11. Thread: Car t

    by johnr
    Replies
    104
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    11,595

    great news and makes those dark days just...

    great news and makes those dark days just memories on the road to success
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    1 year is a good milestone lets hope the next 12...

    1 year is a good milestone lets hope the next 12 months are uneventful and dominated by daily living and family life
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    Great update and long may it continue as for the...

    Great update and long may it continue as for the coronary calcification one has to ask was it really there in the first place on the previous scan.
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    Josh first its really important you do follow up...

    Josh first its really important you do follow up with the therapist don't turn down the chance to bring some normality back into your life.

    As for your back do some core exercises and keep them...
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    Josh given that then do follow Po's advice as you...

    Josh given that then do follow Po's advice as you need help to break that "cycle of thought" the other trick I used in the early days was to always look to find a positive to focus on so that the...
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    Josh another thought that may help especially as...

    Josh another thought that may help especially as you are heading to 5 years, the risk of a secondary cancer is there we all know that, but its not a large risk and it is way down the road, so try to...
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    Good to see you are able to sort things in a...

    Good to see you are able to sort things in a round able way, if you need a good hermit's cave Barry and I can give some good recommendations for the NE of England, though the flight might be a...
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    Hi Josh, learning to trust your body again and...

    Hi Josh, learning to trust your body again and finding coping strategies to deal with relapse worries are well discussed over the years and each of us has to find what works for us and at times that...
  19. Hi again and sorry to read she now has a...

    Hi again and sorry to read she now has a diagnosis, I did wonder if it may be HL, treatment is standard with ABVD and most get a good response at the mid point scan and over 90% now make full...
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    your welcome

    your welcome
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    Hi done that for you as it was easier than...

    Hi done that for you as it was easier than explaining, if its wrong tell me how you would like it wording

    John
  22. Hi again, at this stage it could be anything or...

    Hi again, at this stage it could be anything or nothing and whilst we can second guess, that's all it would be a guess, the scan will give them a clearer picture and the are a number of non cancerous...
  23. Whilst the CT scan was more about the neck (I...

    Whilst the CT scan was more about the neck (I assume from your first post) its probable she has had a neck and chest scan or they may have gone down to the abdomen, worth asking what was done, as the...
  24. So what was the update from the ultrasound has it...

    So what was the update from the ultrasound has it led to a referral to a haematologist? also just in case its your mother in laws cancer related incidents that is driving this worry, try to manage...
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    Hi Riley, sorry to see you have health concerns,...

    Hi Riley, sorry to see you have health concerns, the are around 80 different sub types of lymphoma and typing it can be a challenge in some cases, whether thats the case with your nodes only time...
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