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Type: Posts; User: Glass0195

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    Came off the trial on 4/9/19. I had a core...

    Came off the trial on 4/9/19. I had a core needle biopsy on the node that wouldnít go away. Seems there were about 15% B cells in the sample. My blood test for EBV was also positive. I didnít...
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    Had a PET after eight weeks on the trial drug...

    Had a PET after eight weeks on the trial drug Cerdulatinib. I had complete response on the nodules that were in my lungs. The skin lesions on my tailbone are improved dramatically. Not totally gone...
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    So far on the trial drug Cerdulatinib for a week...

    So far on the trial drug Cerdulatinib for a week and itís very tolerable. Had my one week visit yesterday and bloodwork was all good. Pancreatic enzymes are high which is expected but if no symptoms...
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    I had my PET last week and the results are in....

    I had my PET last week and the results are in. Just a few active nodes. Groin and lungs. Plus my skin lesions. Doctor want me to do a trial of cerdulatinib. Has anybody been on that trial? Itís an...
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    Hi there ptclguy. Reading your post after...

    Hi there ptclguy. Reading your post after searching for Cerdulatinib. I have AITL. CHOP in 2015 put me in remission for two years. Relapse took me to Brentuximab which seemed to work but I have now...
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    Results of skin biopsy on my tailbone came back...

    Results of skin biopsy on my tailbone came back positive for AITL. They didnít biopsy the one behind my knee. They assumed the same as tailbone. The rash on my elbows are a benign reaction to...
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    After relapse the lymph node they removed was...

    After relapse the lymph node they removed was prominent CD30. Thatís why we went with Brentuximab. All the others you mention have been discussed too. My blood is fine. Has been all along through...
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    Bruise like spots after Brentuximab for AITL

    I have AITL. Treated with CHOP. Remission Almost two years. Relapse treated with Brentuximab. Successful???? Unclear at this time. I had a PET after six treatments and it wasnít clear. I had a...
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    After two rounds of brentuximab I'm having some...

    After two rounds of brentuximab I'm having some pain in my large muscle. Thighs. Gluts. Arms shoulder to wrist. It seems to be worse at night. Like restless leg syndrome. Walking and moving doesn't...
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    Decided today to go the route of Brentuximab to...

    Decided today to go the route of Brentuximab to combat a relapse of AITL. I've been told about the side effect of neuropathy. Hoping to hear from others about their experience with this therapy.
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    Is the subtype of AITL determined by the markers...

    Is the subtype of AITL determined by the markers that are present? That's interesting but totally makes sense when thinking of the varying symptoms. One lady in my Facebook group has been in...
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    Hi there. I have read your bio before on this...

    Hi there. I have read your bio before on this site. It provides inspiration for sure. I know I am lucky in the regard that I haven't been hit full blast with this cancer. It seems in my body it's...
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    Hoping for options after relapse of AITL.

    Hello. New to site so hope I'm using it right. I'm a 55 year old female first diagnosed in October 2015. My original diagnosis came after a sore throat that would not go away and a small lymph node...
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