A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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    PET scans are normally done to stage lymphomas -...

    PET scans are normally done to stage lymphomas - after biopsy. So, they are correct there. Neither the PET nor the CT will diagnose anything. The CT will guide biopsy and if a malignancy is...
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    Do not allow possibilities to affect you. You'll...

    Do not allow possibilities to affect you. You'll never leave the house! All things pass, and so will the poor experiences that you have had so far. No one will come to you, so you are going to have...
  3. Still, your lungs are being judged on the basis...

    Still, your lungs are being judged on the basis of what is essentially a high-tech photograph. "Slightly hypermetabolic" may only mean that it is an area of healing - which also has elevated SUV...
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    Sorry to hear this, Marian. But it is written...

    Sorry to hear this, Marian. But it is written "Blessed are those who mourn, for they shall be comforted" Matthew, chapter 5.

    Was this group sponsored by the hospital or some other organization? i...
  5. Sticky: Do you have a connection to a cancer, either by...

    Do you have a connection to a cancer, either by diagnosis or as a caregiver?
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    I have had various ling nodules over the years...

    I have had various ling nodules over the years and most likely have several right now - having just completed 5 weeks of pneumonia. All of mine resolved on their own.
  7. Since lung nodules are so common, and do take...

    Since lung nodules are so common, and do take some time to rersolve, I would think that monitoring its size would be appropirate for the tme being. Perhaps it could be viewed as a scab over a wound...
  8. There are no lymph nodes there, so it must be a...

    There are no lymph nodes there, so it must be a lung nodule - I have had many observed since 2008. All of them have resolved on their own. Having just cleared up 5 weeks of pneumonia, I am guessing...
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    Great to hear from you - even if the news is less...

    Great to hear from you - even if the news is less than stellar. You have to be alive to have complaints, right? Once you are long-term, it is good to think back to your diagnosis and see just how...
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    "Officially" 4 years old today

    Member abeucher who posts in the Leukemia/MDS forums just wished me a happy birthday. Then it struck me - it was four years ago today that I received that pale transfusion of stem cells. Further...
  11. Thread: Car t

    by po18guy
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    Oh crud - It is today! Thank you very much! As...

    Oh crud - It is today! Thank you very much! As always, I strive to be delighted to be anywhere.
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    I see that there are two general categories and...

    I see that there are two general categories and six types of CVID. It seems to me that based on your desciption and testing, you need treatment, i.e. immunoglobulin infusions to help your struggling...
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    Sorry to hear this. Since you have no diagnosis,...

    Sorry to hear this. Since you have no diagnosis, I moved your post to "worried." It is far too soon to think or worry about cancer. This year in particular, there are many viruses (still) going...
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    Here is my skewed take on this: If you have...

    Here is my skewed take on this: If you have lymphoma, you have it, right? It will make itself known and you treat it then. Even if you have it, it is certainly not an emergency. Are you remembering...
  15. Thread: BM test

    by po18guy
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    We are not doctors or pathologists. But, zero...

    We are not doctors or pathologists. But, zero bone marrow involvement is a good sign. If no myelodysplasia is seen, that is also good. Other than that, I would guess that if her complete blood counts...
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    Although the fear of cancer is real, I think you...

    Although the fear of cancer is real, I think you might be over-thinking this and getting ahead of yourself. Rather than Google cancer, why not study your immune system, i.e. the lymphatic system? It...
  17. Thread: Car t

    by po18guy
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    Dr. has mentioned an immunoglobulin infusion more...

    Dr. has mentioned an immunoglobulin infusion more than once, but we are always monitoring some new drug or combo, so nothing yet. Four years post-transplant (as of Wednesday, July 17th), I fight...
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    Free webinar: Treatment options for AML

    The Bone Marrow Transplant infonet (www.BMTinfonet.org/) announces a free webinar on treatment options, to include transplantation, for those diagnosed with Acute Myeloid Leukemia (AML). The webinar...
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    There are also lymphoproliferative conditions...

    There are also lymphoproliferative conditions that are not cancerous. There are low-grade infections of all three types (viral, bacterial, fungal) that are difficult to detect, but still cause lymph...
  20. If you are diagnosed with anxiety disorder, OCD,...

    If you are diagnosed with anxiety disorder, OCD, scrupulosity or panic attacks, the gold standard in drug-free treatment is Cogntive Behavioral Therapy. Do llook into it, as you deserve to live in...
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    Go with a National Cancer Institute designated...

    Go with a National Cancer Institute designated comprehensive cancer center. Even if it means flying. Do what it takes. You need peace of mind if things are OK, and world-class care if they are not. ...
  22. For the time being, go to www.clinicaltrials.gov...

    For the time being, go to www.clinicaltrials.gov and type her diagnosis in. Numerous results will pop up and you simply have to look for those which are still recruiting members, and which are...
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    Well, it took me two months after I knew I had...

    Well, it took me two months after I knew I had cancer (it was obvious). This onvolved one primary doctor, one ENT, one surgeon, one oncologist, one pathologist - only to receive a mis (missed)...
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    Understood. Obviously, I have been out of the...

    Understood. Obviously, I have been out of the loop for some time. Good and bad, actually.
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    On the subject of monoclonal antibodies, I...

    On the subject of monoclonal antibodies, I received two infusions of Ofatumumab (Arzerra) to control GvHD. Over two years later, I am still B Cell depleted. Pretty potent stuff. From the Wiki:
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