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  1. Replies
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    your welcome

    your welcome
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    Hi done that for you as it was easier than...

    Hi done that for you as it was easier than explaining, if its wrong tell me how you would like it wording

    John
  3. Hi again, at this stage it could be anything or...

    Hi again, at this stage it could be anything or nothing and whilst we can second guess, that's all it would be a guess, the scan will give them a clearer picture and the are a number of non cancerous...
  4. Whilst the CT scan was more about the neck (I...

    Whilst the CT scan was more about the neck (I assume from your first post) its probable she has had a neck and chest scan or they may have gone down to the abdomen, worth asking what was done, as the...
  5. So what was the update from the ultrasound has it...

    So what was the update from the ultrasound has it led to a referral to a haematologist? also just in case its your mother in laws cancer related incidents that is driving this worry, try to manage...
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    Hi Riley, sorry to see you have health concerns,...

    Hi Riley, sorry to see you have health concerns, the are around 80 different sub types of lymphoma and typing it can be a challenge in some cases, whether thats the case with your nodes only time...
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    The second generation of CAR-T treatment is I...

    The second generation of CAR-T treatment is I believe currently being developed and its a much smarter version with reduced toxicity, when the trials will start I have no idea but I did read that one...
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    The programme follows 2 leukaemia patients one...

    The programme follows 2 leukaemia patients one Male who was receiving donor T cells from his brother and a teenage boy who received his own cells back, both were challenging patients especially the...
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    Yes at the end they showed shots of people who...

    Yes at the end they showed shots of people who had been on the trial and some were close to 2 years in remission.
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    UK TV programme following CAR-T patients

    Tonight UK time 9.00pm on BBC 2 the is a programme called War In The Blood which follows 2 patients in the UK who took part in a trial of CAR-T therapy hopefully it will be available on the BBC...
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    Yearly visits sounds like a positive move, so...

    Yearly visits sounds like a positive move, so lets hope the routine issues remain as such and a sense of calm prevails

    John
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    In general terms I would agree an excision biopsy...

    In general terms I would agree an excision biopsy is best, but when done well core biopsies can give a diagnosis especially if several have been taken as an excision biopsy may not always be...
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    Hi and sorry you have had to join the forum due...

    Hi and sorry you have had to join the forum due to the challenges your wife lymphoma is presenting, one thing you learn whilst dealing with lymphoma is whilst we may have some things in common, each...
  14. Thread: Checking In

    by johnr
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    Role on the 11th of September and your official...

    Role on the 11th of September and your official remission date, and good to see life is being good to you, but do park up the survivor guilt, so stick with the cured and life will continue to...
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    Some years previous around 2015 to 17 a sub type...

    Some years previous around 2015 to 17 a sub type of fnhl was identified and the was talk of it being classed as pre fnhl and may never need treatment, not sure where the research and discussions got...
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    Hi slightly damp is not a night sweat if that's...

    Hi slightly damp is not a night sweat if that's the fear, a drenching sweat where you have to change bedding is something to raise with your medical team if it happens. Is it possible your level of...
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    Thats a great update and good to read you are...

    Thats a great update and good to read you are more relaxed, re lack of appetite many of us have experienced that and whilst not feeling like eating I did as I knew I had to, it was something I could...
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    Hi first I would advise don't start a new thread...

    Hi first I would advise don't start a new thread that way everything is in one place which helps people when they reply to your questions.

    Second what you have experienced once you have told...
  19. Thread: New in TN

    by johnr
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    Congrats on making retirement but beware I became...

    Congrats on making retirement but beware I became busy once I retired when compared to when I was working, but at least you chose what you do, enjoy!
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    good to hear all is well so learnt from this next...

    good to hear all is well so learnt from this next time you have a worry and enjoy life.

    John
  21. Thread: Hi everyone!

    by johnr
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    Hi, really good to hear from you and that as hard...

    Hi, really good to hear from you and that as hard as it is, life continues and I hope your son is coping to,

    sending back lots of positive thoughts and vibes

    John
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    Hi, I have edited the title for you so that...

    Hi, I have edited the title for you so that should help, telling everyone is challenging as you have to explain and especially so with an indolent type where you might be on watch and wait as people...
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    Hi, sorry to see you have moved from the worried...

    Hi, sorry to see you have moved from the worried forum to actually having a diagnosis, some of what you are experiencing is normal and the advice I would offer at this stage is try to think of this...
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    Hi, mine were multiple in the small intestine and...

    Hi, mine were multiple in the small intestine and a large mass in the abdomen, so perhaps before his treatment or when it starts discuss food options with his doctor as I may have already mentioned...
  25. Thread: Scared

    by johnr
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    Hi again and I say this to help rather than be...

    Hi again and I say this to help rather than be dismissive, but the number of times someone has posted to say a medic has told them it looks like lymphoma is numerous and most turn out not to have,...
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