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  1. Replies
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    good to hear all is well so learnt from this next...

    good to hear all is well so learnt from this next time you have a worry and enjoy life.

    John
  2. Thread: Hi everyone!

    by johnr
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    Hi, really good to hear from you and that as hard...

    Hi, really good to hear from you and that as hard as it is, life continues and I hope your son is coping to,

    sending back lots of positive thoughts and vibes

    John
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    Hi, I have edited the title for you so that...

    Hi, I have edited the title for you so that should help, telling everyone is challenging as you have to explain and especially so with an indolent type where you might be on watch and wait as people...
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    Hi, sorry to see you have moved from the worried...

    Hi, sorry to see you have moved from the worried forum to actually having a diagnosis, some of what you are experiencing is normal and the advice I would offer at this stage is try to think of this...
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    Hi, mine were multiple in the small intestine and...

    Hi, mine were multiple in the small intestine and a large mass in the abdomen, so perhaps before his treatment or when it starts discuss food options with his doctor as I may have already mentioned...
  6. Thread: Scared

    by johnr
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    Hi again and I say this to help rather than be...

    Hi again and I say this to help rather than be dismissive, but the number of times someone has posted to say a medic has told them it looks like lymphoma is numerous and most turn out not to have,...
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    Hi, that sounds more positive and good to see...

    Hi, that sounds more positive and good to see signs of improvement, once treatment starts then he should get some more relief as we explained earlier, don't worry to much about staging and 6 rounds...
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    When it comes to symptoms, nothing appears...

    When it comes to symptoms, nothing appears bizarre as in your case you have a range of issues, some may be link others not and some may be due to your heightened awareness as you seek answer. I know...
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    Hi, sorry to see you are concerned about your...

    Hi, sorry to see you are concerned about your health and feel the need to post, my advice would be have faith in your doctors and let them do what they trained to do, diagnose disease and reassure...
  10. Thread: Car t

    by johnr
    Replies
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    6,662

    Your positive reports will help those who follow...

    Your positive reports will help those who follow and its good to see that on balance things are improving more, 2 weeks for appointment is good to lets hope you have a good summer and can enjoy the...
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    Hi, if its DLBC it is worth asking could he be...

    Hi, if its DLBC it is worth asking could he be started on steroids until treatment starts as they are known to help reduce tumour burden which may just offer some relief to his stomach. If you can...
  12. Hi do start your own thread and others will reply...

    Hi do start your own thread and others will reply and look up the T cell Foundation lots of good info there
  13. Thread: Scared

    by johnr
    Replies
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    767

    Best not to speculate or be curious, as the are...

    Best not to speculate or be curious, as the are so many variables with indolent lymphoma, but as you are going to prove them wrong and you don't have a diagnosis, don't waste time pondering the what...
  14. Thread: Scared

    by johnr
    Replies
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    767

    Hi no need to apologise, will watch out for your...

    Hi no need to apologise, will watch out for your update and just to say I have talked to many people over the years where a doctor has said it was lymphoma and it turned out not to be, that's why we...
  15. Thread: Scared

    by johnr
    Replies
    10
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    767

    Hi and sorry to see you posting about your...

    Hi and sorry to see you posting about your worries, as you do not have a diagnosis of lymphoma I have moved your post to the worried forum please read this sticky :...
  16. Hi I was in a similar position 9 years ago, my...

    Hi I was in a similar position 9 years ago, my DLBC was in my small intestine and main mass was in my abdomen, after 8 rounds of treatment I had a mass remaining which was a similar size to yours and...
  17. Thread: Car t

    by johnr
    Replies
    88
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    6,662

    Hi good to see another positive post, I nearly...

    Hi good to see another positive post, I nearly shared this earlier but have the doctors considered if James may be suffering with delirium ? I have seen this at first hand with a relative who was in...
  18. Thread: My story NHL

    by johnr
    Replies
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    Hi and good to see you back and to read the side...

    Hi and good to see you back and to read the side effects are history, as will always be, I am a little way behind you, for me it was 10 years gone April for my diagnosis and we both are classed as...
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    Another good step forward so lets hope you mange...

    Another good step forward so lets hope you mange to escape tomorrow, home is a much better place to recuperate
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    Sorry for your lose, my condolences to you and...

    Sorry for your lose, my condolences to you and your family, whilst this is often a sad time, I do hope the happy memories can shine through and ease the pain.

    John
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    Good to see the counts are heading in the right...

    Good to see the counts are heading in the right direction and so long as many of the issues settle then life should be good based on what others have shared and experienced, as for the nerve issues...
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    Hi Kate, sorry to see you feel the need to post,...

    Hi Kate, sorry to see you feel the need to post, we are a community of patients, family and carers who share experiences and support people with cancer, none of us are medically trained so whilst we...
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    Had hoped it would be uneventful for you, that...

    Had hoped it would be uneventful for you, that said I have no doubts that you will push on and get through this, you have the belief and inner strength that's needed and will reap the rewards that...
  24. Hi Nick and welcome to this forum, lets see what...

    Hi Nick and welcome to this forum, lets see what responses you get, especially about how you place importance on LDH levels and what they infer.

    Nick and I have shared thoughts on the macmillan...
  25. Thread: CHOP Experience

    by johnr
    Replies
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    good update and bodes well for the remaining...

    good update and bodes well for the remaining cycles, just watch for fatigue creeping in.
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