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  1. Replies
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    Busby I had my PCa locate just within the...

    Busby I had my PCa locate just within the prostate bed with No positive Margins. I did SRT and hoped it worked. I also had a great scan showing where it was. I also started ADT/HT and this does not...
  2. OTS, 3.4 is typo should read .34 Penn Medicine...

    OTS, 3.4 is typo should read .34 Penn Medicine stated 68Ga-PSMA PET would not have show any different than that the Axumin did it just would have been a clearer picture. Nearly all Prostate Ca...
  3. So I've been on the Xtandi for about 33 days...

    So I've been on the Xtandi for about 33 days 7/29/2019 PSA <.06 I have continued on ADT Trelstar. My MO appts. are going to be monthly with Xgeva shots starting in Sept. I feel well the hot flashes...
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    Not sure why you would want to stop what could be...

    Not sure why you would want to stop what could be life extending treatments? Without them you may not be able to work ever again! Like the guy who wants erections sparing surgery, erections are no...
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    I think the longer your in this battle the easier...

    I think the longer your in this battle the easier it gets. While not happy not knowing the results I find it worse knowing the results days before the doctor! I just had this happen and when I went...
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    Not this is of any help. I think the more fit you...

    Not this is of any help. I think the more fit you are going into ADT the better your body will handle it. I have been on ADT for 2 years 1 month and was supposed to stop but was only off ADT for 40...
  7. Duck2 as you mentioned above I am leaving my MO...

    Duck2 as you mentioned above I am leaving my MO locally as he is part of a group. RCCA (Regional Cancer Care Associates) is a large cancer group here on the east coast. My doctor is covered in...
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    Mike, it seems there is always another treatment...

    Mike, it seems there is always another treatment to start and move that PSA down. We both had the same surgon (Pierre Mendoza) and we both have a second BCR at this time! We both were on Trelstar. I...
  9. I have already done all that as posted above and...

    I have already done all that as posted above and have setteled the issue with getting the Xtandi at Walgreens. They are in the mail. The post was about these doctor networks that suck you in and tell...
  10. What's been your Experiance with Meds and paying for them?

    I check on the Forum: Financial issues and that forum has little active post. I know its the gorila in the room subject! I just changed over to a MO locally and he has put me on Xtandi and continue...
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    Kimba , I haven't seen anything about history....

    Kimba , I haven't seen anything about history. Grandfather, Father, Brothers? These help in what to do next!
    Steve d
  12. At this time I don't think so. The only real...

    At this time I don't think so. The only real proof is the BCR. The Pet scan seems to indiacte the left iliac bone metastatic condition, but was not conclusive. Both ONC's agreed that the treatment...
  13. I have no treated sports injuries in the pelvic...

    I have no treated sports injuries in the pelvic region, it seems treatment is the factor in determining trama! This is not to say I have not had injuies in that area or lots of other area's of my...
  14. Pet/Ct Scan w/Axumin Inconculsive on 2nd BCR

    So I had the Pet/Ct scan w/Axumin completed on the 10 June met with the Oncologist at Penn University on the 12th. The test was not conclusive on the location of this 2nd BCR. He said he wished it...
  15. Thread: Psa after Rp

    by steve135
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    As I read through the post I tended to agree and...

    As I read through the post I tended to agree and disagee with post. I for one had uPSA test at .006 for 6 consecutive 3 month test. Then .030 followed by .235 not a single variation execpt when the...
  16. Dougbla, I am right there now. RP went 1 year 2...

    Dougbla, I am right there now. RP went 1 year 2 months undetectable,PSA came back at .4 did trial study found BCR did SRT (42) Did ADT 2 years 1 month PSA up to .258 waiting Pet Scan w/Axumin MO...
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    I had done 42 SRT ending 2 years ago today. I had...

    I had done 42 SRT ending 2 years ago today. I had no swelling. I did work through the treatments, stopping for lunch getting zapped and going back to work every day! It could have made a difference...
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    Mostth, I read your signature this has my...

    Mostth, I read your signature this has my concern...
    Adenocarcinoma ( 4 + 4 = 8, Grade group 4)identified
    forming a mass (3 x 1.5 x 1.2 cm) involving right
    superior-mid-inferior posterior &...
  19. Mike all great info thanks Meet with MO at Penn...

    Mike all great info thanks Meet with MO at Penn on the 12th Axumin test on 10th PSA should be just over .3 will talk with my MO today about low PSA and Axumin/Pet. I will ask about PSMA Scan at Penn!
  20. Yes I corrected that < error. Thanks for...

    Yes I corrected that < error. Thanks for reminding me about PSA levels and Axumin. Seems <.2 has less positive results. It seems that above .5 to 1.0 has the best responce to testing! I was over .6...
  21. I agree with Duck2... I had same issues as you...

    I agree with Duck2...
    I had same issues as you but add weak erection. This at the age of 56. Had my URO not been so concern about my PSA going from base line 1.5 to 2.0 one year. And retesting...
  22. Met with URO, why do they look surprized when PSA...

    Met with URO, why do they look surprized when PSA goes up again? He gave me a script for a Pet/Ct Scan with Axumin (fluciclovine ) , have a delay with insurance issue! I knew I was going to have an...
  23. If you look back when I had the first reccurence...

    If you look back when I had the first reccurence my PSA was going up .1 every 11 to 13 days ended up at .6 before I got the Axumin Pet Scan! Which located the tumor.
    Oh and by the way my wife and I...
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    There probaley isn't any mistakes with my...

    There probaley isn't any mistakes with my testing/ I went from .006 to .03 to .235 in 3 month testing. I ask the girl at Labcorp about me paying she said NO! As soon as she enters my name its shows I...
  25. Last PSA was not a fluke we have recurrence for second time!

    Well anyone following my PCa journey I had a recurrence 1 year 4 months after RP. I did 42 Radiation treatments, and was on ADT for 2 years 1 month.
    Feb 2019 was uptick in PSA first time since...
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