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Type: Posts; User: David52

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    Hi Astrid! I am certain this whole process...

    Hi Astrid!

    I am certain this whole process seems a bit intimidating. Hopefully, you will find a suitable match off the registry. I think most of us do, tho PO is a bit of an anomaly there. As...
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    Hi Astrid, PO is surely the expert around here...

    Hi Astrid,

    PO is surely the expert around here on hematologic cancers. But I have had two transplants in SLC at the Huntsman Cancer Institute....so if that is where you are being treated and...
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    Hey PO! Just checking in myself to see how all...

    Hey PO!

    Just checking in myself to see how all is around here. Hoping you get to the bottom of the symptoms you are exploring. Am hoping it is not GVHD morphing....that stuff sucks. I have a...
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    Well done, Allison. 4 1/2 years is great! I'm...

    Well done, Allison. 4 1/2 years is great! I'm aspiring to follow in your footsteps, but got ways to go to get there!

    David
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    PO, By now, bone marrow biopsies are old hat...

    PO,

    By now, bone marrow biopsies are old hat for you. Tho one would think that as many as you have had to endure, they couldn't just insert a permanent spigot of some kind, and save you some of...
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    Hey Kerm, Was just checking in and see you are...

    Hey Kerm,

    Was just checking in and see you are joining Team Transplant. I did both auto and allo, and honestly didn't find a whole lot of difference. John's advice re the ice chips is golden...
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    Well, them not being interested in seeing you til...

    Well, them not being interested in seeing you til June Seems to me a positive thing....Now, just go about justifying their confidence in your increasingly good health!
  8. Thread: Fired

    by David52
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    Fired

    I had my 3 yr post transplant check up at the Huntsman Cancer Institute on Monday. Blood work all fine, save for a slightly elevated Creatinine level, which is just part of my post transplant life,...
  9. Well done, Mike! Keep on, Pal!

    Well done, Mike! Keep on, Pal!
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    Kim, I hadn't remembered you lived in that...

    Kim,

    I hadn't remembered you lived in that area....dang it.....I am so sorry you and your loved ones are having to battle this. It looks totally horrifying. So know am sending lots of love and...
  11. Hi Debbie! Couple of things. First, ALCL is...

    Hi Debbie!

    Couple of things. First, ALCL is anaplastic Large T-Cell Lymphoma. It is pretty rare, and pretty aggressive, but seems to respond well to treatment, especially a new drug therapy...
  12. Deb: Just to chime in here for the record, I...

    Deb:

    Just to chime in here for the record, I am also a T-cell guy who relapsed after an auto SCT. I was 2 1/2 yrs out from my auto when I relapsed. No symptoms....just one bright spot on my Pet...
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    Anne, What Anita said.....I simply cannot...

    Anne,

    What Anita said.....I simply cannot imagine how devastated you must feel. All I can say is I am hoping you hang in there....I am sure it is what your husband would have wanted you to do. ...
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    Kerm, Way sorry you are back in the fray, as...

    Kerm,

    Way sorry you are back in the fray, as it were. Looks to me that you have way plenty expert advice about all the therapeutic options. And the acronyms slay me too! But if we're going...
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    That is absolutely a perfect distillation of the...

    That is absolutely a perfect distillation of the very best we can do in terms of living our lives while afflicted with this gunk. Well said. Keep it up!
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    Deb, Am so glad you had a good visit! And...

    Deb,

    Am so glad you had a good visit! And didn't get gored by a bison or eaten by a bear! We're having those kinds of issues this year.

    Come back!

    David
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    Well, I've pondered that. But all my workmates...

    Well, I've pondered that. But all my workmates forbid it at the moment. My favorite law partner says she will call me a quitter if I retire now. So I guess I'm still hanging for a bit. Just...
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    Had every 6 or so month check up with my local...

    Had every 6 or so month check up with my local onc. Nothing much to report. I have gained about 8 pounds (I had a cruddy-busy Summer, and lost my usual diet focus....and so got a bit careless...
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    Your Hubs is amazing. "Just ran 5 miles". If...

    Your Hubs is amazing. "Just ran 5 miles". If the man wants a coke and a cookie....Go for it!

    David
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    Just saw this. I love your attitude....and am...

    Just saw this. I love your attitude....and am way glad for your results.
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    Well done, PO. Hang in there. David

    Well done, PO. Hang in there.

    David
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    That just hurts my heart so bad.

    That just hurts my heart so bad.
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    Dammit, PO..... This just sounds miserable. I...

    Dammit, PO.....

    This just sounds miserable. I am so sorry you are having such a rough go of this. I get that transplants aren't supposed to be a walk in the park, but I am genuinely feeling like...
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    Mitzi, this is so totally exciting. Please keep...

    Mitzi, this is so totally exciting. Please keep us posted. Am so excited for Coach!

    David
  25. PO, I spent the weekend in Denver at a...

    PO,

    I spent the weekend in Denver at a symposium for transplant folks sponsored by the BMTinfonet.org folks. I was fascinated by all the conditions that SCTs are used for, most of which I hadn't...
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