A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Hi IndyLou, Nothing has been scheduled yet. I...

    Hi IndyLou,

    Nothing has been scheduled yet. I think they are waiting till the Wednesday tumor board to proceed.

    I spoke to my new local oncologist today and she seemed totally perplexed by the...
  2. 1. Biopsy the hard to reach but highly active...

    1. Biopsy the hard to reach but highly active lymph node, by getting at it internally (through my bronchi, I think). Then they will compare the genetics of the tissue samples taken from the two...
  3. IndyLou, The meeting went much better than I...

    IndyLou,

    The meeting went much better than I expected, at least when it came to the relationship between myself and the head and neck medical and radiation oncologists. They gave me a thorough...
  4. I got the CT scan report back. Long story short...

    I got the CT scan report back. Long story short it seems highly likely that I have 3 metastases to the lung. Either that or, in spite of never having smoked or had a serious chest infection, I just...
  5. Well, I am back out of the hospital. It turns out...

    Well, I am back out of the hospital. It turns out that it didn’t actually start as afib briefly before turning into the weird sinus arrhythmia. Which is a real relief. I don’t actually have a new...
  6. Thanks for that long post. I totally get the...

    Thanks for that long post. I totally get the “squeamish vanity” about having too many things installed. Totally get it.

    I wound up speaking with my nurse navigator for about 1/2 hour today. I’m...
  7. Thanks, IndyLou! Yes, I am a planner. My...

    Thanks, IndyLou!

    Yes, I am a planner. My husband used to call me his little cruise director, until I told him to knock it off. LOL. :lol: Sometimes it works out really well for me and I wind up...
  8. I just realized another big problem I may have. I...

    I just realized another big problem I may have. I take really good probiotics to keep severe recurrent diverticulitis at bay. And I have no idea how I would be able to take them if I can’t swallow or...
  9. Thanks IndyLou, I know what you mean about...

    Thanks IndyLou,

    I know what you mean about putting faith in your team. Although I still have outstanding concerns (as you can obviously see), I did feel a lot more comfortable with the oncologist...
  10. (Cont’d) Besides, it is not as if I will a)...

    (Cont’d)

    Besides, it is not as if I will a) drop dead on September 9th, if I don’t start this treatment plan or b) live a wonderful healthy life in full vigor and no lingering side effects until...
  11. Thanks po18guy, But not all fear is irrational...

    Thanks po18guy,

    But not all fear is irrational fear. Note, I am not saying it is all rational. I am saying it is not all irrational. In other words, I think it is a sign that for me something is...
  12. (Continued ...) My new local oncologist kept...

    (Continued ...)

    My new local oncologist kept gesturing at her neck when she was speaking to me about my case and I asked her where she thought my tumor were and she admitted she didn’t know for...
  13. Thanks for the suggestions re: the effectiveness...

    Thanks for the suggestions re: the effectiveness of lower dose radiation. This reminds me of the discussion I had with the oncologist re: possible chemo agents. I told him I didn’t want cisplatin...
  14. Head & neck SCC of unknown primary — treatment options

    After a CT scan of the neck, a biopsy of an enlarged supraclavicular lymph node, a combo PET/CT scan, and consultations with an ENT, two local oncologists and a specialist oncologist at Moffitt, it...
  15. Thanks po18guy! Actually, I went down and...

    Thanks po18guy!

    Actually, I went down and picked up the PET scan results myself. It was the best way of getting them for Moffitt, besides I was having problems concentrating on anything else.

    I...
  16. I had the PET scan today. My new oncologist’s...

    I had the PET scan today. My new oncologist’s office called me 1 hour after the end of the test, saying they already had the results needed to see me ASAP. Unfortunately, for them ASAP means...
  17. Yes, I need fast action. It is scary, I am...

    Yes, I need fast action. It is scary, I am definitely getting symptomatic and I don’t even know what kind of cancer I have (I mean besides the fact that it is squamous cell carcinoma.) I have been...
  18. Yes! I have an appointment at Moffitt for next...

    Yes! I have an appointment at Moffitt for next week. But it is with a lymphoma specialist and that is not what I need. Unfortunately, I am not sure which kind of specialist I need, although I am...
  19. Got the biopsy results. Why, oh why is it always...

    Got the biopsy results. Why, oh why is it always *worse* than I fear? The lymph node tested positive for squamous cell carcinoma, poorly differentiated. At the moment, the primary tumor is unknown....
  20. Well, I actually asked for the core biopsy. And I...

    Well, I actually asked for the core biopsy. And I had it done, finally!!!

    It was actually an oddly pleasant experience. The tech and the doctor were both very nice. I barely felt anything when...
  21. Yes, I have already called Moffitt and set up an...

    Yes, I have already called Moffitt and set up an appointment.
  22. So,tiny win? However, as soon as I got out to...

    So,tiny win?

    However, as soon as I got out to my car, is struck me. He is probably convinced I have squamous cell carcinoma of the digestive tract in part because of my supposed “history” of...
  23. Not worriedPossible squamous cell carcinoma of the esophagus???

    I am starting a new thread for this, since it is new cancer worry.

    I have been thinking I have lymphoma for about a month now. My PCP and my oncologist both mentioned they thought I had lymphoma...
  24. Interesting about the false positives on the PET...

    Interesting about the false positives on the PET scan.

    I have no reason at all to believe that they will have any problem accessing at least one of the suspect lymph nodes. It’s right above my...
  25. Update: I received the written report from...

    Update:

    I received the written report from the radiologist today. Apparently, the nurse soft-pedaled the report on the phone. There was an additional “lesion” that the nurse failed to mention,...
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