A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Wifeinworry - email me at dkoub27 at gmail dot...

    Wifeinworry - email me at dkoub27 at gmail dot com my mom use to work for the VA, she may be able to give you tips to help betetr navigate the system
  2. what a miracle. Thank you for sharing and for...

    what a miracle. Thank you for sharing and for giving others hope. THANK YOU. and Thank you for recognizing that sometimes it can be a gift to change ones life.
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    Brachytheraphy + urination issues

    Looking for advice, similar experiences for my dad.

    He had brachytheraphy on Feb 22 of this year.
    Prior to that he had 40 rounds of external beam radiation.

    The seeding went well with...
  4. HI Michael, After we went to Costa Rica the...

    HI Michael,

    After we went to Costa Rica the urology office taught him how to self catheterize. He was told to do it X number of times a day and slowly weaned off of it. He had to measure his...
  5. My dad is starting treatment, finally!

    I am happy to announce that my Dad made a decision and I flew to Florida this week to kick off the precursor to the treatment!

    As soon as he was diagnosed he started on Firmagon right away. He has...
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    Medicare denied my dad however the facility...

    Medicare denied my dad however the facility offered him the medicare cost for the pet scan, so he paid out of pocket $947 to have it done.
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    what were her symptoms? how was she diagnosed? 37...

    what were her symptoms? how was she diagnosed? 37 mom of 3 little girls and going for a mammogram on Saturday.
  8. Hi, my dad also found out he had prostate cancer...

    Hi, my dad also found out he had prostate cancer only because he could no longer urinate either. He was with a catheter in for over 3 weeks. He can now urinated on his own! He is on flomax (every...
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    Hi Denis, can you link the decision tree?

    Hi Denis, can you link the decision tree?
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    Thank you SO MUCH for sharing! I wish I could go,...

    Thank you SO MUCH for sharing! I wish I could go, maybe next year.

    Did they share/discuss the rising trend in reports showing similar 10 year outcomes for surgery versus brachytherpay and/or...
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    John, I am very sorry that you are here. I do...

    John,

    I am very sorry that you are here. I do not have prostate cancer, but my father was diagnosed in July and I stand by his side researching, talking to doctors, and helping him decide his...
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    do you have a link to where we can find the...

    do you have a link to where we can find the subscription to buy?
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    how do you become part of the Hopkins study...

    how do you become part of the Hopkins study group? do you have to live in the DC Metro area?
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    Can you point me to the newer guide or newer...

    Can you point me to the newer guide or newer guidance on Radiation? No surgery done yet.
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    Daddysgirl123. My dad was recently diagnosed too...

    Daddysgirl123. My dad was recently diagnosed too and I coincidentally live in Northern Virginia. My Dad is in Florida though. I have researched a ton and my dad is still getting opinions and...
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    Choosing The Right Treatment - Hopkins

    Just wanted to share this link to a formative guide released by John Hopkins. My Dad has found it very helpful to understand more of his options. Wanted to share for others who unfortunately need to...
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    Can you explain what impact radiation can have...

    Can you explain what impact radiation can have over urinary function?
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    Gary, we can't make a quick decision, we have to...

    Gary, we can't make a quick decision, we have to make the RIGHT decision. Each doctor said and was mostly in line with any treatment (surgery or radiation) within the next 3 months. My father hopes...
  19. Medicare Insurance, No supplement. Estimating Costs

    Just another day and another hiccup.
    My Dad has Medicare Complete, PPO, no supplement. Found out today Moffit is "out of network" so urology visits are classified as "specialist" and are affordable,...
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    Hi Joel, I am not sure what other medical issues...

    Hi Joel, I am not sure what other medical issues my dad had leading up to this point? He hasn't even gone to a doctor for 20+ years (part of what got him into this mess) but granted, he hasn't had...
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    They say knowledge is power, but knowledge has...

    They say knowledge is power, but knowledge has lead us to needing more knowledge. It is confusing and at least in FL feels like many run these practices very business like rather than human like. ...
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    4 opinions and still unsure

    For those following our progress, here is a LONG summary of our four opinions gathered last week in Florida.


    Last week I traveled from VA to FL to be with my dear father to go gather our second,...
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    Couldn't agree more. First he told me 4+3 and...

    Couldn't agree more. First he told me 4+3 and during that call he told me I should "disregard" the 3 and consider it 4 + 4...Once I got to Florida last week and got a copy in my hand I realized it...
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    Michael, He is actually 3 + 4 = 7 for ALL core...

    Michael, He is actually 3 + 4 = 7 for ALL core samples. The dr on the phone when he gave me the diagnosis weeks ago said 4+3 but he was WRONG. I now have the pathology report. 3 + 4 for ALL.
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    in the event you went with Dr. Dattoli, how was...

    in the event you went with Dr. Dattoli, how was your husbands experience?
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