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    I would also say that you should keep any...

    I would also say that you should keep any earliest appointments you have made. That size tumor should be hard to miss. With my father, delays from appointments really added up and I wished we had...
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    This does sound encouraging!

    This does sound encouraging!
  3. Thread: Ca 19-9

    by ddessert
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    If you limit your sugar intake, your body will...

    If you limit your sugar intake, your body will still convert starches (using amylase), proteins and fats (gluconeogenesis) into sugars. Carbohydrates are just an umbrella term for various kinds of...
  4. Thread: Ca 19-9

    by ddessert
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    Jackie, the problem with the “sugar feeds cancer”...

    Jackie, the problem with the “sugar feeds cancer” idea is not that sugar feed cancer, because it certainly does as sugar does for all cells in your body.

    The problem with “sugar feeds cancer” is...
  5. Thread: Ca 19-9

    by ddessert
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    1,524

    Jackie, there is some evidence for what you are...

    Jackie, there is some evidence for what you are saying. It seems somewhat heretical to not throw everything at this for as long as possible, but that may be causing the ineffectiveness to happen...
  6. I think PARPi started with ovarian cancers. But...

    I think PARPi started with ovarian cancers. But it is a growing and successful trend to consider treatments based on cancer genetics as well as the site of origin. Oncologists that are not on board...
  7. Thread: Ca 19-9

    by ddessert
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    1,524

    I made two videos about CA19-9 and pancreatic...

    I made two videos about CA19-9 and pancreatic cancer:
    Pancanology explains causes of CA19-9
    Pancanology Explains CA19-9 and Treatment Effectiveness
  8. I will say that in general, immunotherapy has...

    I will say that in general, immunotherapy has been a bust in pancreatic cancer thus far - especially as compared to other non-solid Tumor cancers. It seems our stroma surrounding the tumor is being a...
  9. Thread: Olaparib

    by ddessert
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    That’s right, none are yet approved for...

    That’s right, none are yet approved for pancreatic cancer. I’m not familiar with all the details on how to get it, but it’s almost certain you need a doctor on your side pulling the same way!
    ...
  10. Please note that without a gallbladder high-fat...

    Please note that without a gallbladder high-fat meals can cause significant diarrhea. Historically, the gallbladder was employed by ancient humans when they had a large feast (perhaps a large animal...
  11. Thread: Olaparib

    by ddessert
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    There are several PARP inhibitors available, I’m...

    There are several PARP inhibitors available, I’m not sure why only olaparib would be recommended? Rucaparib (they all end in “-parib”) is offered through Dr. Kim Reiss-Binder’s trial and she may even...
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    Peripheral Neuropathy: It probably depends on the...

    Peripheral Neuropathy: It probably depends on the ultimate cause of the neuropathy. Mine was caused by weight loss (the nerves got exposed to raw bones due to loss of fat and muscle) and improved as...
  13. Thread: Nexium

    by ddessert
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    I do take it every day. I was told by my surgeon...

    I do take it every day. I was told by my surgeon that I would be on it for life. The reduced stomach acids are supposed to prevent anastomosis, or ulcers that eat through the surgical joints after...
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    Here is the link to the chat on pancreatic cysts:...

    Here is the link to the chat on pancreatic cysts:
    https://wakelet.com/wake/92e1db71-948a-4690-8144-5afb399b8223
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    As it seems that you are a chemotherapy veteran,...

    As it seems that you are a chemotherapy veteran, I'm sure you will quickly navigate this too. FOLFIRINOX is perhaps our best 1st-line treatment. I was fortunate enough to travel the stage 3 path to...
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    I was a little rough on them. I think I might've...

    I was a little rough on them. I think I might've been the only patient, too. They just get talking amongst themselves in their own language. The summary link should be up there tomorrow.

    Next...
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    Perhaps a bit late, but today's Twitter #PancChat...

    Perhaps a bit late, but today's Twitter #PancChat is on Twitter in 5 minutes where the topic is pancreatic cysts.
    I will try to ask some relevant questions on your behalf and post a link to a...
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    Yes, I guess a messed up office. When the...

    Yes, I guess a messed up office.

    When the biopsy is scheduled, ask if there is a way to get enough material for genetic/molecular testing at the same time. This information can be really...
  19. Thread: Nexium

    by ddessert
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    581

    I take a different PPI called pantoprazole...

    I take a different PPI called pantoprazole (protonix).
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    They should next schedule an appointment for an...

    They should next schedule an appointment for an endoscopic ultrasound (EUS) for a Fine-Needle Aspiration (FNA). This will be with a GI surgeon with special training for this procedure. They will try...
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    Did they give her steroids with her chemotherapy?...

    Did they give her steroids with her chemotherapy? Many patients get steroids to help with the fatigue and feel great that next day. But soon after it wears off and extreme fatigue sets in. We all...
  22. I lament that we cannot push our doctors to do...

    I lament that we cannot push our doctors to do something we’d like to do but they don’t think we should.

    One question: is the ATM mutation germline (inherited) or somatic (only in the tumor)?...
  23. Hopefully your oncologist will know what to do...

    Hopefully your oncologist will know what to do with that ATM mutation, if it’s ever needed. There have been some more PARPi successes in ovarian cancers for similar mutations, so approvals may come...
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    When you look at those PanCan patients with...

    When you look at those PanCan patients with elevated CEA and lipase, you are usually looking at patients who are well along in the cancer, not early detection. Hardly anyone really uses CEA for...
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    I’ve moved your post to its own thread. Blood...

    I’ve moved your post to its own thread.

    Blood work does not diagnose pancreatic cancer. The CT scan you had in the spring is a great diagnostic tool as is an Endoscopic US (not an abdominal US) or...
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