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  1. Thread: Ca 19-9

    by Dessmo
    Replies
    19
    Views
    1,524

    This is a controversial topic, where the...

    This is a controversial topic, where the mainstream of oncologist say it does not matter what you eat including all kinds of sugar (starch, fruit sugar, wheat, corn, etc). But there are also...
  2. Thread: Ca 19-9

    by Dessmo
    Replies
    19
    Views
    1,524

    Fantastic news Jackie, best wishes!

    Fantastic news Jackie, best wishes!
  3. Replies
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    1,247

    Hi Jackie, got a second opinion from Prof Buchler...

    Hi Jackie, got a second opinion from Prof Buchler before they agreed to do surgery here in Norway. I am considering a new round of second opinion, but I would like to have the result from gastroscope...
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    Thanks David for your knowledge and experience...

    Thanks David for your knowledge and experience based advise, you are an importer source of information and support for many of us un this Forum. Thank you! I have tried to push for surgery, but my...
  5. Replies
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    1,247

    Lates CT scan - conflicting results

    Got my CT scan results a couple of weeks ago. It is now 26 months since I stopped chemo before surgery in June 2017, and 2 years since I was diagnosed with PC w/7 or 8 metastases in the liver. CT...
  6. Replies
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    Great News Ahmad. Interesting the hear about his...

    Great News Ahmad. Interesting the hear about his chemo cocktail. Is this supposed to be more effective than Folfirinox? I did 9 cycles of Folfirinox until May 2017, followed by surgery to remove tail...
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    Sorry for your loss David, best wishes to you and...

    Sorry for your loss David, best wishes to you and your family through challenging times.
  8. Jackie, You can find all the webinars at Pancans...

    Jackie, You can find all the webinars at Pancans website. Here is a link to the one that is discussed:...
  9. Thanks Jamie, All things considered I am very...

    Thanks Jamie, All things considered I am very fortunate. I will look at the trial at Loma Linda and take it in to consideration.
  10. Thanks again David, I will try your decision...

    Thanks again David, I will try your decision three listing the different options and bring that for discussion with my medical team.
  11. Thank you very much for your knowledge and advice...

    Thank you very much for your knowledge and advice David. I frequent quite a lot of forum and Facebook groups, but I must say that you are one of the more knowledgeable.
    I very much agree with your...
  12. PC/stage IV Two year anniversary - time to change treatment strategy?

    Today it is 2 years since I was diagnosed with PC (ACC) with mets to the liver. Two years ago I did not think I would be here today writing this post, but all things considered I have been fortunate....
  13. Replies
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    I very much agree with Jackie, also being one of...

    I very much agree with Jackie, also being one of the lucky stage IV patients who had surgery. There are several articles published recently that focus on surgery for patients with oligometastatic...
  14. Best wishes for your surgery and recover. I had...

    Best wishes for your surgery and recover. I had distal pancreatectomy and splenectomy in June 2017, and it was not to bad for me. First week after surgery was painful and tough, but I recovered...
  15. Replies
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    David, That seems like a very interesting forum,...

    David,
    That seems like a very interesting forum, and I think it is very smart to invite a patient with such great knowledge and experience that you have. I have a couple of thought/questions:
    ...
  16. Thread: NED baby!!!

    by Dessmo
    Replies
    14
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    4,303

    Fantastic, best wishes!

    Fantastic, best wishes!
  17. Replies
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    3,075

    Thanks Birgitte, I will discuss with my...

    Thanks Birgitte, I will discuss with my oncologist an see what he thinks.
  18. Replies
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    Best wishes with the move and lobbying David. You...

    Best wishes with the move and lobbying David. You do a tremendous job for all of us!
  19. Replies
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    Jackie is right, here in Norway we have a public...

    Jackie is right, here in Norway we have a public healthcare system so money should not be the issue. I will ask my oncologist an see what he thinks. Thanks for the inputs, happy summer to you all!
  20. Replies
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    Thanks David, your comments makes sense to me. I...

    Thanks David, your comments makes sense to me. I am therefor a bit surprised that I have not done any PET scan yet. Since I have done 12 months without chemo now, and the spots on the liver stay the...
  21. Replies
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    Does PET scan give more details than CT scan?

    Hi,

    I was diagnosed 18 months ago with tumor in the tail and metastasis the liver. 9 cycles of folfirinox followed by surgery to remove the primary tumor, but I still have mets to the liver....
  22. Yes I was stage IV all from the beginning....

    Yes I was stage IV all from the beginning. Therefor I was placed in the category "no surgery". I did not agree, did a lot of research and pushed hard for surgery. I had very good effect of 9 cycles...
  23. Thanks Birgitte, seems like interesting articles....

    Thanks Birgitte, seems like interesting articles. I think there actually also is a clinical trial operating on stage IV. Current treatment policy for stage IV patients is outdated and do not take...
  24. Honestly I dont know Jackie. ACC is quit rare so...

    Honestly I dont know Jackie. ACC is quit rare so there are limited statistics and knowledge. The general statistics I have seen indicates a longer survival than adenocarcinoma, some place it...
  25. Kerbenn, I am located in Norway which has the...

    Kerbenn, I am located in Norway which has the same policy regarding no surgery for PC/IV. I dont agree, all patients should get an individual assessment as a base for treatment strategy. I used some...
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