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  1. Hi and good to see another positive update, and...

    Hi and good to see another positive update, and more importantly you understand now how to deal with illness and to trust your doctor, hope college goes well and life is good to you.

    enjoy
    John
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    This is the FDA approval, as I am in the UK I can...

    This is the FDA approval, as I am in the UK I can only refer you to this so cannot answer question 2 and hope this answers Q1
    ...
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    have replied to you on the macmillan site John

    have replied to you on the macmillan site

    John
  4. Hi we all take allopurinol for the first month or...

    Hi we all take allopurinol for the first month or so to counter the gout issue, a bone marrow biopsy is a sample of the bone marrow so they can see if the is disease in the marrow or not, it means...
  5. Hi and welcome to the site though sorry you have...

    Hi and welcome to the site though sorry you have had to join us. I had dlbc stage 4b and finished treatment 10 years ago last month, so know this is treatable and for many they respond well and rchop...
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    Here is a report from ASH on liquid biopsy which...

    Here is a report from ASH on liquid biopsy which may tell if its transformed as it detects dlbc worth a read and a chat with the doctors

    https://ash.confex.com/ash/2019/webprogram/Paper131081.html
  7. Thread: New to this....

    by johnr
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    Hi Sam first read this paper it will help...

    Hi Sam first read this paper it will help http://www.livingwell-cancer-support.org.uk/docs/Peter%20Harvey%20-%20After%20the%20Treatment%20Finishes%20then%20What.pdf
    Like you I had stage 4 dlbc 10...
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    Hi, sorry to see your concerns have been...

    Hi, sorry to see your concerns have been confirmed, I wonder if genomic profiling would help so that they can be clear on the best next step given your history as you do seem to fall into the...
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    Now that's what I would call a great update, long...

    Now that's what I would call a great update, long may it continue and stay healthy

    John
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    Hi just read an article today from Stephen...

    Hi just read an article today from Stephen Shuster via Clinical Care Options - Clinical Thoughts where he discusses CAR-T treatment and shares a case where on of his patients had transformed FNHL and...
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    your right my error, and 34 is still young so...

    your right my error, and 34 is still young so take things a step at a time as I said earlier,
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    Hi and sorry you feel the need to post about your...

    Hi and sorry you feel the need to post about your worries, at 22 you would be very young to be getting a cancer diagnosis and the best advice any of us can offer is not to self diagnose and allow the...
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    Sorry to read that the SCT has not given you the...

    Sorry to read that the SCT has not given you the break we all hoped you would get, hope you get the answers you need quickly to allow decisions to be made in a considered way. It is still early days...
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    Hi his original treatment will have been RCHOP...

    Hi his original treatment will have been RCHOP and his new treatment could be on elf a number of regimes, all designed to do what they have done and that's get him into remission ready for a...
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    Yes Graham I am from the UK this site has users...

    Yes Graham I am from the UK this site has users from around the globe, and I read earlier you were trying to reverse your discharge so hence the comment about MIND and self referral, sometimes they...
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    Graham can I suggest you contact your local MIND...

    Graham can I suggest you contact your local MIND group and seek help for yourself, certainly in my area they take self referrals, do seek help as its the only way forward for you if you seek a...
  17. Thread: Car t

    by johnr
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    good to see another positive update, long may it...

    good to see another positive update, long may it last and fewer hospital visits must feel good
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    You must wonder sometimes surely not, why does it...

    You must wonder sometimes surely not, why does it aways happen to me,
  19. Hi and sorry to see you feel the need to post, as...

    Hi and sorry to see you feel the need to post, as you know we are not doctors and therefore cannot say what else your symptoms may be and it is really important you go to see a doctor, explain your...
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    Hi, sorry to see you have scared yourself by...

    Hi, sorry to see you have scared yourself by googling rather than talking to your parents, you obviously have a few things going on and from what you say my advice is talk to your parents and talk to...
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    was wondering how you were fairing, sorry to read...

    was wondering how you were fairing, sorry to read the roller coaster ride continues, fingers crossed the tests are negative and nothing sinister. do let us know how things go.
  22. Thread: Car t

    by johnr
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    Hi if the programme is ever shown again I will...

    Hi if the programme is ever shown again I will try to download it and will see how it may be shared as it was really good and insightful. Fingers crossed that things continue to improve and settle...
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    Keep looking for positives in life when the...

    Keep looking for positives in life when the doubts creep up it may help to, where here listening and supporting you, you can do this
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    we like that keep at it and your new approach...

    we like that keep at it and your new approach will work for you
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    Hi Josh many people have posted about raised...

    Hi Josh many people have posted about raised nodes in the neck and collarbone region on the sites I visit (over the years) and very few turn out to be lymphoma, your remission is a positive which as...
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